Terribly worried today. My younger sister, whom I live with, has been suffering from diarrhea for almost three weeks now after every attempt to eat. In the last week, she has worsened considerably and is experiencing abdominal pain, nausea, sweats, and the occasional fever. It looks like C.Diff to me, but I’ve been holding out hope that it’s something else. Stool tests have been done, blood work has been taken, but her results aren’t in yet.
If it is C.Diff, it means I need to get myself tested again. I was never tested again after my lengthy treatments for C.Diff. I asked to be, but my doctors told me there was no point because I had fairly normal stool at the time, and my IV antibiotic treatments had gone on for so long – they seemed to think that nothing would have survived that. I’ve always felt differently. Given the symptoms and post-infection complications I experience, I’ve always felt that I’m a carrier of the bacteria, though not always experiencing the severe diarrhea. I’d like to be tested with the newer, more sensitive test Rhonda mentioned in a different post. The trouble I always run into is with the labs. They see a non-watery stool and refuse to test it, because they seem to believe that a person can’t have C.Diff if their stool has any degree of formed-ness. I’m going to speak to my doctor and get him to send a letter to the lab with my sample explicitly asking for testing to be done with the newer test, regardless of how my sample looks at the time. If I still carry it, I need to be treated again, and I need to know so that I can best protect the people around me.
And if it is C.Diff, and if my sister didn’t pick it up from me, then I need to be crazy-careful that I do not pick up a new infection from her. It’s so hard to see her like this – my worst nightmare come true. My biggest fear has always been that I might, through some oversight, cause one of my family members to become infected. It really brings the “leper” feelings back, in that I keep thinking I ought to just live alone and separated from others so that I can’t infect and kill anyone. Nasty, nasty disease. But I have to square my shoulders, keep those thoughts out of my head, keep up the bleach cleaning routine, and do my best to help my sister. At least I know some tricks for abdominal pain relief!
I’ll keep you all updated on how this turns out.