My C. Diff. Story

I am a C. Diff. survivor.

While some may find the subject indelicate, I believe it is important to relate my experience in order to raise awareness about C. Diff. for several reasons. First, epidemics of Clostridium Difficile occur with frightening regularity in various hospitals and long-term care facilities throughout Canada and many other nations. Fatalities are regularly reported (see some of the disturbing stats in the “notable outbreaks” section of the Wiki article at the bottom of this page). No one deserves to die so horribly, and the number of victims may be greatly reduced by research into superior protocols and enforcement in their implementation.

Secondly, standard testing for C. Diff. is inadequate. Superior, more accurate tests with the ability to detect not only the toxins C. Diff produces but also the strain of bacteria present do exist, but are not regularly used due to higher cost. Tracking the various C. Diff. strains, including the “Super-strain” I suspect I had, is essential to understanding the infection and the protocol that needs to be followed for effective treatment and the prevention of others from becoming infected. C. Diff is no longer fatal to only the weak or the elderly, and we need to know why perfectly healthy people are experiencing severe or fatal cases of this disease, as it indicates a change in the biology or dna of the bacteria itself and the possibility for even more virulent strains.

Third, very little is known about the long-term effects of a moderate-to-severe C. Diff. infection. Worldwide, forums exist where C. Diff. survivors electronically congregate in desperation. Some relapse into multiple C. Diff. infections after the initial infection. Others, like myself, experience constant debilitating pain and gastrointestinal malfunction that makes living a normal life impossible. Still others are diagnosed with Post-Infection Irritable Bowel Syndrome that never seems to go away, and others find they develop serious “food intolerance” and the inability to digest gluten, grains, dairy, and/or proteins. Vitamin and mineral deficiencies are common – the intestines seemingly unable to glean these nutrients from food any longer. Colitis and inflammation of the intestine are also common.  And nearly every single survivor will tell you that C. Diff. “gets to your head”: survivors live in constant fear of infecting others, of relapse, and of dying in this truly horrible manner. Many survivors admit to living on Disability or social assistance, or relying on their families to support them as they are unable to work.

Fourth, recent research has linked Clostridia strains with Regressive Autism in children. It is hypothesized that the toxins Clostridia bacteria produce (in the case of C. Diff., called “A” and “B”, but able to be classified as (+) or (-)), which can so easily poison and destroy the intestine, may also act as neurotoxins, transmitted through the body to have an effect upon the brain and brain-development in children, as well as having the ability to effectively “turn on or off” parts of the gene believed to affect or cause Regressive Autism. This hypothesis (and indeed, the link seems to be strongly supported by several studies – see, for example,  studies by Dr. Sydney Finegold, microbiologist, and Dr. Richard Sandler, pediatric gastroenterologist) has far-reaching implications for the so-called “Autism Epidemic” sweeping through developed nations.

For these reasons, I believe Clostridium Difficile (so-named because it was originally difficult to grow in a laboratory setting) is a family of infectious bacteria which requires further intense study, not only of the bacteria itself in laboratory settings, but of the post-infection lives of its survivors. Currently, prevention and post-infection complications are not receiving adequate attention.

My story: I first contracted the infection while spending a lot of time in a hospital with a family member who had been admitted for medical care. I was on a one-week antibiotic treatment for a sinus infection.

Despite my obviously deteriorating health, multiple trips to two doctors and to my local emergency room, it took four months to receive a diagnosis. In the meantime I was told I probably had Chron’s Disease, Colitis, Irritable Bowel Syndrome, allergies, or side-effects of depression, none of which was at all helpful. By the middle of month four, a clever ER doctor had me tested for C. Difficile. I was in very bad shape and extreme pain.  The test came back positive for toxins A and B – toxins the C. Diff bacteria produce in the intestine. The bacteria was poisoning me – and I could definitely feel the effects of it. I had already been given a week’s course of Ciprofloxacin and Metronidazole orally before my diagnosis as an attempt to see if my condition improved, though no infection had yet been detected. Now, I was told by my doctors to start a course of Vancomycin orally. The medication cost $400.00 and was not covered by my prescription plan.

Unfortunately, I was by this time so infected, the tablets would not stay in me. My abdomen was extremely swollen and excruciatingly painful, and most of my digestive system, including my bowel and colon was in constant spasm. I was passing blood and spent most of my time in the bathroom. I could not eat or drink anything except small sips of water. My body was done fighting and could do no more. I no longer slept, and only found a few moments of relief when I was immersed in hot water baths.

One morning, after again failing to keep down the Vancomycin tablets and in an extremely weakened state, I was taken back to the hospital. I was unable to walk from the vehicle and was placed in a wheelchair. I was quickly triaged, and the ER doctor proceeded to report my case to the Infectious Disease department of the Public Health Agency of Canada, and to ask what protocol should be followed.

I was given two or three large bags of fluid intravenously, and was switched to Metronidazole (an antibiotic) to be administered every eight hours on the hour through IV. I was also given a cocktail of medications to alleviate my nausea, vomiting and involuntary muscle spasms through my IV line. I do not know whether there were no isolation rooms available in the hospital (which is the only one in our Territory), or whether I was simply considered too great of an infectious risk (these reasons were intimated to me by staff, in confidence and against hospital policy, I’m sure), but I was not admitted to the hospital despite my dire state. I was told to go home and isolate myself from my family. I was told to take over one of the bathrooms in the house as my own, and that no other family member should enter it or use it. I was also told to stay out of the kitchen, away from other’s food, and that dishes, clothes and linens I used should be washed at high temperatures and with bleach whenever possible. I was told to wash and sanitize my hands as frequently as my skin would allow. Little did I know that C. Diff. forms ultra-resilient spores which can even survive bleach. I was to return to the hospital ER department every eight hours without fail for IV treatment and monitoring of my vital stats and the state of my besieged bowel.

I could not effectively manage the extreme pain I experienced because I could not have strong pain medications – the doctor explained they were very worried about a condition called toxic mega-colon, and that if my bowel burst, I needed to be able to distinguish the different kind of pain so that they would know immediately and be able to act (once a C. Diff. patient’s intestine bursts, there is a very limited time to perform surgery and clean out the abdominal cavity; even then, 1 in 4 do not live). It was clear to my family and I that I was in very serious condition, and may possibly lose part of my intestine, colon, or even my life to this infection.

The IV sites started in my hands and wrists, and as my veins blew out or swelled shut from the extremely caustic nature of the medications they needed to carry, the needles were inserted farther and farther up my arms. Kindly nurses joked with me about my resemblance to a pincushion, especially when they had to search for veins from which to draw blood samples. I grew used to the bite of the needle, as a site would fail after only one or two treatments. The lines were flushed and sealed off so they could be left in for the next treatment. I knew the drugs were doing both good and harm, as they burned in a slow crawl up my arm through my veins. I did not know that prolonged use of Metronidazole has been proven to cause cancer in humans. Each treatment of medication and litres of life-sustaining fluids took anywhere from an hour to three hours. I could barely stand clothes, so I went from my bed (or the bathroom in which I was forced to take up residence) to the hospital in my pajamas, swaddled in blankets. I was told that if my doctors had known how long I would need to be on the IV administered medications, they would have put in a picc line.

During the time the infection raged its worst, death was constantly on my mind. I had no fight left, mentally, and my body seemed to be failing too. I was suffering so much, I discovered I would be content with death. Eventually, after about eight days of no food and very little water taken orally, my digestive system went completely quiet. My whole body seemed quiet, and my mind followed. I existed moment-to-moment and found conversation difficult. Mostly, I slept, wondering as I drifted off if I would wake up again. C. Diff. had gotten to my head.

I did wake again. After 48 days of IV administered medication (3 times per day), 9  drugs, and almost 30 IV sites, my body was winning. I had lost a good deal of weight and was weak and in pain, but I was still standing. I was instructed to take probiotics, starting small and working my way up to high doses, and to eat bland foods in small portions until my stomach and intestines healed. They never really did.

A year-and-a-half later, I am in cold-sweat-inducing gut pain, even as I write this. My body does not tolerate food. I have tried the BRAT diet, the allergy-finding elimination diet, IBS-friendly diets and many others, and most currently, the Paleo (grain-free, sugar-free, potato-free, and mostly-dairy-free) diet. No matter what, when, or how much I eat – or how I attempt to prepare it – it all goes wrong from the start of digestion to the finish. I still have a very swollen and distended abdomen. Some times the swelling goes down at night; some times it doesn’t. I wear a strong, constrictive, even-pressure girdle to try to minimize the swelling so I don’t look several months pregnant. It causes discomfort, but I am just as uncomfortable without it. My colon still has prolonged spasms at the least digestive disturbance, and on spasm days, I can only bear to sit on a donut-pillow; even then, I must spend most of my time lying on my side.  I routinely test as deficient in vitamin B-12, and take it through self-administered shots two times per week. My red blood cells are too small in size, though I am not iron-deficient. I do not sleep well and cannot get enough exercise to suit me due to the pain. I spend a lot of money on prescription pain-killers, anti-reflux pills, and anti-spasmodic drugs, as well as a drug to help me get a little sleep. I struggle with depression and anxiety, and take medications for those too. I must also buy expensive probiotic supplements that seem to make little difference, but which are currently thought to be the first line of defense against C. Diff. relapses, and which I keep hoping will work. And when I get a sinus or lung infection, I have to run the mental gamut of trying to decide whether to take my life in my hands and take antibiotics – risking a C. Diff. relapse (I have already had one relapse, which increases my chances of another) – or to allow the infection to do potentially serious damage from it’s being long and drawn-out without treatment.

After my initial “recovery” and a colonoscopy result declaring that my intestine was still very irritated, but seemingly clear of visible patches of C. Diff. infection, I found work as a casual employee at a bank. I tried to tough it out and work through my pain, but my condition has only worsened. My doctor does not have any answers for me. I am currently unable to work, and the thesis paper I have been working on in order to receive my Master of Arts degree is at a halt.

Recently, after an early December major-surgery to remodel my sinuses in order to treat chronic sinus infections, I had to face taking antibiotics to fight the sinus infection that developed into a serious condition several days after the initial surgery. I was so scared, and still am. I watch daily for any sign that I may be relapsing, and am consuming probiotics like crazy.

Despite my current circumstances, I am lucky. I am alive, I have a roof over my head, a loving family, and the Canadian health-care system to pay for visits to the doctor and hospital. I am still in possession of all the intestine I was born with, as well as my colon. I also have a loyal canine companion to keep me company when I am bed-ridden. Many are not so fortunate.

There are thousands of other stories like mine. Many survivors’ stories are much worse: they write of the financial, physical and social hardship of surgically removed colons or portions of intestine, or the after-effects of a burst intestine or sepsis. Still other stories are written by family members who had to witness the truly gruesome and horrible death of a loved one due to C. Diff.

It’s time something changed.

I have been doing my best to bring this relatively unnoticed disease out of its obscurity, and to alert others that it is not merely a nursing-home menace. I have been trying to impress upon those officials and politicians who are responsible for the state of “Canada’s health”, if you will, that much more can (and should) be done to prevent future infections and that the increasingly resilient and virulent strains of C. Diff. circulating throughout our population need to be tracked and considered as dangerous, and capable of creating epidemic situations.

For a more scientific (and graphic) explanation of C. Diff., see this Wikipedia article:

234 thoughts on “My C. Diff. Story

  1. I am also a C diff survivor. I know what you mean to be scared to death every day that this doesn’t come back. They came to my wife while I was in the hospital. The doctors asked her if she wanted to see a priest. I went into toxic shock and convulsions and hot and cold sweats. I came that close to dying. I am lucky to be writing this to you. I still have stomach problems. And every time I get the trots, I fear that I have C diff again. Just hoping every day that my stool is good and I make it through another day. This was 8 months ago. I still have stomach cramps and gas problems. I am just trying to get through each day at a time. I don’t drink or smoke. I quit smoking and was told ,that was a plus toward my recovery.

    1. Hi Michael,
      Sorry to hear of your battle with C. Diff – it is tremendously difficult to shake the fear afterwards. I really do think it makes the list of the top 100 worst illnesses to get – and that’s saying something. It doesn’t surprise me that you still have stomach problems – I’ve read many a message board and that seems to be the case with most of us who have had a severe bout of it, or a difficult drug-resistent strain. We seem to be very prone to gastrointestinal problems like acid reflux, colitis, Chron’s, Post Infection IBS, troublesome scar tissue, megacolon, stomach, intestine, or colon cancer, etc. I’m two years out now, and aside from the initial relapses, the C. Diff. itself hasn’t come back. But the massive doses of drugs the docs would have pumped into your system (I’m assuming Metro or more probably Vanco?) will have lasting effects of their own. You (as well as other C. Diff. survivors reading this post) will need to detox, and you’ve taken the first biggest steps by not drinking or smoking. Whatever you do, don’t try one of those fad detox diets plans: your gut flora is extremely sensitive and the C. Diff. is most likely still present in your system – you don’t want to upset the balance that is keeping it in check and risk relapse. Sometimes drastic diet changes, even short-term, can do that. The best ways are often the old, tried and true ways – plenty of water and antioxidants in your diet (including tea) and good, healthy, unprocessed food. I’ve found that my stomach pain does best on a paleo/Chron’s diet (which suggests I may have Chron’s Disease in the small intestine – going to see a radiology specialist soon to try to get a definitive answer). Your stomach cramps and gas may be helped a great deal by eating mostly pale meats – pork, poultry and fish – rather than red meats. Also, try not to eat your fruits and veggies raw (this is an especially hard one for me, since I prefer all my fruit and veg raw). Cook them until al dente or soft and you’ll elimimate a lot potential for stomach upset and gas. Steaming them is best, as they retain their vitamins and minerals that way – I’m investing in a good electric, multi-tier steamer. Apples, pears, peaches and oranges can actually be quite nice this way, especially if you lightly drizzle them with honey and cinnamon afterwards and eat them warm. And whatever you do, stay away from beans, lentils, corn, and cruciferous veg like broccoli, cauliflower, and cabbage. For me, these cause an outright digestive revolt. Hope some of these suggestions help you – I had to do a lot of searching for simple solutions like these and have discovered them mostly through trial and error (the corn was a really, really, big error!). One last thing, which I will also post as a feature on my main update page: you may want to have a good look at the IBD sgi Diagnositc test from Prometheus labs (or see if they have a similar lab near you). I plan to take this diagnostic test and have very high hopes for some answers at last. I hope you’re doing well – please check back in periodically and let us know how you’re doing – the more we can talk about this and compare war stories, the better we’ll be able to deal with the troubling aftermath. All the best – LP

      1. Thanks. I have just been given news I have c diff. Going for X-rays today. Yesterday I felt I was in labour trying to pass bowel stuff. My ct scan showed nothing a few weeks ago. I am a healthy 30 year old woman–hard to believe it has hit me so bad. Thanks for your post I needed to read this. I’m alsoin Canada, so this post really pertains to my situation. Thanks again.

        1. Hang in there, Jenn. The labour comparison is pretty close, actually. There have been times when I’ve been actually yelling in the bathroom, the pain was so bad. I always feel embarassed, but sometimes the pain is so severe I just can’t keep quiet. Since you’re in Canada, remember that you can always go in to an ER and ask for IV fluids. C Diff dehydrates you like nothing else, and the plain, non-medicated IV fluids can really help your system to fight the C Diff and pain better, and it actually provided pain relief for me. It seemed as if once my body was properly hydrated, it would quit having such a tantrum for a little while, and my muscles were able to relax more and spasm less. All you have to do is walk in to an ER, tell them you have C Diff and that you feel really dehydrated and want IV fluids but no meds. They’ll usually get right on it, since it’s a simple treatment and since C Diff-related dehydration is common knowledge. Just something to keep in mind. Wishing you th best!

        2. Hello. I feel amazed that I have found this blog and that all of you are so very strong. I was diagnosed with C-Diff in October 2013, although I had the belly bloating/labour-like pains when passing stools, screaming from it on the floor for 3 years and no doctor ever looked into it. Right now, I still have C-Diff. The first treatment was Cipro (oral). In late November, I still had it, was tested positive for it, and was given Vancomycin as treatment. That treatment also failed. I did a second treatment with Vancomycin…another fail. In order to be able to eat, I have to take 3 Imodium and wait an hour, then I can eat food. As soon as the Imodium leaves my system and the intestines and my stomach begin to make all sorts of noises, I know I can’t eat. Just sips of camomile tea. So I have to use Imodium and I have likely spent over $1000.00 on Imodium. I had a colonoscopy and Endoscopy during my first C-Diff at the hospital and the Gastroenterologist gave me Metoclopramide for nausea (which does not work), Pantoprazole (which only appears to make my stomach and intestines very noisy) and Protylol for the painful spasms. Unfortunately the protylol is not strong enough. When hospitalized for the umpteenth time, I was given morphine injections for the pain and THAT worked. But it has been hell getting into the hospitals here because I am in Montreal and the average wait-times for the 3 nearest hospitals are between 12-24 hours…sometimes longer. I no longer know what to do. No treatments have worked. My stools are still the consistency of C-Diff stools: jelly-like, bits of black (could be blood), a greasy look on the toilet water and the distinct C-Diff smell.

          My health is not good. I have very low Cortisol (Addison’s disease), no nutrients are being absorbed by my intestines, I have depression, I rarely go out (have to hide my “pregnant look”. I feel trapped in the Quebec Healthcare system which is not like the rest of Canada. In Vancouver, the longest I ever waited in ER was 11 hours, and that was VERY rare. Normally at Vancouver General, it would be 2-4 hours, or less. Here? 10 hours, 17 hours, 12 hours…and no nurse in Quebec can do ANYTHING until a doctor has seen you as they only have diplomas, not degrees as nurses do in BC. So no pain relief, so IV fluids…NOTHING until a doctor is available. And after 5pm, there is only 1 ER doctor. So not only am I trapped at home, I am trapped by the system. I owe over $1000.00 in ambulance bills which I cannot afford to pay. I used to work for Air Canada and the Vancouver 2010 Olympics before being sick took over. I honestly no longer know what to do. I’m so sick…and trapped.

      2. Hi there,
        I came across this article as I was doing a search on how common C- Diff is. I just lost my mother to c-diff on 07/06/2013. She was placed in Rehab on 05/26 and 3 weeks later rushed to the ER and placed in the ICU. Her kidneys shut down, she was a multiple anticbotics, a vent, went thru diaylsis, and after 9 days in the ICU she was placed in a regular room at the hosptial. She was in that room for a hour and had a heart attack and they lost her. They did CPR on her for 20 mins to bring her back. She was placed back in ICU on a vent. They told us she would need a trach, feeding tube, 24/7 rehab care and diaylisis 3 times a week for the rest of her life. Mom did not want to have to go thru all that and wanted us to take her off the vent. She passed the next day. What a struggle i deal with. I blame the rehab place but I am so lost and confused over the situation. All I can do is cry and hate everything around me. I hope I will be able to come to grips with this sooner then later.

        1. Sorry to hear this…I’m going thru this with my 91 yr old mother as I write this. It’s been a long two week for our family. I hope things get better

        2. Sorry to hear about your mum. I lost my mum on 22nd May 2013 with c.diff colitis contracted in hospital. She suffered kidney failure, lung failure and finally died of heart failure when they took her down for surgery to remove her bowel. Doctor told me they tried for over 10 mins to revive her but it was futile. She was a very fit 77 year old who had no medical history prior to 1st April 2013 when she was admitted to hospital as a Type 1 Diabetic. She made a remarkable recovery from diabetic ketoacidosis and her doctor told her she was very lucky to still be here. Whilst recovering from this she contracted pneumonia and treated with broad spectrum antibiotics which she recovered from only to be struck down with c.diff. Again treated with antibiotics and discharged home after five and a half weeks in hospital recovering from all three conditions. We had her home for five days and thinking she’d been really lucky. C.diff reoccurred and she was re-admitted to hospital, she died after 4 days. Her last 4 days on earth I wouldn’t wish on anyone and I can’t believe that going into hospital can kill you rather than save you. It makes it so much harder to come to terms with. Attitudes need to change towards this terrible disease, it’s not acceptable to contract hospital acquired infections and die. Apparently bleach will kill c.diff spores. So if a bottle of bleach only costs a £1 in UK why are people dying???

        3. So sorry to hear stories like yours. There are so many – it’s completely unacceptable. According to the research I’ve done, C.Diff bacteria can be killed with bleach, but the spores can survive after being bleached. It’s a result of “super-strains” of C.Diff becoming toughened in hospital settings, resulting in resistance to cleaning products. Hospitals need to institute much more rigorous cleaning and infectious disease policies, and much more serious consequences for hospital staff who do not conform to these policies. Part of the problem is that hospital staff sometimes get too busy and fail to observe proper non-contamination techniques in dealing with C.Diff. A nurse will walk from a C.Diff patient’s room (where, for example, the bed-table or floor may be contaminated) and be too hurried to change gloves or walk on a shoe-sanitizing mat before going into the next patient’s room, where they may touch the patient, door handles, the bed-table, etc., and transmit the bacteria to the uninfected patient. I’ve actually seen this happen – on multiple occasions. I’ve also seen cleaning staff use a cleaning cloth and bucket of cleaning solution to clean a hospital bay’s sink, counter, and toilet, and then go on to use the same cloth and bucket of solution to clean the adjoining bay. So the cloth that touched the toilet and possibly C.Diff bacteria, is being used again on well-handled surfaces such as the counter and sink handles. This is how people can die from going to the hospital. And this is probably precisely how and why I contracted C.Diff at my hospital. So scary!

          Keep strong. And keep telling your stories – to anyone who will listen. Educating the public can make a difference.

          With deepest sympathies

        1. Drugs don’t cure it!! You need a Fecal transplant from a healthy donor. There is a 90% cure rate on the first transplant and 98% on the second if it doesn’t take the first time. Go to the power of poop web site!!

      3. I really help dianose with c diff pain right side swollen stomach and then flagl then vanco for two months no change only good days sometimes. The doc said just keep takeing antibiotic pain Meds brat diet and that is all then she said she refer me to a GI doctor and change it today to a ID Doctor mine was cause by a antiobiotic anyways all I get is keep taken Vaco

      4. I just found out I had cdiff they told me absolutely nothing as far as what to do as far as keeping it away from the people in my home . do I need to wash my clothes a certain way original disinfect everything I touch I know absolutely nothing and can find nothing online someone please help

      1. Hi. I’m not living in Canada but the U.S.A. And finally qualified for gov. Healthcare after many failed attempts. I am over $47,000.00 in debt curtesy of almost two years of recurrent c.diff. My life has been destroyed. I can no longer get X-rays and almost died from Flagyl due to allergic reaction. I was a part of a medical study for a new antibiotic that didn’t work but that the free clinic GI doctor kept prescribing in addition to 17 courses of Vancomycn mixed into liquid (to try to save thousands of dollars) and taken from 3-8 times per day. When the experimental drug didn’t work, the med manufacturer told me that they had. to had anyone in the study as long as me. So, I didn’t take the med and guess what? My sample was negative for Cdiff. But of course it came back just like always. So them the GI doc told me to lie and tell the med makers that I needed another 10 days so that I could double up on the drug by taking the ones I lied about taking as well as the new batch. The company will only distribute them every 41 days for the uninsured. Guess what??? I still have Cdiff. I’m going for the fecal transplant on the 11th. Just days away. But I know that my organs have been compromised and I have to take antibiotics to get even a teeth cleaning due to my two heart conditions. So the fear is always there. I couldn’t do the transplant without insurance and I don’t have a donor that Isaac family member in addition to the length of time I have had it. My odds are. It too great. There also was not a doctor in my town that does fecal transplants until a few months ago. I’m not sure how this is going to go but I’m told if I still have symptoms in a week then I most likely still have Cdiff. I often think of the chatty nurses who laughed off the plastic gowns and masks and gloves ignored the caution signs on my hospital room door. Was that how I got Cdiff? Did I spread it to other patients?? Or was it the clindimycin my dentist had me take for my dental cleaning a long time ago?? Hard to say. I didn’t even know alcohol didn’t kill it until a few months ago and that it can live on fabrics! Ugh!! I really wish I would have known this blog was here all along but I’ve not been blogging since I finished my last degree in 2012. Thank you ALL and wish me luck!

        1. I was diagnosed with c diff March 3, 2014. It hit me like a ton of bricks while I was in the grocery store. The diarrhea did not hit until the next day but I had to leave without completing my shopping. I could not explain exactly how I felt but I knew I had never felt so awful. I came home and went to bed. The next day I was running to the bathroom with yellow/orange mucus diarrhea, pain and fever not like anything I ever had before. I went to the ER and they saw on my record that I was in the ER on Jan 12th with a cellulitis on my forehead. I was given Clindamycin!  THEY KNEW immediately and gave me a ct scan and stool sample testing for C diff.  I did not throw up, I was not dehydrated so they let me go home taking Flagyl and Cipro. I did have a bag of iv fluids while I was there. I caught this pretty quickly and I hope that will make a difference and it won’t reoccur but I still am not feeling great.  I am 70 yrs old and I am a full time teacher. I missed over 2 weeks of school and could not go back until I tested C diff free. The diarrhea was gone, tested negative for c diff and felt just as bad as I did the first day. Again, hard to describe, Extreme Fatigue, and very weak. So when I told the dr. he said that I had a very severe infection and it was going to take a long time to get over it.  I started reading c diff victims stories for hours and found out that c diff can be caused by several antibiotics but… Clindamycin seems to be the worst. Also, I found out that even though my dr. told me a couple of yogurts a day was plenty, that I believe, is not the case. I read several people felt better after taking Saccharomyces Boulardii by Floraster.   My pharmacist gave me a probiotic and then I found the Saccharomyces Boulardii and on the second day I did feel better!  I am still not 100% but there is a light at the end of the tunnel. I do know it can come back at anytime ,but I can’t understand why doctors are still prescribing CLINDAMYCIN!  Also, why didn’t they tell me to take a  probiotic????  I did not know what a probiotic was.   I found the paper work with the precautions from the drug store that filled the Clindamycin prescription. Two pages of side effects and said…may cause dangerous infection c diff. Oh well, I guess they covered their ass. Should say “Often causes dangerous infection c diff” I have told everyone I can to stay far away from CLINDAMYCIN.                  

        2. I was diagnosed with c diff March 3, 2014. It hit me like a ton of bricks while I was in the grocery store. The diarrhea did not hit until the next day but I had to leave without completing my shopping. I could not explain exactly how I felt but I knew I had never felt so awful. I came home and went to bed. The next day I was running to the bathroom with yellow/orange mucus diarrhea, pain and fever not like anything I ever had before. I went to the ER and they saw on my record that I was in the ER on Jan 12th with a cellulitis on my forehead. I was given Clindamycin!  THEY KNEW immediately and gave me a ct scan and stool sample testing for C diff.  I did not throw up, I was not dehydrated so they let me go home taking Flagyl and Cipro. I did have a bag of iv fluids while I was there. I caught this pretty quickly and I hope that will make a difference and it won’t reoccur but I still am not feeling great.  I am 70 yrs old and I am a full time teacher. I missed over 2 weeks of school and could not go back until I tested C diff free. The diarrhea was gone, tested negative for c diff and felt just as bad as I did the first day. Again, hard to describe, Extreme Fatigue, and very weak. So when I told the dr. he said that I had a very severe infection and it was going to take a long time to get over it.  I started reading c diff victims stories for hours and found out that c diff can be caused by several antibiotics but… Clindamycin seems to be the worst. Also, I found out that even though my dr. told me a couple of yogurt

        3. I been dianose with c diff they have not told me much learning here been to have ivs o2 loe tempt low and cant eat nothing drug me up and gave second anti vanco pills for this and that they say there no more they can do scared for my family scared for me just scared

    2. MICROBACTERIAL TRANSPLANT saved my life! Everyone on this blog, please, please, please hear me. I am now 43 years old and cdiff stole everything from me. I went from weighing 135 pounds and running marathons, training for a triathlon to not being able to make it to the mailbox. I’d go on a dose of vancomycin (nothing else worked) and get relief, then it would return with more aggressiveness. As a middle school teacher, I had to eventually go on disability. Those of you reading this know that non-cdiff people do NOT understand what they cannot SEE. Rumors abound as the weight and mind go. Additionally, know that when you are on one of the drugs, you will test NEgative for Cdiff when you are still PosiTive. I refused to give up, and with the help of my patient loving husband and familial support, got to Dr. LAWRENCE BRANDT. Find him on youtube. He is a rockstar for us. Microbacterial transplant-fecal transplant-saved my life. I am off disability and teaching fulltime. This is year 2. Last year my husband had to drive me to work. ALl I could do was work and sleep. So yes, there is a new normal. I am still getting there. There are all sorts of other complications they do NOt tell you—NERVE DAMAGE from VAncomycin, headaches, memory loss, migraines, convergence, balance…do not stop fighting. I refuse to stop. I got cdiff because an endontist screwed up and even told me she knew she had ruined my life—yes—I was handing HER the tissues in HEr office! Yes, she had patients under anasthesia. Oh—because I kept testing negative due to the vancomycin, I had a doctor at UNCCH tell me it was in my head. HE literally laughed at me. In those years, I was thought to be too young to get it. An OB/GYN originally diagnosed me–after they said it was ovarian cancer—he said, no cdiff. I was dying from pain–you cdiff people know what I mean.—-Anyway, Two years in May–and I am at a constant 100-103 pounds. I can drive again in addition to teaching. The nerve damage has impacted my thinking, migraines, reading, etc. I have learned to get over what others may think—never never never never give up. Go to Lawrence Brandt–The scoop on therapeutic poop—I BEGGED for a microbacterial transplant. It took blessed family help/connections, 19,000, and a trip to NY to the Albert Einstein Hospital to get healed. Brandt is the REAL DEAL. I have been through it all. I still seek further healing. Screw the people that say we should be fine now–they do not understand the acronym-fucked up insane neurotic and exhausted. Never never never give up. There is a simple solution that the pharmaceutical companies do not benefit from the FECAL TRANSPLANT. as a writer, I would love to pull together our stories and get them out there as a compilation. If you are reading this and interested, please respond.

      1. I am currently battling cdiff but compared to other stories I have read feel I have been lucky that it was caught so soon. However, I have been on 21 days of vancomycin then symptoms returned twice what they were, and now on flagyl. I see a gi Dr this week for follow up from my hospital stay, but literally feel as if I’m dying. They mentioned the fecal transplant to me briefly, but not as an option…said perhaps if the flagyl is unsuccessful. I have migraines daily now, which the er Dr just associated with dehydration, but I disagree…but you can’t fight the Dr. I am in the U.S., already on disability, and only 36 years old. They won’t keep me in the hospital, where I’d prefer to stay, because I have only a 1 bath home. I am so glad my boyfriend found me this site,I had nobody to relate to

        1. I was diagnosed with cdiff last week after 2 weeks diarrhea and I am still on Metronazole. Since you have an adorable dog pictured,I was wondering if your dog or other’s dog parents’s dog, contracted cdiff? From my limited research, dogs do not commonly get cdiff. My doctor contributed my cdiff to visiting client’s in jail.

        2. So many terrible stories. Bless you all. After many, many months of pain, terror, exhaustion, diahorria, constipation and vile medication…. I paid a lot of money to have private treatment. Sad to say that even though health care is free here, the waiting list is endless. The results of stool sample and colonoscopy came back as clear of c.difficile. I am still in constant pain, afraid to leave my home for fear of bowel aaccidents. I am an elderly lady and feel that there is more help for younger people. Albeit very little. There seems to be nowhere now for me to turn for help. No quality left to my life. My heart goes out to all of you fighting this terrible disease.

      2. I too had cdiff. In 2012 after weeks of symptoms a stool sample confirmed it. My story is long and like everyone else’s. I spent the next year drinking Vanco four times a day, hospitalized four times, referred first to infectious Diseases being Kaisers, youngest, most severe cdiff patient in the San Francisco Bay Area, finally I was referred out of the Kaiser Permenente loop to a private doctor, one of only a few doing fecal transplants. I knew it worked 18 hours after having it. My head began clearing. Hope sprung. I suffered crazy symptoms for 4-6 weeks as my body learned to absorb food again. However, I still fear. I still have chronic bloating, pain and when “inflamed” explosive BM’s, multiple times per day, with the constant urge to go as well as pressure on my bladder. But, I now test negative. It still interferes with life. Stress aggravates my stomach and guts. Wondered if anyone’s experienced any of the same post FT. Thanks for your blog

      3. My 73 yr old mom is battling a very resistant strain of c. Diff. I have been asking about fecal transplants for the past 2 weeks. They are finally preparing to do it…..and I hope mom can hold out enough to get the treatment. This has been a horrible 35 days…..

    3. just wondering how did you get the help I have apple health and been dianose after 5 years of agony got a antibiotic that gave me dianose of c diff swollen stomach pain and the runs second anibiotic nowanyways went to ehad two IVs and pain on right side all the time where tha plz helpy given drug to knocks me out and they told me to take the antibioctic, where do you go to get the help because o2 was low and heart rate high dizzy light head pain

    4. there is something new that makes people vulnerable to this infection when treated with strong antibiotics. Its a genetic mutation known as the MTHFR gene mutation if you have ever had an occurrence of C diff… get tested… I had C diff and had deteriorating health for a long time after. It was 14 years after the C diff I was diagnosed with the mutation.

    5. I had c diff as a teen, and it was horrible. I was sick for well over a month but had no clue, until one day I blacked out, my mom called and I didn’t even hear the phone and she called twenty times. She said I finally answered which I don’t remember and told her something was very wrong. I was put on three antibiotics in a short amount of time for a staph infection and then for me getting my wisdom teeth out and right after I got my wisdom teeth out the antibiotics cause me to lose the good bacteria in my stomach as well, which caused the c diff, and ultimately caused me to stop eating or drinking for days bc I just slept (before the incident where my mom called me). So my mom called me that day and rushed me to the doctor who couldn’t even get blood bc I was so malnourished and dehydrated that they couldn’t get a vein. I was rushed to the emergency room, where a doctor had seen this before and they diagnosed me after three days, and I was in the ICU for a week, and in hospital for four weeks. They told me had I not come in that day I would have went to sleep and just died bc my body was so over run with bacteria, and I was going in shock and I was so sick. My poo didn’t even look like poo anymore. It was bloody, white, sticky looking, and had a foul smell unlike anything else. I was so embarrassed bc I had to wear adult diapers bc I was so weak and in and out of consciousness. They told me I was lucky but I didn’t feel like it at the time, I was incredibly fatigued, and felt like I just wanted to give up, I was in excruciating pain, was probed constantly with needles bc my veins blew out (I looked like a junkie), was given so many fluids I lost count how many bags there were, was scared shitless bc in a moment of consciousness I heard the doctor tell my mom to prepare for the worst that I may not make it, and didn’t see a light at the end of the tunnel. They again out me on a certain medication like they did with you and I eventually got better,,but they also put me on probiotics. My Immune system has forever been changed and is much less strong so I get sick easily, but am not supposed to have many antibiotics bc I can get c diff again. Needless to say be very safe with your antibiotics. Had my dentist checked to see which antibiotics I had previously been on two months prior, I never would have been sick, and wouldn’t still be suffering bc of it. My immune system will always be low now, and I have to still take probiotics. My bowels are not regular, I am either constipated for three to four weeks, or have diarrhea for days straight. I constantly get sick and just bare through it to not have to take antibiotics, which pisses my mom off bc she doesn’t understand the intense fear I have or getting sick again. I am suffering from depression and anxiety bc I feel like I live on edge of always being scared of getting sick. I hate it. Worst thing to ever happen and I wouldn’t wish this on anyone ever.

    6. Why have you not had a stool transplant? My daughter had cdiff 4 times and finally had a stool transplant. She was 17 when she got it. The ST worked so far 1 year.


  2. I have suffered from C-diff since last March…going on 6 months; 6 visits to the hospital and continual use of vancomycin and florastor. I have an ID doctor who is very well respected and now I need to see a urologist. I developed and infected right kidney with a stone passing and this caused severe infection (septic) that entered into my bloodstream. This appears more common with females due to our anatomical parts and the proximity to the uretha and constant diarhea…frankly, I am scared out of my wits. I have been a healthy and functioning pilates instructor for 9 yrs. now and the cause of this disease is a result of chronic sinisitis and overuse of antibiotics and prednisone, without the use of probiotics. This last stay in the hospital with the blood infection was so painful that my husband was screaming for someone to give me some relief. I did go on Omnicef for 12 days to cure the kidney infection. I return for a CAT scan tomorrow to see how the kidney is healing. My dilemna lies in the fact that I am to return to work mid-October and the spa that I work in has carpet that is mold-infested…….the walls have mold….It’s south Florida…it’s everywhere except in my home. I am hesitant to return due to the fact that I foresee another round of sinus infections and antibiotics are no longer an option. Money is great but health is everything. In addition, my spouse and I plan to travel to London mid-Sept. for 3 weeks to visit my sister that resides there and a few trips in between….If my kidney is healed then I am going with a secure dose of Vancomycin and lots of prayers…..I take prozac for middle age menopause relief ( I am 54) and they will give me xanax to calm my nerves. I will not take any sleep aids (unisom if really necessary)….don’t drink or smoke. Just wanted to share my story.

    1. Sorry to hear about your story. You are not alone. I spent 2003 thru 2004 sick with a c-Diff infection. Antibiotics ended up clearing it up. Only to come down with the worst IBS, Chronic fatigue, and neurological symptoms I could imagine. Of course I fell down the rabbit hole that is mold and just thought I was going crazy. I am on my road to recovery but have probably been sick since 2003. I cured myself of the majority of my symptoms, including debilitating IBS, but am left with a deep infection within my frontal sinuses.

      I love the authors post, she is absolutely right about clostridia toxins leading to autism. The bacteria/mold toxins bind to toll like receptors on the immune system. This leads to an innate inflammatory immune response. Recent testing out of Texas Tech University (Dr. David Strauss) with enzyme linked immunoassays (Elisa) is confirming what has been suspected, that mold toxins are actually circulating in the body of sick people who claim to be getting ill due to mold. You are absolutely getting sinus infections from the molding building (my ENT confirms that what I am saying is correct) and must have the building remediated or you must get out of the situation at all cost.

      You can follow Dr. Ritchie Shoemaker’s protocol for mold. I recommend using a high end air filter like IQAir for home and work. I also use sinus irrigation with dilute H2O2 and xylitol to treat for the sinusitis.

      As for the IBS, it is suspected that it is due to residual C-Diff toxin circulating in the body triggering the receptors, causing inflammation. It is recommended that one takes a toxin binder like cholestyramine or activated charcoal. However, if you still have an infection, you must treat that as well.

      Anyways, I have been through hell and back, and all I can tell you is to hang in there for what is going to be a long ride. Hopefully this is helpful. Feel free to contact me if you have questions.

  3. Hi Everyone with the little nasty poop bug called C-diff 🙂 I’d love to share my story, and maybe help someone along the way that just got this and is very afraid..
    I moved to America in 2009, I married the love of my life and was living the dream 🙂 In February of 2010 I got a throat infection and got prescribed Clindomycin.. 6 weeks after I finished my curse I started to get severe diarrhea.. So I went back to the doctor, they did a stool test and yes I had c-diff, and had no idea what that was.. So he prescribed me Flagyl, which did NOT work at all…., i got really sick, shaking, nausea, and I could not even keep a mouth full of water down, so after passing out on the floor it was Ambulance to the ER where they pumped me full of fluids.. And let me tell you, i have suffered from panic attacks all my life, and i was so so afraid that this was it I was DYING..So I finally went to an ID doctor, and he gave me Vancomycin, I immediately started to feel better.. But every time I stopped the Vanco, the c-diff came right back.. It’s now been 3 years! And I’m praying that this hell might just be over, if I do recur I will have what they call a stool transplant..
    I’m 33 years old, and i am not that afraid anymore, what ever happens will happen, and I have surrendered to that I can not control everything.
    My doctor says that it is NOT fatal, if you don’t have any other underlying problems, or are old and weak. So just keep your chin up and I know you’ll beat this.. I strongly believe that positive thinking and having strong belief that you WILL get better has a big influence on your recovery 🙂 If I did it for 3 years, and I am still here, it can’t be so bad 😉

    Good Luck and hope for GREAT poopos ❤

    // Anna

    1. Thank you for your story. 3 years is a long time. I am also 33 and have finished my 3rd treatment (Vancomycin) but still have C-Diff. I also have a compromised immune system (weak) due to other illnesses and this could be why C-Diff is still around. When the doctor told me I had C-Diff, I had NO idea what it was…and no idea where I contracted it. They kept asking me if I had been taking antibiotics, which I do…I take a small dose of Nitrofurantoin every night due to having a “neurogenic bladder” and have to use catheters at home to pee. Because of my bladder and the catheters, I would get UTI’s many times a year. Since using the NitroFurantoin, they have gone down but I still get some. So, do I stop that antibiotic which, according to my gastroenterologist, could be causing C-Diff? How the hell do I get rid of this C-Diff? 3 failed treatments. I’m at the end of my rope. 😦

      1. Ask your doctor to prescribe Difficid it’s the newest medication for C-Diff…it’s the only med that finally worked for me.

      2. I just 3 months ago been dianose with c diff but they did not tell me anything except tell me to take flagl untill way later a doctor told me people die from it if not treated so now been on vanco for two months and its never gone away tomorrow I see a infectious diease doctor hope thats the right one and help me with the pain agany sickness that I had three ivs and lots of doc visit just to be told keep taking vanco

    2. For heavens sake do a fecal transplant! I was diagnosed the end of December 2014 and I was put on 10 days of Vancomycin one after the other. Every time I finished the diarrhea would come back worse. I found a web site called the power of poop and learned how to do a home enema myself. Using my healthy 10 year old grandsons feces I have cured myself. I have to eat very carefully now as the new microbes grow but I feel great and my bowel movements are normal. No grains, sugar or dairy for me as they feed the bad bacteria.

  4. My husband has C>Diff also spend 10 days in hospital and is at home now he has a heart and lung condition the nurses said he was very lucky to be alive. He is still so week and some days wants to give up. It is hard to help him and know what to feed him. Some of your comments have been helpful with diet. We had an awful experience in hospital he wasn’t cleaned up.

  5. Thanks so much for the information. I too am a c-diff sufferer and so discouraged because my MD wants rid of me and is sending me to a GI. If my MD would just listen to me and give me Refaximin now at the end of the Vanco, I think it would do the trick. I get the GI appt details tomorrow. Just hope I do not have to wait weeks to get in to the the GI! I have had 2 courses of Flagyl and the 2 weeks of Vanco and am now starting on the taper. Just one day on the taper and I am back to running to the BR 5 times in 3 hours, Plus, I am fully into an acute sinus infection and cannot take antibiotics for that, as that is what got me in this mess in the first place–three full rounds of increasingly strong atbx for a sinus infection and UTI I had at the same time. You are damned if you do and damned if you don’t! I have had serious c-diff now for 2.5 months and from all I read, sadly I am just starting this journey. As my daughter said, “It is enough to make you want to eat poop!” I am hoping if the GI does not help, I can convince someone to give me the stool transplant. Thanks again, all! Praying for all of us to beat this!!

      1. Hang in there Bronwyn. I did get past it, but as you can tell by my posts, it was a long hard battle. I still worry about recurrence. Horrible, nasty stuff. I hope they get the vaccine out soon! Take care. Prayers for you!

      2. Bronnwyn,
        Wow is all that I can say…..I too am a c-diff fighter……but for me I am very thankful to a good friend who is an RN and has become interested in some natural essential oils…….she gave me some when I had been to the er and then sent home after have been given IV fluids and a order of different antibiotics to combat the c-diff……she gave me an oil that is called Digestzen by doTerra …..this stuff really works or at least it did for me…..I put 5 drops on my stomach, 2 drops on the bottom of each foot and one on my tongue……I do not like the taste of it so that is why I put so many drops where I did….it absorbs into your skin within minutes and it works within hours….I used the oil 4 times a day for 5 days and with in the first night it had slowed the bowel movements down enough that I stopped bleeding rectally from all the going to the restroom and it eased the abdominal pains by half that first night, which was such a relief……now what I learned is that you need to drink as much water as you can while using this oil otherwise it can give you flu like symptoms and with the way my gut was feeling that was the last thing I needed……this happened a year ago last november…….since then I have had 4 flare ups and each time I use the oil and within 2-3 days I am back to as normal as I will ever be……I have a bottle of this on hand now at all times because I never want to have it so bad that I am back in the hospital again…….I do not know if this will work for any others but I do know that it worked for me and when the antibiotics did not seem to work or taking all of the different pro-biotics seemed to make no difference I was willing to try just about anything…… I take pro-biotics and watch what I eat and try to keep my gut in a healthy balance but as you are well aware that is a hard thing to do once c-diff has gotten a foot hold …….prayers that for you and all others who suffer from this horrible bacteria…..sheryl

  6. I’m on my third C Diff recurrence. This time I did a lot of research including PubMed etc. And came across a recommendation for inulin which is a prebiotic that feeds all those probiotics we have been faithfully taking. I started taking it right away (1tsp in a glass of water three times a day to start)and really could feel a difference – it seems to soothe my intestines… I am now having soft formed instead of explosive bloody. I Know that’s got to be better. Inulin is sold as Fibersure or Metamucil Clear and Natural. Inulin is also thought to improve the immune system. Fingers crossed.

  7. I am also a sufferer and its great to see I am not alone. I also took months to be diagnosed and after two courses of antibiotics I was prescribed Dificlir which appears to have finally worked. I am likley to have ongoing issues as all suffers have and I find the lack of knowledge the scariest part and constantly washing my hands for fear of other infections.

  8. Great story. I am a fellow C-Diff victim. Had a hysterectomy and within two days I was down. I don’t believe mine was from being on antibiotics as I wasn’t on any at the time. I did however have 4 total bowel clean outs in 4 weeks for various investigations including one for the hysterectomy surgery (possible colon surgery was to be done that day as well, but found not to be appropriate) So I figure I am one of the few who have contracted it due to an empty, good flora depleted colon!
    My story is long and I won’t bore people. The simple fact is; 7 weeks on from hospital stay for 9 days and being in intense pain from surgery then to have rotten C-DIff is not anything I would wish upon my worst enemy. It caused my internal wound to bleed (vaginally) and this was also a worry of infection occurring.
    I already had sensitivities to foods, now discover I have more! Barely able to eat anything without my intestines going into spasms. I am on the 2nd round of 10 days of Vancomycin. I have 3 to 4 days of feeling ok then the fever starts, the misery of over tiredness, the flu like symptoms then the pain then I just want to…well….I would never do anything bad, but this sure does do one’s head in.
    I do wonder what the long term effect is of this disease. I may never be able to have antibiotics again, as I have read in many medical journals, due to relapses.
    I dread when the Vancomycin runs out in 3 days……..

    1. Just an update. Now booked to see the Infectious Diseases Physician next Tuesday (March 26 2013) Fingers crossed something will change for me! They also would like me to be in a research study! Yay, to be able to help others!

      1. Yay Ria!!! I’m so glad you’ve got into an infectious diseases specialist – hope things get better and better for you, and that they learn a lot about C.Diff from your case. Print out all our stories (everyone seems to posts their stories on this page in particular) and take them with you for the researchers – we can’t be part of the research, but maybe our stories can put them on the lookout for the continuing symptoms that plague us years later. Please keep us updated!! Thanks for the post!

      2. After my fecal transplant, that was done outside of, but paid for by Kaiser, they began doing them!

  9. I now have C-diff. for the 6th time and I’m ready to throw in the towel!! I had surgery 7 months ago for a partial small bowel obstruction (Crohn’s) and have suffered since. I had a fecal transplant in December and it didn’t cure the C-diff. I’m on Vancomyacin for 6 weeks now and then my doctor wants to do another fecal transplant. C-diff. ruins your life!!!
    I’m now suffering from chronic headaches and blurry vision, not sure if it is caused by the bacteria or not?? Sometimes I think death would be a welcome relief from this brutal bacteria!!!

    1. I’m so sorry to hear that, Patty. Bravo for keeping up the fight, though! You sound like a strong person 🙂

      Debby – I can’t imagine having C.Diff for the 6th time! The chronic headaches and blurry vision are (in my medically uninformed opinion) probably partly from all the Vanco. That stuff stays in your body for a long time and it acts like a toxin. The C.Diff itself produces toxins (classified as A or B) that act on the brain and entire body as well, and those those could contribute too. Basically, your body is being poisoned from the inside and the outside. I’m not saying to go off the Vanco – it sounds as if you definitely need it – but there are some things you can do to clean your body out. Milk thistle supplements are one good way (ask your doctor and pharmacist if this is safe for you first); another is to sweat via a sauna or hot tub, or even just hot baths often. I also find the heat really helps with the pain.

      You both sound as though you need some “you” time, where you are not doing (or thinking) anything medically-related; just some time to sit quietly, or an activity that makes you feel like “you”. I say this, because I’m always complaining to my family that I “just feel like all I am is a stupid intestine!!!” I don’t feel intelligent, or interesting, or beautiful. I don’t feel connected, or capable, or like I’m contributing, or worthwhile. I just feel like a malfunctioning, gross, icky organ. And while I may feel that way a lot of the time, I know this isn’t true, and I know it isn’t true for you two, either. What helps me to get out of my frustrated, “I-am-an-icky-organ” rut is doing something that makes me feel like a girl – like getting a professional massage (which, by the way, also helps get rid of toxins and relieves pain). Doing something creative helps too (like embroidery, or a craft). I rely a lot on audiobooks from as well, to distract me and take me away to worlds without C.Diff (and since they’re downloadable audiobooks, my eyes don’t hurt). Sometimes I combine all three – like planning my next project while listening to an audiobook while sitting in a hot bath 😉

      Do something just for you that makes you feel really good, and really human. Invest both time and money in this activity to make it special, and something that nurtures you both inside and out. Because at the end of the day, what C.Diff sufferers need the most (besides medical treatment), are support and nurture – to get through all we have to muddle through, and to feel human and whole in ourselves (with or without our colons!). And as humans, we can support and nurture ourselves by ourselves – and this self-support and self-nurture is perhaps the most important thing we can give our struggling bodies and minds.

      I’ll step off my soapbox now – lol – didn’t mean to write a lecture here, but I’ve recently realized I really need to step up and nurture myself more than I have been if I’m going to remain sane (or at least, maintain what little sanity I still have) 🙂 Hope you both heal soon and stay strong Debby and Patty!!!

  10. I just lost my colon due to c diff, after having illiostomy reversal I contacted it and almost died bc of it. Won my battle with cancer had my reversal and bc of c diff lost all anyway.

    1. I’m so sorry. I wonder how you are now. I hope you’ve found d a new better normal than. You’d been living with.

  11. Hello, my name is Karen and I am a 41yr old female. I am just 1 month out of surgery for C-Diff. The hospital believes that I contracted the disease from taking Orthofloxacin. As I research the web, I am more inclined to believe it was a combination of being on Ciprofloxacin and then Orthofloxacin. How did that happen? I will tell you. In early January I went to see my primary doctor and they did a urine culture. It came back as a signs of a urine infection so the doctor prescribed Cipro for 5 days. A week later I was in the ER. During this visit I was informed that my WBC count was elevated enough to admit me and put me on IV Antibiotics. I asked the doctor if she could give me a prescription to take the antibiotic orally since I had a work report to finish by the next morning and she agreed to give me a prescription for Orthofloxacin. Why would this induce C-Diff? In 2011 I had a hysterectomy for Ovarian Cancer. This left my immune system damaged to the point that my vitamin D is only at a level of 12.5. All of my medical history is within the database at the hospital and the ER Dr knew I had been on Cipro the week prior. The doctor also stated that I most likely had a kidney infection. 9 days later my husband had to call an ambulance and rush me to the hospital where it was diagnosed that I had C Diff from taking the Orthofloxacin. The doctor’s told my husband that I had maybe 11 hours to get on the right antibiotic before my organs started to shut down. I wouldn’t have made it through the night if I hadn’t been rushed to the hospital.

    My symptoms were vomiting, stomach cramping, and explosive diarhea. My condition started to deteriorate rapidly at the hospital to the point that it was becoming very hard to breathe. My colon was swelling due to the attack of the C-Diff bacteria. I went to the ER on a Saturday and the following Monday I was rushed in to surgery. The surgery performed was a Diverting Colostomy of the Ileoma. (sp?) I now have a hole in my stomach with my small intestine coming out to a plastic bag that i change once a week and drain several times a day. I am facing a reconstruction surgery in June and am very scared that I will not make it through the surgery. My life has been changed forever. I must say that I had just started to feel normal from the hysterectomy that took out all of my reproductive organs, my cervix and a third of my vaginal canal. The surgery for the C-Diff is the worst experience my body has ever gone through. I am also learning that there is a very high rate for the C-Diff to return. I hope beyond all hope that it isn’t possible in my case as most of my large intestine is gone.

    I welcome any comments. This was very sudden and extremely unexpected. I thank God each day that I am alive and now live day to day hoping that I live to see my geriactric years.

    1. Hi Karen. You are one strong woman! I hope you, and everyone else is doing best they can. This is a horrid disease, made more horrid by the fact it can be prevented. I was in hospital 10 days last month. I have been sick fr months, I went to ER, was released, then back 3 hours later. Had my husband not awakened me, I am not sure I would have lived. Causes for me: Cipro, then colon prep the day I just finished the 7 day cipro for UTI. Never told to take probiotics until after the colonoscopy. Why?? More needs to be done to educate, and insurance should cover probiotics, or Big Pharma should include them w/ every script dispensed. There should be warnings on every antibiotic script. I am on day 2, of round 2 of dificid. I had a severe infection, stopping just short of megacolon, and/or surgery. I am thankful for the doc that changed me from Flagyl to the Dificid on day 2 or 3 during my admission, as I hear it is more effective. I try to stay hopeful and positive, and Karen, your post has helped. You went through so much more than me, and are grateful and happy to be alive. Be well. Live long into your geriatric years:)

  12. This is Karen, again, I forgot to mention that I am going to fight this. I hope to help make people aware of the dangers associated with taking strong antibiotics. If I had known the risks I would not have taken the Cipro or the Orthfloxacin and today would have my large intestine and not a bag hanging off my stomach. Some of the other side effects from the surgery is the inability to stay hydrated and the extreme muscle weakness. It took me two weeks to learn to walk again with a walker. Today I am able to walk without the walker but it is still a struggle each day. If anyone else has contracted C-Diff from these medicines please let me know as I have a class action lawsuit opened and you may be able to join in fighting the poor decision making of doctor’s to hand out the medicines like candy. No person should suffer like this.

    1. Hi. Name is Jane. Cipro (and then colonoscopy prep) opened my gut’s doors for the unwelcomed visitor C Diff. Hospitalized 10 days (1 ER, 9 admit). Flagyl, then Dificid. Just getting that wet gas, gurgling, and beginning of D this evening!! Thus, I am still awake. I pray it is IBS stuff that happens post infection, or the subway sandwich I had (processed chicken breast?Was feeling cured as 10 days off the dificid, this is first non-homecooked meal have had, and will be last for at least for now). I need to work tomorrow!!! I have missed so much work over this (may have started in the Fall 2012 after 2 rounds antibiotics, then onset of D 1/31/13 we thought was food poisoning, but never went away! (I wonder, as did one of my docs, was it smoldering c diff, me fighting it off but then BAM, Cipro, colon prep! C Diff won (briefly, I am determined to beat this crap, pun intended!). FYI…doctor at hospital told me and my fam outright the medical tx caused my c diff (antibiotics, then the colon prep). IF THEY KNOW THIS THEN WHY WAS’NT I PROTECTED!!!!!!!!

      1. Hi, this is Jane again. Update: I am back on Dificid. I also take cholestryamine (prescribed by my GI). I do think this helps w/ bulking the stool. I hear it helps bind and remove the diff toxins too. So, if anyone isn’t on that yet, and is still having D(iarrhea), maybe ask your doc for it. I take large dose (8 mg twice daily). MUST take at least one hour after your antibiotic. And, the probiotic (I’m using Multidolfolis 12 from Solar Ray but open to other’s ideas) needs to be at least 2 hours from the antibiotic. This gets tricky. S. Boulardii is supposed to help, and I just ordered it on-line, as the health store didn’t have it (Florastor brand I heard is the best on some internet sites, and the PA at my GI”S office told me to get that one after I asked about it). Question: Does anyone else have unrelenting right side pain (like under the rib cage?). I heard the diff-devil likes to hide there.

        1. I have had right-side, under-the-rib- pain for years. Doctors have never had an answer for it Every kind of test has been done through the years to find the problem, but all tests have been negative for any known colon problem. It has been persistent, usually with a lot of gas such as in C-Diff. Often the pain was very sharp when drawing a breath. Thanks for giving me at least the possibility of an answer to this long-standing pain. .

        2. I have had c diff since March 2. Tested negative at last stool sample but still feel awful.
          very tired and weak.I got c diff 6 weeks after taking clindamycin. All Drs. agree this was the cause. No one said a word about taking a probiotic. I took Flagyl and cipro for the c diff and diverticulitis that they found in the ct scan,
          I also …have a pain on my right side.

    2. My husband is in the hospital at this moment. He had c diff from when he was in the hospital before. He is on dialysis and at this moment not doing well. He is vomiting, diarrhea and I’m not sure if he has the c dif again. He has been fighting.
      At this moment I have had pain in my rt side and went to the hospital ER they said I have infection in my colon. Gave me flagyl and cipro. Reading all these post have me very scared. My Dr had me do a smear of bm on 3 different strips last week but haven’t heard back from him. I’m calling the office tomorrow to see what they found out. I pray it’s not c diff.

    3. Hi Karen, I was given cipro for a possible infection, then became deathly ill, went to back to ER and was dx with C Diff, then given Flagly, I have never been the same, bad multiple GI issues, neurological problems, pain, weakness, anxiety depression on and on.. I am interested in this suit, if its not to late.

    4. Hello, I think I may have contracted C-difficile from Cipro, seeing a doc tonight, will go to the lab tomorrow, terrible pain and diarrhea, mucous. What medication do you think is best to fight this. I know the doc will probably prescribe Flagyl. Also which lab test is most effective?

  13. Karen, I am very sorry for you and the others who ended up with a colostomy from this hellish disease. I cannot imagine the anger you must feel.

    I was on several courses of antibiotics last summer and into the fall, each progressively stronger, to get past a recurring UTI and sinus infection I had going at the same time. I spent many years in the medical field and keep myself informed of so much and knew the dangers of antibiotics when it came to building up a resistance, but I believed that other than that, or possibly an allergy to them, there was no other danger. I certainly did not know of the possibility of practically killing myself with the c-diff. After half a year, I am finally testing negative, but I do not feel any different. Every symptom is still present and yet I am told that is because after the c-diff I was left with IBS. Possible, but I had a year of IBS two decades ago and never had the hot flushes, that distinct odor, or the other things. Everyone I tell about c-diff is baffled as they have not heard of it either. Who did until we contracted it? I live in fear of getting a life-threatening infection that requires massive doses of antibiotics as I have also had that way in the past. What then? C-diff is one of the most insidious things out there, and people should be warned by the MD and the pharmacy, EVERY time they get a prescription for an antibiotic–especially the heavy-duty ones.

    What you are doing is wonderful! Sending prayers for you!

    1. Rhonda, I’m in the same boat. Testing as okay, but still experiencing the “c-diffy” symptoms. I’m wondering if the toxins C.Diff bacteria produces are responsible for some of the symptoms, and how long it takes for those particular toxins to totally leave the body. Can they be stored in certain kinds of cells, like other kinds of toxins can be, only to continue to poison the body even when the C.Diff bacteria levels are testing as “okay”? Nobody has been able to tell me, yet. Seems like the docs think that as soon as the bacteria levels test as acceptable or normal, the whole “episode” is over and done with and the body should return to normal functioning – but as we know from experience, it does not.

      1. I, too, have lingering symptoms after being told by the doctor that because I have a formed stool, I no longer have C-Diff.The lingering symptoms make me question his statement. Does anyone agree with him? Am I still contagious if I have a formed stool?

    2. Thank you ALL for your encouraging words. I have already retained a lawyer who only takes on 2 out of 10 people that go to him for medical malpractice. Since I had been going to the same hospital for the past 2 years (all of my medical information in the network) the dr that put me on the wrong meds should be brought to court and the hospital too. Here in the US we are on a different system and the dr’s and hospitals can be made responsible for their actions. I plan to dedicate my time to making others aware of what the antibiotics can do. At the age of 41, I risk having a bag off my stomach for the rest of my life.

      I just had a 2nd follow up with my surgeon and he is taking me in to try connect my small intestine to my rectum so that I may have some type of normalcy (2 months earlier than expected). The surgeon said he had never seen a large intestine as inflamed as mine was, it was clear to him that my immune system was compromised before I started the antibiotics. Just to reiterate, they were Ciprofloxacin and Orofloxacin. I keep calling the second medicine orthofloxacin (brain fog). With all of this information, it is my hope that I can build a large suit against those that are responsible of negligent care. All it would have taken was 5 minutes at the most to scan a person’s medical history and with one like mine, it wouldn’t be hard to know that I couldn’t be on strong antibiotics without taking probiotics or anything to counteract the side effects. I am very scared that the dr will go back in and decide to take out my rectum because I am not healed enough but that is not my decision and I will have to live with the outcome.

      Every day is hard, but I am fortunate to work for a wonderful company that understands that less than three months ago I was fighting to stay alive. I am also experiencing PTSD – Post Traumatic Stress Disorder. My short term memory fails me constantly. I have depression from loosing a main organ that almost every person needs to live a healthy life. Will lawyers try to keep me in court? Sure! Do I care? NO! I care that there are almost 500K cases each year. With the proper guidelines in place for administering medicine there wouldn’t be so many people at risk. C Diff isn’t something that you easily walk away from, it can leave you disabled, or worse, dead. If we all rally together we can fight the misuse of antibiotics.

      God Bless everyone who is affected by this illness. I hope that you are all living life to the best that you can.

    3. Seems to me mostly everyone talks about sinus infections.I went to the dentist .was given antibiotics before having my tooth pulled.when i went in there i told him i could smell the infection.Instead of just keeping me on the mild antibiotic ,he pulled the tooth.In three days i had an infection in my sinuses .Even my forehead turned red.So my dentist put my on very very high antibiotics. Thanks dentist.I have c diff

      1. I, too, have C-Diff because of my dentist requiring me to take 2000 mg of Amoxicillin before a procedure (teeth cleaning!)

    4. I so agree. Why aren’t there warnings. Why weren’t we educated about this. Why did the people do my colonoscopy when I had just finished cipro (I can guess, canceling it would have meant no money for that appointment slot). I think we need a massive public ad campaign (commercials, roadside bulletins, posters at health departments and doctor offices, etc). Sending prayers to all!

  14. I’m on board with the class action lawsuit!! C-diff. has ruined my life!!! When I went into the hospital for abdominal pain they gave me massive IV antibiotics before they even found out what was wrong with me. It turned out to be a partial small bowel obstruction which surgery corrected easily but now I’m stuck with C-diff.. I’m on my 6th round with this crap and I’m sick of it!!

    1. I totally understand the impulse, but I wouldn’t suggest throwing a lot of money at a lawsuit. C.Diff ruined many parts of my life as well, stole my independence, my dignity, and impacted me financially and in a thousand other ways, but from what I understand there isn’t much of a case to be made. Suing big pharmaceutical companies rarely pans out except in very special cases, and doctors have ironclad insurance and associations that make them literally untouchable (at least here in Canada). They’ll keep you in legal-limbo for so long, you’ll drop the suit before they ever have to pay you a dime. I say this because I know someone who tried to sue a doctor and a hospital and the suit lasted FOREVER and was eventually dropped. Hospitals can’t be touched, either, because you can’t prove the bacteria you picked up came from one particular hospital. And we certainly can’t sue the bacteria (though wouldn’t that be nice?)! So I don’t really know who is left to sue, except in certain cases of obvious and gross medical malpractice. I figure the best we can do is cause a ruckus and inform people about it. If we make enough noise, cleanliness standards in hospitals and nursing homes will have to be addressed, and legislation or guidelines regarding the prescription of antibiotics might change. I know it sounds lame compared to a lawsuit, but it’s the best I can come up with. Suggestions are welcome.

  15. I am not at all clear on this myself. I have read that c-diff symptoms can remain for 2-3 weeks AFTER the c-diff is gone, but if nothing else, you would think that at least that distinct c-diff odor would be gone. ?? When I questioned my Infectious Disease doctor further about that, she said that for a few people, the c-diff with throw you into IBS, but then went on to say that it is VERY rare for a person to have IBS following c-diff if you have never had IBS before. In my case, I did. I suffered with IBS for about a year, approximately 20 years ago, until I followed the IBS diet and got myself healed up and then slowly added foods back in. I kept a very detailed diary of the c-diff from the time it started though, and it was only when off the Vanco about a week (or a couple weeks into the taper) that the c-diff would be back full force and I KNEW it was the c-diff! I will say that this last round of negative tests (the super-sensitive ones) I am pretty sure were correctly negative, as what I am experiencing now IS much more like IBS. But, for more than a month of them telling me “negative” with the basic c-diff tests, I can guarantee you, I still had the c-diff. I am very glad I have been super diligent about disinfecting everything all the time with bleach through all this too, since c-diff can live outside the body for months and reinfect a person. I got it originally from all the antibiotics, but sure do not want it back from reinfection . . . or from anything EVER AGAIN. Unless you have had it, no one will ever understand the hell it is on so many levels. Nasty, insidious thing. I pray for better days for all of us.

  16. Good for you Karen. Fight for this so no one else has to go through what you have.

    I can tell you that it was cumulative effect of all the antibiotics that did me in, with Augmentin as the final straw.

    On 1/6/2012 I was put on Cephalexin 500mg for a sinus infection. It never went away but I dealt with it. In June I developed a UTI and after fighting it on my own for a couple months, was put on Sulfameth/Trimethoprim on 8/2. It did not seem to touch it, or it came right back, and meanwhile I was still fighting the UTI, so finally after returning to my MD, she put me on a longer course–this time Amoxocillin 500mg on 10/3. At the end of those ten days, with some change, but neither infection gone, on 10/15 she put me on a 14-day course of Augmentin, which is Amoxocillin Clavulanate 500mg. I finished that on 10/29 and by Nov 5, I was having 20 bouts of diarrhea a day!

    Then, like a good patient who does not want to run to the MD with every little thing, I went online and read that if you have diarrhea, wait for two weeks to see your doctor, as some viruses can take that long to work out of your system. I did, only to find out when tested, I had c-diff from the antibiotics!

    NOWHERE in the information given me, by the pharmacy OR the drug company, did it say “For constant or severe diarrhea–see your doctor, and be tested for c-diff!” I never connected the two as I was on vacation during the time I took the final Augmentin, and returned home just in time to get the diarrhea, therefore thought I had picked up something. And of course, I had never really heard of c-diff, so had no warning flags raised!

    I think ALL antibiotics should carry a VERY LARGE warning that if you develop severe diarrhea, call your medical facility immediately and ask to be tested for c-diff. Think of the difference that would make.

    I also want doctors to explain how to take probiotics to help avoid this, and all the other things you can do as well.

    I think you should wait until you feel comfortable with having this next surgery. If you are feeling pushed into this, just say no. It is your body and you will have to live with the results.

    Take care! Sending prayers.


    1. It’s amazing how many C-Diff’s were started by antibiotics associated with a sinus infection. I too feel victim by using an antibiotic. I developed diarrhea after the 10 day regiment was over and it didn’t stop. Three weeks later my family doc said she thought this was all caused by the antibio and ordered a C-Diff test that was negative, She put me on Flagyl and Cipro. The Cipro made me break out in blisters on my hands and back. I stopped taking the Cipro and the blisters stopped eventually but she suggested to see a GI doc which I did and he scheduled a colonoscapy. A week later I started passing pure blood and my wife rushed me to ED and they admitted me and had a colo the next day and he said it looked like an exploded mine field. During this whole experiece, I developed a horrible fissure that the GI doc said was the worst he had ever seen. In the hospital, they again tested for C-Diff which this time came up possitive. I was given the IV’s and oral antibiotics and sent home 4 days later after the diarrhea stopped. He told me to take the Flagyl for 30 days. After a week I developed pain in all my joints so bad I could hardly walk and not sleep. I stopped the Flagyl and started to immediatley get better. Every day I am getting better and I think the fissure is begining to heal. Had the Prometheus test and it came back inconclusive. It could be either IBD or Crones. He was confused because I was feeling better and eating regularly without any problems. Going in for another colo in a few weeks to see whats up. I have talked to several people who have had similar stories as mine with anibiotic allergies. I know they are trying to come up with new drugs to fight the bugs that are immune to the old drugs. I hoping this is a one time issue for me but not so sure. thank you all for your stories.

  17. Update! I saw the Infectious Disease Physician last week. Man, was he GOOD! He was very personable and friendly, and seriously anyone overseas needs to book a ticket and come over now! He explained all about C-Diff (most things I already knew) He was baffled as to how I got it if I was not on anti-biotics in the first place. He explained that my symptoms were way too fast to have been explained away from the surgery. He told me they would have given me an injection of Flagyl for any post operative infection but that would not have triggered my C-Diff. He also said probiotics are a waste of time and money. Our stomaches destroy the good stuff. You need a probiotic which sits in the intestine. I told him I had been taking Sacchyaromyces Boulardii for about a week and had noticed some changes. He was totally RAPT! Almost broke his face from the smile! He said that is the one they recommend and the success rate is very high. NOT to be used on first episode of C-Diff, it doesn’t work, but for recurrences it is excellent.

    Well, we chatted about Vancomycin and he stated that it makes no difference what dose you are on, 150mgs is as effective as 500mgs. Vanco is not in your blood like other antibiotics and it actually sits in the gut chomping away on the bacteria. However! It does not kill the spores. So if you go off the Vanco you will likely get it again but if you take S. Boulardii with Vanco there is a good chance you won’t get it again. If you do, then it’s Vanco and Rifaximin as a chaser. Then if that doesn’t work (with the S. Boulardii) then you try antibodies to C-Diff with the Vanco + Rifaximin. Then if that doesn’t work they do the faecal transplant either via naso-gastric tube (to bypass the stomach where all the goodies would be killed off) or up the old keyser if you get my drift. Now this last method is difficult as you need a donor who is not on any antibiotics for past 6 months, not pregnant,not have any thing like thyroid, diabetes, etc issues, and tons more of things they can’t have. You also have to have the donor pretty much poop on command! PLUS here in Australia not many labs are set up to deal with poo and getting rid of the toxins and watering it down to a solution. BUT, it works. 99.9% success rate.

    Now having gone on all about the methods of treatment, they are doing a study here to try placebo or the antibiotic treatment as above. They are about half way through a 5 year study and need more patients. You must have a positive test done to be eligible. I tested negative after 2 months of trying to get rid of it.. I was disappointed! Weird, I know! He is keeping my case open as he feels I might relapse again and then to come back and go on the trial. They do know their treatment works, but to make it mandatory it has to be done as a double blind study which of course has to be proved that S. Boulardii, Vanco etc work so they automatically try that, rather than us sitting around going, AAAAARGH!!!!!

    I still feel garbage and horrible. My pain is lessened but I can’t eat anything other than boring potatoes, cheese, and some plain fish or chicken, and some grapes, bananas or strawberries. My gut hurts if I try anything else! I constantly feel severe nausea. I feel like I have the flu.

    I also asked him about the number of people with it here in Australia at any one time. He said, “We just don’t know. Some doctors do not recognise it for what it is and many people get mild doses, think it is a gastro-diahorrea upset and get better anyway. Some patients get Flagyl once and recover. Hospitals see it and treat it and that’s that. Rarely do they see people reported with ongoing relapses, but when they do, they are very sick ill people.” I had 4 relapses in 2 months.

    So, in a nutshell, they do know it is caused by antibiotics, and the occasional like me not with antibiotics which is rarer. They do not know why some people get it rather than others. He said they suspect an impaired immune system. (Which I have) They do know that the spores are hard to kill but they do know that S. Boulardii works in restoring the gut flora giving the good flora a chance to kill off the spores. It worked on me and I am not allowed any antibiotics for fear of relapse, but relapse as he said can happen at any time anyway. (But unlikely) He also said that many people have damaged bowels for the rest of their lives. Great.
    So those who have constant relapses try some S. Boulardii, it’s Brewer’s yeast! (Take it with Vancomycin 150mgs or 250mgs). Simple and effective. Health food shops sell it. Who knew! (Not saying it will cure all C-Diff patients but it is highly proven that it does cure most.)
    Good luck to all.

    1. Hey Ria, thanks so, so much for all of this great info!!! I really appreciate you posting the results of your specialist appointment for the rest of us! I think I’m in the “damaged bowel” category myself. Almost three years on, and I’m still basically an invalid. I have severe nausea every day, too. I take 8 mgs of Ondansetron or Zofran when the pain and nausea gets to the point where I’m in a cold sweat for several hours. These drugs are very strong anti-nauseant and anti-emetics usually only used for chemo patients, and cost between $15 and $25 PER PILL here in Canada, but I pay into a prescription coverage plan that covers 80% of the cost and I take the pills sparingly – only when really, really needed. I try to use peppermint and other herbs to help with the nausea on a daily basis. I will try the S. Boulardii – it is something I haven’t tried yet. Keep in touch and let us know how the brewer’s yeast is working for you!

    2. Can u forward your story to me? My son was in the army and has been sick fpr 2 years. He has been inconclusive and positive for c diff but tje VA is who he goes to and he isnt any beyyer amd in pain all the time. I would like to show your story to his doc and see if finally do something.

      Thank you,
      A worried Vets mom.

    3. i was diognosed with CDiff march 3, 2014 after taking CLINDAMYCIN (the anitbiotic from hell) in January. All Dr.’s agreed it was the cause.
      I felt so terrible for months even after I tested negative for CDiff. I started taking Sacchyaromyces Boulardii and started getting my energy back. I believe it DEFINITELY helped and if I run out, I start that awful weak fatigued nausea feeling.
      This was my first bout with CDiff and I disagree with the dr. that said it does not help the first time cdiff victims. It has taken me 7 months to be able to function normally. I am 71 years old and I thought I would never feel like I used to again, I BELIEVE the S.Boulardii is the reason that I have my energy back.

  18. I got C-diff post-outpatient surgery and post-antibiotics and have just finished eight weeks of treatment for C-diff. (The C-diff is also very likely why my surgery failed.) I knew of two other people a couple of years ago who had had C-diff, so I was aware of some of the risk factors and had put myself on probiotics pre-surgery and post-surgery. Since I was lucky enough to have previous C-diff knowledge, I requested a C-diff test three or four days after symptoms started.

    Regarding how we contract C-diff: As I believe was previously mentioned, the most common way to become infected with C-diff is still by coming in contact with the bug in a healthcare setting along with recent antibiotic use killing our good gut flora…. However, there are more and more cases of community-acquired C-diff occurring — in one study of 385 people with C-diff, 41% were community-acquired — as well as C-diff being contracted more frequently without antibiotic use as well as a younger population, and those not otherwise ill or compromised are contracting C-diff more often … not to mention the continual and substantial increase in overall cases, the increase in severe cases, and the increase in cases resistant to metronidazole and vancomycin treatment. So, the clostridium difficile bug appears to have morphed.

    Maybe I’m misunderstanding, but it seems as though some are under the impression that the antibiotics they took directly gave them the C-diff infection. The fact that we either were already a carrier of C-diff or recently contracted the bug, combined with taking antibiotics that destroy our good intestinal flora (bacteria, fungus and other organisms), is often what is the cause. Since C-diff bacteria is resistant to many of the antibiotics we’re put on to treat various infections, that means these antibiotics don’t readily kill the C-diff bug. Since they do kill much of our good gut bacteria, the C-diff bacteria can then thrive and take over, which causes an actual toxin-producing C-diff infection.

    Though I definitely believe antibiotics are often over-prescribed and given when they aren’t necessary and also that narrower-spectrum antibiotics (that kill less of our good flora) could be used in many other situations if doctors would do a culture first to see what bacteria they’re dealing with, there are also many situations where medical professionals would be put in a situation of committing malpractice if they didn’t prescribe antibiotics for an infection. With the type of surgery I had, prophylactic antibiotics were necessary. They have to consider potential risk versus potential benefit. If a patient is having a surgery that is high-risk for infection or if a patient already has an infection that has a likelihood of worsening, the doctor could cause further harm to the patient and/or be charged with malpractice by not prescribing antibiotics. Unfortunately, it’s often a catch-22.

    On the other side of things, I have seen an atrocious lack of knowledge of C-diff and lack of disease prevention protocols by many healthcare professionals. In my case, when my test came back positive for C-diff, I was told by my doctor’s office where to pick up my prescription, and that was it! No treatment or prevention or cleaning tips were provided. No verbal info. No written info. Nothing.

    I once even had a well-meaning R.N. offer me the alcohol-based hand sanitizer, clearly unaware that the alcohol-based products are said not to be effective against C-diff spores. I’ve seen hospital workers not wearing gloves and gowns; and I’ve seen them drop items on the floor and then start using them again without first sanitizing the item. I’ve seen these workers let a patient’s C-diff-contaminated stool sit in the bedpan without removing it. I’ve seen them clean the floor in a contaminated hospital room (with an obviously contaminated floor) and then move on to the next room with the same mop and bucket.

    We can suspect but never prove where exactly we contracted the C-diff bug, but I have no doubt that implementation of proper prevention protocols would save a great many people from enduring a C-diff infection.

  19. For those with C-diff who have dogs, I suspected my dog contracted C-diff from me, so I did a little research to see if that was possible or not and found this:

    On the blog of Ontario Veterinary College’s Centre for Public Health and Zoonoses, a post by Scott Weese, DVM, veterinary internist and microbiologist indicates that, as with humans:
    1) only a small percentage of healthy dogs (less than 5%) are carriers of clostridium difficile.
    2) risk factors for pets and people include antibiotic use, advancing age and hospital admissions
    3) dogs that visit human hospitals have a much higher rate of C-diff carriage.
    4) Quote, “We are highly suspicious that C. difficile can be transmitted between people and pets (in both directions), but pets are probably not a major source of infection for people.”

    Link to article below:

      1. I also saw some posts from other C-Diff’ers on a blog that said their dog had gotten C-Diff from them too.

        Re prevention measures:
        1) Here’s a link to an article called, “Study: 3-Step C. Diff Intervention Cuts Infection Rates 89%”:

        2) And APIC’s 100-page “Guide to Preventing Clostridium Difficile Infection” (Feb 2013):

  20. I too have been living with the c diff plague. Roller coaster ride. I’m. Tired of feeling like crap. My one sister treats me like a leper. I have been isolated. ,afraid and wished i had just died. Is there any hope of being normal again. My stomach is constantly in pain,bloated. Even though i had every symptom i was never diagnosed. Until after my release from the hospitail. The unbeleivable uncleanness in the hospitail. Still makes me shiver. If i ever get back to normal i will campaign. Awareness of this horrible. illnessp

    1. Hi Krista. I hope you are feeling more hopeful. You will get better, and campaign. You are alive for many reasons, one of which may be to spread the word! I agree, awareness is horrible. I am channeling my outrage, and trying to gain needed energy , by telling everyone I know about it and how to try to protect themselves. Gees, this disease is exhausting at best, debilitating at worst. Everyone I tell had never heard of C diff. I don’t think any of us did either. But…the docs know. I don;t understand why you weren’t tested (or were you, and was it not the PCR test which is supposed to be more accurate). If you were not tested, you very well may have a lawsuit. I saw some lawyer site on-line they only take cases where testing wasn’t done.
      Most importantly, I hope you consider seeking counseling to help you with the PTSD and Depression you may have because of this illness. It can really help. I am a therapist, and have support of colleagues, but am likely to go see someone myself. Be well.

  21. I’ve been fighting C.Diff for about 9 months now, counting from the first trip to the emergency room. It has been three or four trips to the emergency room and one in-patient stay in the hospital when my fever started climbing, but the infection is finally backing down. I can’t say I’m a survivor yet — I have another test tomorrow to see if i’m free of it because I flunked the last one. I’ve found that I feel *much* better by keeping my electrolytes more balanced by drinking either vitamin water (no sugar) or gatorade G2 (low sugar) because the C.Diff makes me exhausted all the time. Also, I’ve found several double-blind studies that suggest that combining vancomycin treatment with saccharomyces boulardii (spelling?) can reduce the re-infection rate for C.Diff, so I’ve been taking probiotics with s.boulardii for the last few weeks to improve my chances of getting free of this bug.

    I still feel so tired and my insides still hurt so much that sometimes I wish I would just die already. But I tell myself it is just the pain and lack of sleep talking and that a few weeks from now I will have a new perspective. Reading stories from survivors today helped me get my perspective back. Thank you for that.

    1. Hey Mike – thanks for sharing your story. You’re already a survivor, hon – you’ve lived the C. Diff experience. I, too, found that gatorade was really essential during my bouts of C. Diff, and you are absolutely correct to avoid sugary drinks, as sugar and carbs are what C. Diff. really thrives on. I know there are a lot of concerns about artificial sweeteners as well, and I don’t know their impact on a C.Diff-infected bowel, but the low-sugar gatorade did really seem to help rather than hinder, at least in my case. Hang in there!

  22. I had c diff for nearly a month after an infection from wisdom teeth extraction. I took flagyl for 10 days, but relapsed in 5 days. This time it was more severe. Prescribed flagyl for 7 days. On days 2 &3 after finishing this course, I did a fecal transplant at home via enema with 1cup of feces from my brother and 1 cup of warm water with 1/4 tsp of salt. I blended it until it was fairly smooth and administered, retaining it for 8 hrs. 1 month later I’m asymptotic.
    Please consider this, it saved me from much pain and misery.

    1. Wow. You did this yourself? How did you know how? Did you do in 2 days in a row? (you said day 2 & #, right?). How were you able to retain it for 8 hours? I asked my GI today if I relapse after this second round of meds, I want fecal transplant. He told me I could not be referred until I try a long vanco course/taper, that it’s been regulated, and now (at least in in Michigan) the transfers can only be done at teaching hospitals ( his office had done a couple but aren’t allowed to now). I like your plan (free stool, and cost of an enema, and a higher cure rate than the meds, and w/o all the side effects of the meds including risk of increasing resistance and ruining whatever good flora I may have). If what my doc said is correct…wow, that must be Big Pharma in play (they make thousands on vanco and will make even more of dificid which i guess is like 200.00 per pill (a doc told me that in the hospital but I don’t know for sure). So 8000.00 from my insurance this past month??? 80.00 in co-pays for me (I got lucky there).
      Please tell me how you know the process, and did he get his stool sampled for diseases, and have blood work to prove he not ill? (that probably sounds stupid, as we with the diff devil ARE very ill). I have siblings, and we want to transfer if I relapse. Thank you, and best wishes to you and yours!. .


    I would advise anyone considering an at-home, d-i-y fecal transplant to be very, very careful. The stool you would use would have to be pristine, bacterially-speaking. A lot of people carry harmful bacterias like E. Coli, Salmonella, Giardia, etc., without ever experiencing any symptoms. They can also carry parasites. Someone who has has no “bad gut” symptoms ever can still pass these bacterias and parasites on to you. And since your C. Diff-y intestines are already inflamed, infected, and raw, there’s a good chance these bacterias could easily take hold. Then you’d be dealing with two or three deadly bacterias instead of just C. Diff., which is bad enough. In fact, I’d wager that a bad stool transplant could kill a C. Diff. sufferer, or at least cause the loss of their colon.

    I know that a medically-administered fecal transplant is a procedure that works, and that it’s had a lot of success in C. Diff. cases where it’s been administered, but I really think there is a high risk that doing it yourself at home could go wrong. I’m very glad it worked out for Chelsea (you go, girl!), but from what I understand about the nature of gut flora, I’d be very worried that Chelsea’s success would be an exception, rather than the rule. Without the resources of a testing facility, there’s no telling what is in the stool you’re transplanting. Also, for someone in the full throes of a C.Diff. infection, I have no idea how you would retain the stool for any amount of time for it to be effective.

    Please consider all these factors before taking such a risky step.

    Here’s a site that touches on what can be in your gut without you knowing it. I don’t agree with all of the adivce this doctor gives (because some of what he advises is actually stuff people with C.Diff. should avoid) but his research on how gut flora, bacterias and parasites affect the whole body seems solid and interesting:

    1. You can have the donners stool tested. Also make sure the dinner doesn’t have IBs or any other gut issues or medical problems as they can be passed on. But if you have clean donner then you can do it yourself safely.

  24. Hi Everyone,

    Since so many people are finding their way to this blog and are finding help (or at least support and reassurance) from others here, I’m considering putting together a forum site for C.Diff. survivors. This would make posting, chatting, and finding and sharing information easier, and it may help in coordinating our efforts to promote awareness and change. If people are interested, I’ll go ahead and put the site together, so let my know by replying to this post with a “yes” and with any suggestions you might have for the site.

    Thanks everyone – you’re a really special bunch, you know that? You may not feel it, but you’re all so strong 🙂

    Luv Lady P

  25. Yes–Please start a forum and let us know. Thanks! I also agree 100% on the “home transplant.” Even if the donor were tested at a clinic (blood and stool), unless it is sterile conditions at home, I would be very concerned. Also, I am sure I could not walk into my clinic and for no reason be tested that way. I would hate to think the person who did it just “assumed” the brother was healthy. But, bottom line, I agree–how do you retain it for that long? Amazing. Happy for the person who did it and got rid of the c-diff, but I would be scared of MUCH worse things as a result. Stay strong everyone. This is a hard battle, but some of us have won . . . at least THIS round.

  26. Hi all–If you do not subscribe to updates on c-diff from Medscape, please do so! They helped me understand a lot and will keep us informed of all the new info that comes out. I was sent a new mailing this morning, and I thought I would list some of the links.
    How to Prevent C difficile Infection: A New Guide
    Transplant guide:
    The most amazing to me was this link—–>
    Antidepressants Linked to Doubling of C difficile Risk:
    Please note with some of these, like the first listed, there are several parts, so keep going to the next page. There are many more there, but at the top, if you search c-diff, it will bring up all of them.
    Hope this helps some of you who may not know all this info. Take care!

  27. A local “rehab” facility killed my Mother when she went in to rehab a pelvis injur and contracted C Diff from an infected catheter. . If she had come home from the hospital instead of going to the rehab, she would still be alive.

  28. Hi Everyone,

    We now have a forum! This makes chatting easier, organizing our information easier, and you can also pm (private message) other members. Our forum address is:

    We’re open for business! Hopefully many C.Diff. survivors will find us and we can all support each other. I’ve created several categories on our forum to help organize our information.

    If you feel comfortable with it, I’d appreciate it if anyone who has posted their C.Diff. story here on my blog, would copy the text from here and paste it into a new post under the “Our C.Diff. Stories” category on the forum. If you’ve posted helpful links, there is a category for those too! Moving all of the information we’ve collected together from this blog site to the forum would take a long time if I tried to do it all myself, so a little help would be much appreciated, if you’re able. Thanks everyone!

    Lady P

    1. I should add, membership is required to post on the forum. Membership is FREE and all it requires is for you to sign up with a username (which does NOT have to be your real name) and an email address so you can be informed when you get replies to your posts.

    2. I contracted C-diff. Nov. 2013. Thought it was the flu but three weeks later and one ER visit but no diffinitive answer. It appears I am getting ahead of myself. That same year I had a tooth problem and took clindamycin (2 rounds). When they finally pulled the tooth in August I was feeling so much better then I got flu-like systems in Nov. and what is the wording, oh yes,the rest is history. Lots of immodium and even the Brat diet did not relieve my symptoms and eventually went to my primary had a stool test and was positive for C-diff.. Started me on flagyl, diarrhea went away but pain was still there. Ordered a cat-scan and found the lining of large intestine sluffing off, enter Vancomycin. Took all meds. Felt better for about one week and systems re-occurred. Back on the vanco. but still no relief. Primary sent me to infectious didease doctor who took me off pro-biotics and any other medication saying it did no good to be on then for now. In fact he thought it might do more harm than good. He also did a stool test and ct-scan with blood work but that came back negative for c-diff, however, I was still having left side pain and his diagnosis was I contracted IBS due to the c-diff. Now I am taking Nortriptyline and the pain is gone but the bloating and weight gain have gone crazy. Next stop, the gastroenterologist. Even though I felt horrible for all those months I am thankful my husband was there to take care of me and support me because I don’t think I could have made it without him.

  29. I had it too, though not as severely as you. Giardia was also suspected and treated at the same time. That was seven years ago and I believe there have either been a few relapses or permanent damage. Permanent lactose intolerance, ibd symptoms, terrible sinus problems, 20 lbs underweight now due to increasing food intolerances and bouts of diarrhea. My quality of life went down and I haven’t felt well enough to work. Anxiety is a daily thing. I am convinced that my body does not produce the correct enzymes to convert many foods into what is needed and that too many good bacteria were destroyed in my gut. Having no health insurance doesn’t help.

  30. I too have had c diff. I had it back in 2009 and since then I have had issues. I never thought much of it because before having c diff I was sure I had irritable bowl. However I did catch c diff more then once and they were shocked telling me its hard to contract more than once but a couple months after being outta the hospital I told them something wasnt right so they did a colonoscopy and sure enough they saw the pockets forming and biopsied a few. Then this year a couple weeks ago I ended up in the emergency room from waking up in horrible pain. My white blood count was through the roof and they did another ct scan and said my intestines were a little swollen and do to my history are going to admitt me and start treating me for c diff. Thank god the test came back negative and they diagnosed me with just an infection in my intestines. These last few weeks since my intestines being irratated again I cant seem to eat things and have them settle without pain. Now reading all this makes since to me.. that ever since my c diff infection I have been struggling with pain.. time to try some diets

  31. My two children beat cdfiff, but it was a tough road. Both, age 5 and age 3 months at the time, were given Omnicef antibiotics for ear infections. By xmas eve my 5 year old started with the symptoms. After 4 relapses and 3 rounds of Flagyl and a round of Vanco, I began looking for alternatives. I found Dr George Russell at Mass General that agreed to do a fecal transplant (and even found 2 others in the country later) which had had between a 94 and 97 percent success rate!!! Yay!! However, I had to do another round of vanco tapered over 10 weeks before we qualified for the procedure. He told us she had a 85 percent chance of it reoccuring after the vanco and then we would schedule the transplant. The vanco protocol was 2 weeks at 3x/day, then down to 2x/day for 2 weeks, then 1x/day for 30 days, then every other day for 2 weeks, then every 2 days. In hopes of being in the 15 percent, we altered the protocol. At each step down, we skipped 3 days taking only Florstor probiotics 3 times a day and then upped the dose of vanco for 3 days then followed the protocol. We were trying to “trick” the cdiff. It worked!!!!! She has been cdiff free for 7 weeks. We give her 2 florstor a day and dr wants us to continue that for another 7 weeks. Our infant never had the symptoms the the severety of our 5 year old, but had the undeniable smell in her runny poop. We tried various probiotics, but a few weeks ago we started her on the florstor too and we are getting good poops now. Crossing our fingers that we have beat this for good, but glad to know Dr Russell has another option for us if it returns. I hope this helps and if anyone has any questions, please feel free to email me at We know how hard the battle is.

    1. Holy Moses, Jennifer – I’d have been scared out of my wits if I were in your shoes! You’re so brave to tackle this disease with your two babies – I just can’t imagine having two little ones so ill at the same time. I’m so, so glad to hear they’re doing better now – it’s really interesting how you altered the med and florstor protocol and had such good success. Thanks so much for sharing your story!!! Feel free to pop on over to our newly-created forum to post your story and connect with others (you can find links to it on the main page and the “my story” page of my blog). Big hugs to you and yours, LP

  32. Thanks For sharing your Story. I was just diagnosed with C.Diff and they put me on Ciprofloxacin. They have still yet to verify the bacteria ; because I went to the E.R and got put on anti-biotics and Flagyl initially. I have been told it is appendicitis, Chrons, and Ulcerative Colitus. I don’t know if I will ever be the same again. I still don’t feel right.

  33. Well, between this blog and our CDiff Forum ( we have collected 32 personal CDiff stories. I think that’s kind of amazing. We’ve all fought this battle feeling alone, and now 32 of us have not only the support of our loved ones, but of each other. Yay for us! To blog and forum perusers and visitors who’ve not become members, please become a member and keep the stories coming! Together, we’re making a positive difference in each other’s lives.

    Thank you to: Michael, Jenn, Nancy, Anna, KBaker, Rhonda W, Lynn, Lisa, Ria, Debby, Patty, Karen M, Jane, Chris, Judi, Gerry, Pat, Krista W, Mike, Chelsea, Don J (who shared his mother’s story), VI, Tara, Traci, Jennifer (who shared her childrens’ story), SkinnyLegsAndAll, Lamantia, SpeakForThem (Lisa), BlondeJenn, and My2Labs. (As you can see, we have several stories from members who share the same first names. And sorry if I’ve missed anyone out in this “thank you” note – if I have, it was not intentional).

    Hugs to you all,


  34. You bring up something very important, LP . . . support. Even with my wide assortment of friends and family, many of them in the medical field, few had even heard of c-diff and no one really understood it.

    I think for most of us, it is the concern that is the most debilitating part of the disease. We just do not know what tomorrow brings. My fear with each progressive round of meds was “what if this time does not cure it either?” You do not know if/when something more serious happens, like surgery. Will they even catch a change before it is too late? You find every minute of your life revolving around this horrid disease. Between the extreme precautions you must take to prevent others from contracting it, or reinfecting yourself once clear of it . . . to fighting with doctors when you KNOW what the best medication regime is (and everything in between!), a person does nothing but worry 24/7. And then to know it lives outside the body for a year and cannot be killed with alcohol or alcohol-based sanitizers–ARGH!!!! It is great to have others who “understand.”

    I can tell you I was diagnosed with cancer about 20 years ago and from time of diagnosis to surgery was about a month and I was a basket case–but somehow all those months wtih c-diff were actually worse. And it does not help that everyone around you seems to act as if you have IBS or something minor, even after you tell them. We are the only ones who really “get it.”

    This is truly the most insidious thing and I pray they will find a simpler, faster, better drug to eradicate it soon. Until then, PLEASE remember how important disinfecting with bleach is. I found one product on that the doctors use for a surgical pre-scrub and while expensive, I feel it is worth it. It is called HIBICLENS®. I still use in in the bathroom along with my reg antibacterial soap, and I carry hand-wipes in my purse that are bleach-based. They run about 75 cents each, but that is what I use if I cannot get to a bathroom to wash after pushing a grocery cart or handling a menu. The doctor is pretty sure that is where I picked it up to begin with, and all the hand sanitizers in the world will not protect you if you handle something from someone with c-diff who has used the bathroom and not washed, or washed improperly.

    Anyway, back to my original thought–I think the support here is priceless. Keep posting! And keep educating. Prayers for all. Better days are coming.


  35. May 22, 2012 my Mom succumbed to sepsis after a two year battle with c-diff. She contracted it either in Martin Memorial Hospital or more likely the Palm City NH. I figured it out when she told me the aides had flipped out because her diarrhea was clear. i googled it and came up with the Immodium website, the nurse had been giving my Mom Immodium with Dr approval. Immodium is contraindicated for patients with c-diff. At the time the NH staff professed not to know but as any real Nurse will tell you- never give a medication like Immodium unless you know what is the source of the diarrhea. And then began my two year odyssey with four SNF’s, two major hospitals and a dozen or so Dr.s

    I have always been capable of extreme naiveté, but possibly never so much as with the medical community. The following two years were a real eye opener as to what masquerades as care for the afflicted …. well here in Fl anyway.

    So after the diagnosis we began with the vancomycin for 10 days…still positive, two weeks off, then another round of metronidazole and vancomycin i think…still positive. then a third sample…’oh, she’s negative.” really? Why does she still have diarrhea? SNF’s manipulate the sample by dending it to a lab 100 miles away- unrefrigerated. By then the toxins are less detectable. i talked to the head of the Lab. Off the record, she confirmed it. Hospitals and Nursing Homes will do anything to deny the presence of c-diff in their facility or tell you how many people have it. But as i spent a late night wiping down the Nursing Station with chlorox wipes in one NH, the secret was revealed…everyone on the first floor was catching it. That Nurse was let go mysteriously…I guess you’re not supposed to be talking about c-diff with the patients families. I made many a NH Administrator’s life difficult I imagine but all for a good cause.

    I spent quite a few nights studying c-diff and it was mind blowing. It’s spread by healthcare workers by and large. Not a popular thing to tell your nurse. It is what it is. Sorry. My daughters a nurse in the ICU. She gets it. There is no substitute for soap and water. it’s the physical sloughing off of the bacteria that removes it. Or clorox, or cave-wipes.

    So long story short, we waged an epic battle, Mary June and I, but we lost. the infection spread into the intestine, her bowel was destroyed. All the Florastor, fiber, laxatives came to naught. I was with her every day for the last year and a half and most of the year before that when she had the strokes that started all this. But it was the c-diff that got her. i was with her when she took her last breath. I cried for hours.

    C-DIFF IS CURABLE. A fecal transplant would have stopped it in it’s tracks, but the procedure was not available to us. As one (of five I visited) well dressed Gastroenterologist said to me “there’s some things I just won’t do.” Wimp.

    I got through it by the grace of God. I learned the only real truth is in His word. Our present sufferings cannot be compared with the glory to be revealed. The Apostle Paul was stoned, imprisoned, left for dead and considered it all a light affliction. I was never stronger than when I was totally reliant on Him. I would pray everyday outside the NH “I can do all things through Christ who gives me strength.” i went back to the NH after a year and spent time with one of the residents I knew when my Mom was there. He’s been there for a few years and no one brought him his Bible. i went and picked one up for him. Large print.

  36. my husband was just diagnosed with c diff, we have a house full of kids youngest is 7 months. My husband’s case was only diahrea for one week until I realized he had this! he is now taking flagyl the Times a day. the diahrea is becoming little to none… I’m terrified this will spread through my house, can I hold and kiss my husband who feels like he is the plague??I’m scared, help me?!!

  37. I have had C-diff. for a year now (11 times to be exact). Neither my husband or my grand children have gotten it. I will be going through my second fecal transplant next month!

  38. Hi everyone,

    I do not have C-Diff but found this website researching the indications and contraindications of massage and C-Diff for one of my clients possibly has an active infection. Anyways, I can’t believe the suffering you all have endured and admire the very obvious spirit and will to live in all of you. I am wondering if any of you have tried using Homeopathy to treat your C-Diff? I have a long history as well with autoimmune disorders and my daughter is a pediatric stroke survivor with multiple food allergies. We have, thankfully, avoided all antibiotics since her birth and have used ONLY homeopathy…even for infections. I can’t begin tell you the benefits my family has received from using this form of medicine. I know if you google Homeopathy every other site is about it being quackery or dangerous or not dangerous but useless but to experience it and see what it is capable of is the only way to really know. It took me years to jump on the bandwagon but now that I fully understand how the system of medicine works I feel so lucky to have this powerful tool so readily at my fingertips, and it is cheap! If any of you are interested you could check out the NCH at (I am in no way affiliated with the NCH)

    I am available to ask/answer any questions as well, to the best of my knowledge of course!

    Best to you all,

  39. Hi, my name is Priscilla,
    I have had C-diff for over a month now. I have been in the worst pain of my life. The more i learn about it the more fear i feel. The toxins have spread to all my joints,so i am unable to move with out pure pain. All my doctor does is give me more pain meds, and vanco, then sends me home. It has been weeks, and i feel just as bad as day one. What can i do to help get better? Iv lost my job, and can not pay my bills. I even had to send my six year old to live with her grandma because i could not take care of her. This is by far the worst thing i have ever gone through. 😦 sad and lost in UTAH.

    1. Hi ronda could you e-mail me. at
      I want to ask you about the amodium a.d. little confused what you meant..
      should a patient with c.diff be using it. I know my doctor says it is ok if she is having diarrah. But stop if she is starting to form normal bowl movement…..

      1. Here’s my 2 cents: in many countries around the world, immodium is not considered to be a safe treatment for C.Diff infections.
        Here’s why:
        1. Immodium slows down the rate of your digestive system. This is how immodium works to stop diarrhea. BUT, studies have shown that C.Diff bacteria breed more easily when your digestive system is medically slowed down. This means the infection lasts longer and can become more severe.
        2. When Immodium slows down your digestive system, a condition called megacolon can happen. Megacolon happens when the large intestine inflames and swells up to the point where it can burst. The swelling alone causes tons of pain. For the C.Diff patients who do have their colon burst, the outlook is not good – at least 1 in 4 people with a burst bowl die from bleeding and widespread infection in the abdominal cavity. I never took Immodium but I still experienced megacolon, and the pain was horrible. Luckily for me, my bowel did not burst. It helped that I was on a clear-liquids only diet at the time. If I had eaten food, things would probably have been worse.
        3. Immodium can cause a great deal of pain for some C.Diff patients. I tried something similar on a day before I received my C.Diff diagnosis, and the pain and swelling was so intolerable, I never touched the stuff again. To this day, I do not take medications that can slow down my digestive system, because I know that slowing it down still causes me a lot of pain (even after my infection was under control) and I don’t want to give the traces of C.Diff bacteria that are left in my intestines a chance to multiply.

        Just some things to consider. In the end, you, your mom, and your doctor are the ones who have do decide what’s best for your mother.

        1. I am so grateful to find this set. Last august went to Er with severe abdominal pain. Never had any previous issues diagnosed up to then . Said I had diverticulitis which had perforated my colon. Removed 18 of my colon in ER surgery and given colostomy (to be reveresd hopefully this August. My inciscion and gut became sepsis and created 4inch split in my abdomen. Also had pneumonia and had suspicious ovary removed which turned out to be begnign. I was then placed in a drug induced coma to get pig bladder graft then 2days before my 49th birthday had skin graft taken from my leg for my belly. Recovery was brutal, then while at doctor day after Christmas they called ambulance to get me and take me to ER where I was diagnosed with C Diff. I cried all the way there as the last place I wanted to back to ever was the hospital. The fatigue and pain is often unbearable but reassuring to know there is a relationship/reason. I agree C Diff gets in your head, I live in fear of getting it again. Going tomorrow for binder/support belt for my abdomen to help until surgery for colon and wound repair. Until then the only thing holding my intestines in is that skin graft without muscle support. That being said I have a lot of blessings and 3 grand kids who were probably the reason I fought for my life and why I get out of bed some mornings.

  40. Priscilla–
    So sorry that you have joined our ranks. I would not wish this on anyone. If your MD is not putting you on what you feel is the right regimen of Vanco, such as with another med as well, and with a taper, etc., then I guess I would ask to be referred to a specialist. After my experience and seeing what others have posted here and other places, I feel much more harm than good can be done if you are not on the right meds at the right time and as soon as possible. That is the biggest reason so many of us fought with this for months and months. Also, read all you can about it. While what you read is scary, you need to learn to be your own advocate and push for what is best, as well as to understand what all is involved so you do not infect others or reinfect yourself once over it. That is so very easy to do since alcohol-based sanitizers cannot kill it and it can live outside a host on nearly ANY surface for up to a year! I am sorry about losing your job and having to send your daughter away, but I am sure once you get past things, things will get better for you in other areas of your life as well–work, finances, etc. I said a prayer that you will find the answers (and the cure) you need. Take care and come back here and post whenever you feel the need. God bless!

  41. I was diagnosed with my second c diff infection in May 2012. No drugs worked this time. Even Dificid a newer antibiotic for c-diff. I finally had a fecal transplant in August 2012. It worked but took about 6 months. It’s only been since July 2013 that I feel comfortable enough to go out. Although a fecal transplant is not FDA approved, my insurance allowed it due to death being my only other option. I was told that I was only the third person in So Nevada to have the transplant. I’m grateful but still live in fear of a returning infection.

  42. I have to type this quickly because keep getting knocked off line… e=mail is my mom is 76yrs old. has c.diff started aug 8th
    got c.diff from antiabiotics She is on metronidazole to kill the c.diff.
    She was chilling=fever=diarrah 5 times a day or more……I took her out of a nursing home
    because she was doing bad. not eating ect.

    I took her out on the 23rd. it is the 30th aug.

    This is the key to getting better! F.F.Y. Fruit ..Fiber.. yougurt
    eat all of these as much as possible. And oatmeal or hard eggs breakfast
    Lunch chicken noodle soup crakers

    Dinner. green beans= macroni cheese. baked potateo…mainly just balanced
    food. stay away red meat !. chcken fish pork…..

    for the good news. my mom 76yrs just one week of me caring for her…
    No more cramping= no more. not eating well….And most inportant feeling 100%
    better she takes metrondazol for c.diff. Also give your loved one ensure small amount a day
    nutrtion drinkfull of viatimans I have to go but my mom is already having normal bowl movements. doctors cant believe the turn around so quick! steve ve-mail me if you like

    1. Hi there!

      I’m so happy to hear about your success!

      But just a quick note: you might want to avoid feeding your mom too many carbohydrates. This includes rice, potatoes, wheat, bran, barley, sugars, pasta, and corn. The reason for this is that C.Diff bacteria feed mainly on carbohydrates. If we limit the amount of carbohydrates we eat, we also limit the amount of fuel the C.Diff bacteria gets, making it much harder for the C.Diff to multiply. This leads to less C.Diff bacteria, and less bacteria means the medicine your mom is on to kill the bacterial infection can do it’s job much better, and more quickly. Just thought I’d mention that. I know it’s hard though – when I was having active bouts of C.Diff, all my body craved was carbohydrates, such as mashed potatoes or plain pasta. But avoiding these things can result in a much quicker recovery.

      Give my regards to your mom – I’ll keep my fingers crossed for both of you! All the best,

      1. Ladyprimal. Thank you so much for the info you gave me….You know a hell of a lot more then I do. because I am new to the treatment. I have listen to some r.n. from a nursing home. and I can see some do not no much at all.very good info you have posted thanks again…So far my mom is still doing great. having normal stools. and feeling better…..

        1. No worries! That’s precisely why I created this site – to come together and share information and support one another. In doing this, we all increase our chances of a good recovery from C.Diff.

  43. my earlier post. you can eat chicken pork=fish for dinner.
    the chicken noodle soup crackers is lunch
    You want to get the vitaimans in your loved one.
    fruit apples pelled I put I a little cinnamon and small amout suger on them.
    Yougart 3 times a day if possible. this works. fiber ask your doctor how much fiber.
    really depends on the persons system .I usally have her eat a small bowl of rasin brand. And 1 qt. cup of ensure vitaiman drink…….Lets get to feeling better folks with c. diff. you can beat this ! Keep hopes up And a prayer wont hurt…..steve e-mail
    for any questions.

  44. Hi everyone, I too am a c-diff survivor. It was caused from a 1, 2 punch of different anitibiotics for a severe sinus infection. This was back in Nov. of last year…..the pain was so, so bad, it felt like someone was taking a knife and just stab and twist have never felt anything so bad. Went to the urgent care and was sent to the hospital from there for IV fluids and treatment….they took a stool sample but the er dr did not wait for the results he said it was c-diff and that he was treating me for it. The belly tones were so loud that it scared our cats lol the only humor out of it. After a night and three bags of fluids and some meds they sent me home. I was to call the dr back in 2 days to report how I was doing. It got to the point that I was passing blood from going to the restroom so much. To this day I really can not stand chicken noodle soup. That and the brat diet is what I lived on for 6 weeks. I was off work for those 6 weeks also. What I feel that truly helped me to get over this is that I have a friend from church that I have known since I was a child. She is an RN and a nutritionalist ( can’t spell lol). She is doing the natural oils instead of conventional meds. She brought over this doTERRA natural oil called Digestzen. It worked wonders!!! After 2 days of 3-4 drops on my tounge 3 times a day and rubbing 5-6 drops on my tummy the same amount plus drinking lots and I do mean lots of water the running trots stopped!!! Could not believe it. Once it stopped I started taking pro-biotics and was doing good till about 2 months ago, I had stopped the pro-biotics due to lack of funds… came back. I still has a little bit of the oil so I tried it again and it worked again!!! Within a day the diarrhea was gone. Still had some tummy discomfort but after 3 days it to went away. I now try to watch what I eat and now that I am back working have probiotics on hand and take them daily and will keep the oil on hand too. I really feel that my friend most likely saved my life cause I was headed back to the hospital. Now my greatest fear is that it will come back full force and the oil will not work.
    The question that I have is that due to having c-diff, how bad does it affect your immune system? It seems that after having it I keep getting colds.Thanks for your time.

    1. Hi Sheryl! Thanks for posting – I’m sure everyone who has seen your post is probably trying to track down some of that doTerra Digestzen oil!!! Thank you (and please thank your friend) for giving us a new lead in C.Diff-symptom treatments.

      In response to your question: C.Diff definitely does a number on your immune system, both in the initial infection and in any relapses. As I understand it, any severe infection will tax your immune system to its limits. That’s why our bodies need the help of antibiotics and other medications to help our systems fight off and kill the C.Diff bacteria. But taxing your immune system to its limit is harmful in the long run. Our immune systems can have ups and downs just like all of the other systems in our bodies. When our bodies fight C.Diff, there’s even more at play than our immune system just trying to kill a bacteria. As you many know, this is because C.Diff creates its own toxins (known generally as toxins A and B). These are called toxins for a good reason – they are toxic to our bodies. So our bodies are not only trying to get our immune systems to operate in overdrive to fight a very serious infection; at the same time our bodies are also operating under the additional stress of dealing with what is essentially poisoning, from the toxins that are being produced in our intestine by C.Diff. Talk about a double whammy, right?!?

      This is also why too many of us lose the battle with C.Diff. It can take the healthiest body and utterly destroy it.

      So it becomes very important for those of us who win our first battle(s) with C.Diff to do everything we can to balance and cleanse our bodies when we are recovering from the infection. There are many ways to do this using our bodies’ own natural processes. Something as simple as sweating in a sauna, hot tub, or hot bath with some epsom salts may help – just be sure to really watch your heart rate and drink plenty of cool water. There are also a number of plants and herbs that are said to bind to toxins in the body and help our bodies to expel them (I have only tried a few of these): Licorice plant, Galla Chinesis, Honeysuckle flower, Ginko Biloba leaf, Dandelion, Rhubarb, Isatis plant, Forsythia Suspensa, Lonicera Vine (aka Japanese Honeysucle). A good rule to remember when taking herbal remedies is to always consult a licensed naturopath or practitioner of alternative medicine when you plan to start an intense anti-toxin regime. You want to make sure the herbs you choose mix well with one another, and you also want to make sure they mix well with any prescription medications you may be taking (ask your pharmacist). And remember, “anti-oxidant” is not the same as “anti-toxin”.

      Another natural process that has a big effect on our immune system is light cycles. Our bodies like a fairly equatorial rhythm (12 hours light, 12 hours dark). So when the sun is up, open your curtains wide and soak it in! If your area has a lot of rainy days or if the sun is weak in winter, I’d suggest investing in a LightBook. This is a small device that emits full-spectrum light, and is engineered to emit light in the blue and green spectrums – just like sunlight. Regular lightbulbs, or even full-spectrum lightbulbs don’t do this. If you have a lot of “light pollution” at night from street lamps, etc., be sure to buy blackout or well-lined curtains to put in you bedroom (even if you already have horizontal or vertical blinds). A comfy eye-mask to block out light can help as well. And don’t let yourself fall asleep to the light from a tv – set the sleep timer so it turns itself off within 1/2 hour of your falling asleep. You want absolute dark. Put a night light in the hall and bathroom for nighttime trips to the bathroom, and use these instead of the overhead lights. You’ll fall asleep again much faster, and more deeply if you limit your light exposure. This makes sure that you enter the deepest cycles of sleep, which is when your body heals the best and your immune system recharges.

      And of course, eating a balanced diet (or as balanced as your body will let you) low in sugar and processed foods means your immune system can give more steam to fighting off viruses.

      I hope this helps! All the best,


      1. LP,
        Thank you so much for the information, I really appreciate it. I am working on the “diet” part lol think that is the hardest.
        Wishing you and all good health!!

  45. Hey,
    I’ve never heard of C.Diff until today. I am an Australian Nursing student and am currently doing an assessment on a case of another person who had this condition. I will defiantly keep C.diff in mind when I am at work and at uni with my patients and rise awareness. I wouldn’t wish this infection in my worst enemy and am truly sorry for everyone who developed it. God bless 🙂

    1. Thank you so much, Ashley!!! We need more people like you in the medical field! Keeping C.Diff in mind will also help to protect you and your family from an infection as well – nurses are always at risk, since you work in a hospital setting. Best of luck in your studies, and feel free to ask me any questions you might have that could help you in your assessment. 🙂


  46. Im a C Diff survivor too. Had it not been for my research in medical research i would have not found this out, but i: only curable 30% with antibiotics. You guys will never get a positive test result so getting a f transplant is not allowed, only when you test positive. I got desperate, did a home f transplant w my mom, she was already screened as a doner, it was gross, but it worked. Look for f transplant on YouTube and DO IT. All of my isses stopped when I did it just after two times. I was able to take antibiotics for two months and my stomach almost went back to normal on CIPRO for a bladerr infection. Now that Im off CIPRo, I have profuse head sweats and can no longer sleep. My doc is gonna make me do an array of stool tests, then after Im done Im gonna give myself another one……and will every month if I have to. Dont let the FDA and doctors hide this from you, F transplant is the only cure, you can do it successfully at home, and even so….you might still have colitis, but i think if you stay off antibiotics ans do f transplants you should be okay…….I was scared to death of ever having to take antibiotics again. You guys all need to train yourselves on how to do it, and do it the correct way with a screened doner.



      I would advise anyone considering an at-home, d-i-y fecal transplant to be very, very careful. The stool you would use would have to be pristine, bacterially-speaking. A lot of people carry harmful bacterias like E. Coli, Salmonella, Giardia, etc., without ever experiencing any symptoms. They can also carry parasites. Someone who has has no “bad gut” symptoms ever can still pass these bacterias and parasites on to you. And since your C. Diff-y intestines are already inflamed, infected, and raw, there’s a good chance these bacterias could easily take hold. Then you’d be dealing with two or three deadly bacterias instead of just C. Diff., which is bad enough. In fact, I’d wager that a bad stool transplant could kill a C. Diff. sufferer, or at least cause the loss of their colon.

      I know that a medically-administered fecal transplant is a procedure that works, and that it’s had a lot of success in C. Diff. cases where it’s been administered, but I really think there is a high risk that doing it yourself at home could go wrong. I’m very glad it worked out for some posters on this blog, but from what I understand about the nature of gut flora, I’d be very worried that success would be an exception, rather than the rule. Without the resources of a testing facility, there’s no telling what is in the stool you’re transplanting. Also, for someone in the full throes of a C.Diff. infection, I have no idea how you would retain the stool for any amount of time for it to be effective.

      Please consider all these factors before taking such a risky step.

  47. Hi everyone.Just giving you a update on my mom. who had c.diff..
    So far she is over the c.diff. She is eating well .No more diarrah or running to the bathroom 7 times a night…she was diagnosed with c,diff sept 6th….she is off her meds now. and so far so good…Iam still giving her small amouts of endure to keep the vitamins in her.She has been eating prtty much what she wants…preety amazing for a 76yr lady… can look at previous post that I posted….I think she was very very lucky to recover so quick. her doctor could not really believe it either.he told me I don’t know what you did other then the medicins decribed. but to keep doing what ever I was doing……fruit mom is now yougart out lol.but it worked I believe. good luck to everyone with c.diff.keep praying.
    steve hobbs

  48. Hi,

    I have a 22 year old daughter who is quadriplegic, spastic, non verbal, has very severe scoliosis, (over 95 degrees curve), J-tube feedings all due to a severe lack of oxygen at birth. The condition is called Spastic Quadriplegic Cerebral Palsy. She requires 24 hour care 7 days per week.

    She had an extremely high risk surgery June 28, 2013 to surgically close her G site (the opening in her stomach that you run a tube into to feed her) in her stomach as it leaked hydrochloric acid onto her skin and severely burned her to the point where she had screaming episodes from the pain every day 5 to 10 times per day. IT WAS HELL!!! for nearly 9 months. After trying everything to stop the acid from burning her, we finally had to succumb to this extremely high risk surgery on June 28, 2013. We put a new hole in her jejunum (small intestine) for J-tube feedings. She is doing well with that. However after her surgery at Toronto Western Hospital on June 28, we learned at a later date that she picked up c. difficile there. She is 52 pounds now and I feel that I am slowly losing her. She has lost a total of 17 pounds.

    She was in York Central Hospital for 2 weeks July 21 to Aug. 1, 2013 with severe cramping. It was there that they diagnosed her with c difficile and she was put on vanclamiacyn at the hospital and flagyl -2 full rounds already. I also have her taking Florostor to replace the flora in her bowel. We put the Florastor thru her J-tube which goes directly into her jejunum. Before leaving York Central Hospital, we were told that she was rid fo the c-difficile due to testing of her fecal matter. I have had her at home since August 2. She was doing well until we took her off the flagyl. The cramping and all the noise in her stomach started up again. Each time we put her on the flagyl, it helps but after 5-7 days off of it, she gets really gassy and seems to have discomfort in the abdomen area. She cannot tell me where the pain is as she is unable to speak. She is hollering in pain right now and I am losing my mind–at wits end. Her stomach is gurgling like crazy. She has not had a normal BM since June 26, 2013 and she currently has one loose movement per day. She has been off Flagyl now since last Thursday, September 19. She was doing alright off the flagyl until 2-3 days ago. Now she has a low grade fever of 38 degrees celsius and I am concerned that even though there is no diarrhea, she has c difficile again. She has been through so much all of her life and I am afraid that I am losing her. Doing my own research, I learned that PPI’s help c-difficile to flourish so I just took her off of Pantoloc about 3 days ago (she had been on it for about 10-12 years) as I hear that PPI’s (proton pump inhibitors–drugs like pantoloc thats purpose is to decrease stomach acid) assist c-difficile in propagating. I am feeding her peptamen 1.0 at 5 containers per day to keep her caloric content up at 1250 calories per day. Can anyone please help me or give me advice?? Will this ever end? Thank you. Her mom, Heidi

    1. Hi Heidi,

      So sorry to hear what you’re going through. It’s so hard to watch a loved one suffer so much – I have a younger sister who has a serious brain injury, so I know a little about what you’re going through. I hope your daughter’s gastro appointment goes well.

      My thanks to Rhonda – she gives great advice!

      Two things I was wondering: first, are you giving your daughter her pre- and pro- biotics at least two hours before or after she gets her antibiotics? It’s important to space them out, or the probiotics will be ineffective. Second, is there any way you can increase your daughter’s caloric intake? People who have a greater starting weight and consistent caloric intake seem to do better with C.Diff. Is there a product that is more calorie-dense that you could give her through her feeding tube? This would spare her some of the pain she might be experiencing due to the need to eat more frequently. Also, how is her body coping with hydration? I found that a major source of pain relief for me was simply getting iv fluids into me, and getting as hydrated as possible. It really did reduce the pain. The only thing to watch (if she does recieve this treatment) is to make sure the fluids are warm – with her fever, she’ll feel too chilled if cool iv fluids are administered.

      Is your daughter on any pain meds? I found buscopan to be really helpful. Ketorolac and buscopan together really made a difference. Buscopan is a prescription smooth-muscle relaxant, so it releives the cramping and spasms in the digestive system. Ketorolac is an anti-inflammatory, so it relieves all the inflammation within the digestive tract, which itself relieves pain as well. If it would be possible for a doctor to prescribe these medications for your daughter, she might find some satisfactory pain relief. To the best of my knowledge, both drugs are fairly safe. Of course, it’s best to check out any possible drug-interactions with your pharmacist.

      I hope things get better for your family soon!!!

      -All the best, LP

  49. Heidi–
    My heart is breaking over your story. I am so very sorry that your daughter has to experience this c-diff hell on top of the other devastating physical issues she has. I can tell you that if it was me, I would go to a clinic where they can use that newest super-sensitive testing on the fecal matter which will tell 100% if she is free of it or not. It is very common for c-diff to be followed by occurrences of loose stools and some stomach rumbling, etc., as it takes a while for the system to get back to normal, but if she is crying in pain, there is something wrong. I am not a medical person, but I hope they are checking her for the damage that c-diff can cause to the intestines. She could have major issues with her colon. Also, as I have said time after time, it is VERY easy to pick up c-diff again because the spores live outside of the body for a year! The slightest contamination of any surface in the house can reinfect again. Since anti-bacterial sanitizers will NOT kill c-diff, you must use bleach or something like Hibiclens, which is a surgical scrub, to wash hands, etc. If it were me, I would find a place with the new testing and maybe insist a different GI or Infectious Disease doctor looks at her. I said a prayer for you both and will send more. Take care! ~Rhonda

  50. Thank you so much Rhonda for sharing with me this info. We did see her doctor yesterday and sent another fecal sample into be tested. She also has a lung infection now as this is flu season so we have her on amoxicillan–1/2 teaspoon 3 times per day which is 1/2 of her usual dose. She also has a continual low grade fever and is uncomfortable. I will look into what you have shared with me above and she will be seeing a gastroenterologist the first week of October. Blessings to you Rhonda. Heidi

  51. Dear Ladyprimal,

    First of all, thank you for your informative response.

    Regarding probiotics, Angela gets them 3 hours after she has her antibiotics. I am aware of the contra-indication with Florastor (her probiotic) and flagyl and amoxicillan being given at the same time, hence the 3 hour wait.

    She is on 5 ml. of amoxicillan since September 28 as she now has a lung infection and she just started flagyl again today after 2 weeks off of it. I had her stool tested again on Sat. Sept. 28 and today the doctor called me to tell me that she is positive again for c difficile. She is not doing too badly with pain today considering this diagnosis but I suspect it was hiding somewhere in her body through-out the entire treatment (in the hospital,–vancomyacin) that started July 20. 2013. It has reared its ugly head now that the flagyl as of Sept. 28 was completely out of her system. Today for the first time in a few weeks, she had 3 loose bowel movements instead of her usual one loose stool so things seem to be getting worse. I do feel that we are losing the battle. She has been sick since Oct 6 of last year and it is nearly 1 year now so……and also her severe weight loss of 17 pounds as she is now about 51-52 pounds and skeletal.

    She once took a formula through her G-J tube called Peptamen 1.5 which was 375 calories per container X 3.5 containers per day totalling 1312 calories. She can no longer tolerate this rich formula and gets extremely gassy so now she is on peptamen 1.0 which has 250 calories per container. She receives 5 containers per day which is 1250 calories so her caloric content is good. We also hydrate her with between 1000 to 1200 ml. of clear filtered (Nikken with the stones) water per day so her water intake including the free water in her food (213 ml of free water in 1 container of food) is between 2065 and 2265 ml.

    Regarding pain meds, in the hospital when first diagnosed, she was on hydromorphone. However, at home, I give her 500mg. of extra strength tylenol. It helps take the edge off but at night, she can experience a lot of discomfort. I find that she is very gassy and burping a lot. I sit her on my lap very frequently, sometimes for about 4-6 hours in total per day. She burps really easily on my lap and interestingly enough, she hardly complains on my lap but she will get pressure on her hip or leg if sitting on my lap for too long so I have to reposition her often. She may tolerate 1 hour on my lap at a time and then I have to put her back in her wheelchair or the bed.

    We are seeing her doctor October 3 at 2:30 p.m.(tomorrow) and I will show him your comments about the Buscopan and detorolac. I have never heard of them before but I am willing to try them for her pain control if you and the doctor feel it is worth a try.

    I am a person of strong faith in God and we have had her 22 years longer than her initial prognosis just after her birth (we were told she would not likely make it to the weekend). Here we are 22 years later. As much as I want her to be healed AND COMFORTABLE, if this hell for her continues, I will be at peace (as at peace as a mom can be losing their firstborn child) if she ascends. She is such an innocent, pure and loving little Angel, hence her name Angela. If you knew the story surrounding the decision to have her, you would get goose bumps all over your body and be in awe. God works in very special ways.

    The bottom line for me is that SHE IS COMFORTABLE AND NOT IN PAIN.

    Blessing to you for this site and for all the special souls that share their stories here. I have learned a tremendous amount here, far more than the medical establishment has shared with me and I am grateful for all the stories, experiences shared and insights.

    Sincerely, Angela’s mom, Heidi

  52. Hello again Heidi–

    I am still praying for you and Angela.

    I just wanted to mention, since you brought up the Flagyl, that it is usually the first course of action, followed by oral Vanocmyacin, and if the c-diff is still there after testing, thn they go with the Vanco with a taper, followed by Xifaxin.or Rifaximin. The best Vanco taper is found to be: 125mg caps: 4 x day for two weeks; then 2 x day for one week; 1 x day for one week; every other day for 1 wk; finishing with 1 every three days. For the first two weeks you must take it every six hours.I took it exactly every 6 hours. After the Vanco is gone, then they hit you with the Xifaxin.or Rifaximin.

    The reason for the taper is that when on any of these meds, the spores are constantly reproducing, so if you do not go a couple days without the meds to allow the spores to grow fully and THEN hit them again (over and over), you CANNOT get them all. Once you have done the treatment as shown above, if you still have c-diff, the only course of action to be sure it is gone is the fecal transplant.

    I was told by the infectious disease doctor that going back on Flagyl (Metronidazole) once you have been on Vanco, is useless–it is too weak–because the longer you have c-diff, the stronger the strain grows. It is the same if you get it a second time.

    I hope this info will help you too when you see the doctor. Surprisingly, a lot of doctors simply do not understand the treatment that is best. Had I not researched and told my original doctor EXACTLY how the taper should be, I might not ever had been cured by the meds.

    My infectious disease doctor was so surprised that I knew so much, but happy that I did. I think with c-diff, education about the disease and recurrence issues is as much a part of the battle as are the meds.

    Your daughter Angela, soes indeed sound like a sweet “Angel” who has fought a long hard battle against so much all her life, and I admire your attitude about the blessing she has been to you. I never doubt that God knows what He is doing, so there was a very good reason he gave you your beautiful daughter. Praying.


  53. Hi Rhonda,

    You are right on the mark and I trust your knowledge. I spoke with Angela’s gastroenterologist today and just like you said, he wishes Angela to visit an infectious disease specialist (D. Danny Chen) at York Central Hospital in Richmond Hill, Ontario. He spoke exactly about the tapering of the meds as well so.. and this was the first time I had heard of that. Also, I would consider the fecal transplant for her if necessary. Unlike many people, I do not find it so horrible if it cures her of all the agony, etc. I would do it myself if I had to. There is an article (coincidence???) on Yahoo by The Canadian Press–Helen Branswell titled ‘Poop pills successful at treating C. difficile but not ready for mass production.” Check this article out if you can and I would urge anyone else on this site to do the same thing. It makes fecal transplant much more attractive. Bless you all again for your help and thank you. Heidi

      1. Hello Lady Primal,

        Finally, after a whirlwind 3 months, things are finally settling down. My beautiful daughter, Angela, passed over on Feb. 21, 2014 unexpectedly. She appeared to be getting better but then suddenly left us. I am at peace overall with her passing as she is now dancing with the angels amongst the stars and I know that she is out of the sheer hell that she was in since October of 2012. She was just short of her 23rd birthday which would have been on April 10. We still have not received the autopsy report as to the cause of her passing but I have my own very clear ideas as to what caused her passing. C. Difficile is definitely lethal–it does kill people, especially the weak and the vulnerable. One of our care givers for my daughter also picked up this horrible infection. I feel blessed not to have picked it up myself considering I often was in contact with the fecal matter. Now, my dear baby can rest and dance in peace. Blessings to all of you who suffer and work so hard to share your private struggles on this site. Thank you. Heidi

        1. My dear Heidi, I`ve only just read this after catching up on the posts I missed while I was away from my blog for several months. I`m so, so, so sorry that Angela passed on. I know the loss you feel must be tremendous. You are absolutely right – C.Diff is lethal, and hellish. I am sorry one of Angela`s caregivers also contracted the disease – I hope she is recovering well. I believe that Angela has passed on to a place of peace, health, happiness, and wonder, and that you`ll see her vibrant and healthy when the time comes for you both to greet one another in the afterlife. Thank you for sharing Angela`s story with us – I know it has meant the world to me. Bless you.

  54. Oh trust me, when you have c-diff, if you had to I think you would do anything to rid yourself of it. It is horrible. I have had many serious issues in life from surgeries to cancer and am currently living with four herniated disks in my neck which make life very hard, BUT still, the c-diff was the worst because of how quickly it can kill you if not treated! Not to mention maybe losing your colon, etc. Yes, I know all about the :poop pills” and would not find them offensive at all. They have been in the making for some time. Wish they would hurry and get them to market–although the US is always the last to approve any meds. *sigh* However, the fecal transplant is done both ways–the colonoscopy approach and through an NG tube down the throat and they say there is NO taste or smell that way so it is not unpleasant (other than the acky tube). My eldest daughter, who is super healthy, was all set to be my donor for the colonoscopy route, just as I finally rid myself of it. I pray the ID doctor will be able to better treat Angela and you can rid yourself of this horror. I am still praying. ❤

  55. I barely survived C-Diff a few years ago and wouldn’t wish it on anyone… Very sad to hear how many people die or are left changed for the worst after infection. The biggest help for me was using a product called Florastor because it is a yeast based probiotic so when you are on antibiotics to treat the C-Diff it still works. Other probiotics helped after but I think using Florastor while on antibiotic treatment was critical for me. I ended up needing the expensive antibiotic as the cheap one didn’t work at all, but even then I think without the Florastore I would have been screwed. I was researching like crazy as I really felt I was close to death and I hope this helps!! Aloha, Brett.

  56. Have you heard of a new procedure that some hospitals are doing called fecal transplant? It’s where they take good bacteria from a donor and place it in your gastrointestinal tract. I heard it does wonders for C diff.

  57. My dad died October 12 from c-diff. I had never heard of it till then. Like all the other stories I’ve read, he was on an antibiotic for puemonia & then c-diff took over. He was very frail & weak so he wasn’t able to fight this horrible disease. I’ve started having terrible pains in my pelvic area, so now I’m scared I may have caught it from him.
    You all are very strong to keep fighting c-diff & hopefully they’ll discover a medicine to kill it once & for all.
    Prayers to you all.
    RIP daddy

  58. My son contracted c diff at the age of 4 years old while being treated for ALL Leukemia at a Boston hospital he is 11 years old now and still has to wear a pullup from complications his colon pretruded thru his rectum splitting his sphinxter muscle . We have seen every specialist we could find and now there is not much more they can do for him. His options are a colonstromy bag or daily enemas to flush him out . W e are trying to get a case against this hospital and only have 15 days left before 7 years run out if we cant We would like to join your class action suit.

  59. I too am a C-Diff survivor. As I type this I am sitting in the emergency room with my 25 yr old son who has battling this nasty stuff for the last 6 months. In the last month he has been hospitalized twice. And I am pretty sure that he will be readmitted yet again. he has been treated with vano pills, liquid and enemas. Nothing seems to work. Drs have talked of the recall transplant but are still undecided if it would work.

  60. Wow- i actually have tears in my eyes reading your story..I am 52 yr old male that has never ever been sick in my entire life until the past 4-5 months. I had a hernia surgery on June 18th of this year and my body is not right. Within the 1st 5 days I called the surgeron and explained how I felt….Mr. Wolff everything
    you have describe is normal after surgery and you had a very large mass removed. Fast forward some, I was complaining of the same symptoms which were: my entire body aches, very bloated, gas, major diarrhea, appetite extremely odd, absolutely no energy, headaches, n a back ache which has progress. I also so angry at the entire world i drove myself to the ER. They take blood work,urine sample, exrays , and a stool sample…..NOTHING…but I’m miserable with all the symptons I’ve said above n add 12-15-21 trips to the bathroom every day…its sad to say but my toiet n me are best friends. I explain this to my Doctor, my parents, my friends, and that sad thing to say… one believed me except my parents. Its a horrible situation when I have never been sick in 18,980 plus days now but my last 130 days is exactly sir…what your personal story above. So as they did to you, they did to me. I had a colonscopy 3 weeks ago yesterday and guess
    what….nothing….I called there office a week ago on Monday and said ” I’m telling you people I am dieing a slow death” n describe again the same symptoms from day 1. I guess I scared the nurse and they told me to go do blood work n stoll test n called Halloween day….isn’t that ironic and said Mr. Wolff you have C-diff….what the heck is that? My words about the most brutal viceous bacteria a person can have. I’ve been on metronidazole-now for 5 days n my diarrhea has ummm say controlled but I feel absolutely horrible….I’m so dam depressed n my body is so beat up…I feel like I’m lost and no one cares….really …somehow I came across your story sir and the many others that have posted on here and-at last I’m not alone anymore. I loosing faith , and during this time I lost my mother last month, here come the tears…she was my best friend and she was a very sick lady for years but she always made you feel better even if you don’t. I’m sorry I can’t see because of my tears but I THANK YOU SIR FOR PUTTING YOUR STORY OUT THERE N ALL OF YOU THAT HAVE POSTED – BECAUSE ITS HELL WHEN YOU THINK NO ONE IS LISTENING!!! Thank you so very much,
    I am,
    Carl E. Wolff, III
    Email address:

      1. Hello L.P., and all of us who unfortunately are in this nightmare club of C-diff survivors. I’m coming up one year here at the end of October ’13 being diagnosed with C-diff, but I am not the same I was since my hernia surgery June ’13 and I’m asking anyone who has advice to please share your thoughts n comments to help me. I am glad to say the Flagyl did put C-diff in its place but I still feel like crap! And as we all know the doctors really don’t send you in the right direction but I am doing good, but I still have no energy, still feel like I have the flu like symptoms and my bloating is down compared where I was. I have tried Probiotic’s, vitamins, etc.but my body is just not the same. And of course everyone around me are sick of me saying that I don’t feel good, so I’m finally reaching out to anyone with suggestions. …..I watch everything that goes in my body, and drink water like crazy, but every morning when I wake up…I feel like a 100 year old man trapped in a 53 year old man. …the hardest part of all this that I was blessed by God to have great health til this horrible bacteria. ….if anyone has any positive thoughts, suggestions, please contact me below! I wish all of you good luck, keep your head up, and keep fighting! ! Thank you for allowing me to vent,
        I am,
        Carl Wolff

  61. Looks like it open it posted for me…. I am also a c.diff survivor although I do not think it has ever went away even tho i have tested ok. Mine started late 2010 early 2011 and went on until Sept 2011 when i tested ok after numerous rounds of flagyl vanco and dificid in and out of er for fluids and one hospitalization two colonoscopies and a upper gi scope. Its been 3 years now and I have yet to see a solid bowel movement always water and the smell is still there dr just says IBS-D. Just had a cbc done as i also have been diagnosed with fibro and they are testing now for ms white cell count was slightly elevated at 13,900 and as they look back over my history it has always since cdiff bout been slightly elevated urrr probably never got rid of it. Makes me so angry that they do not tell ppl when the prescripe these antibiotics just to take a probiotic the dr will no longer give me oral antibiotics if I get sick with something I always get a shot so it by passes the digestive track. Horrible moster of a disease !!! I have to take a new sample in to be tested on monday we will see if the ugly cdiff monster is raising its head 😦

  62. I was told this morning that I have C-diff. I am a 31 old healthy, in shape male that has never had a surgery and or been on antibiotics or in a hospital environment for over a year (I think I got it through food) . I woke up 3 weeks ago with bad diarrhea and a cramping stomach. I went to the hospital 2 days after it started for dehydration and they told me that I must of contracted a bug. I called my family doctor and asked them to prescribe me antibiotics just to make sure I did not have bacterial gastritis. They prescribe Flagyl and it didn’t work. I had to call my GI doctor and ask for a stool test and it was positive for C-diff. He said “You have a bacterial infection called C-diff and I am going to put you antibiotics (vaco).” No further explanation was given. As I do my research I am discovering the seriousness of this disease. I have tried multiple times to contact him back with no response and it is driving me crazy. Today was the first day that I have had a normal stool and I feel normal (prior to the antibiotics). My concern is my family and the possible long term affects. How long did most of you have it before it was detected? Is my family at risk? I am sorry for all who have gone through so much pain and I will have you in my prayers.

    1. Hi JoJo,
      I had C.Diff. for around five months before a doctor finally thought to test for it. During those five months, I saw my GP numerous times, my haemotologist three times, and several ER docs during different visits to the ER. One of the ER docs finally tested for C.Diff. and caught it. During these five months, I was living with my family. None of them caught it. We did have three bathrooms in the house, and I usually only used one of them, while other family members preferred the other bathrooms which were closer to their rooms. This may have helped to keep them from becoming infected. I also have always used really good handwashing techniques, so that protected them as well. The possible long-term effects of C.Diff. may not hit you too badly if you have only had the infection for three weeks. It seems the longer we have the infection, and the more drug-resistant the strain of C.Diff bacteria is, the more likely we are to have long-term effects. I know having C.Diff for any length of time can be terrible, but you are most likely at a much lower risk for long-term effects, and a lower risk for infecting your family than someone like myself was. Clean your bathrooms very well with bleach, keep washing your hands well, and try to re-establish good intestinal flora with prebiotics, probiotics, and whatever else you can get your hands on. We’ll be praying for you too. All the best…

  63. I went through the C. Diff nightmare last January. I will never forget it! I am so sorry for you, its so horrible and disabling.

  64. HI all, I have not read through all the posts yet! But, I to had C Diff back in 2011, my life has never been the same, shortly after contracting C Diff from Cipro, I was placed on Flagly between those two, I felt I was being poisoned.. Fast forward 19 months forward I have gotten better, but, I am far from being well, not a day goes by that I am not sick, in pain or having terrible anxiety due to all of this mess. At first I tried to voice my feeling to the doctors that the medicine had hurt me, they did not listen and said it was not possible, so then I kept telling them it was the C Diff, they said impossible, so 19 months out they suspect Pots Syndrome and ANS, but are unable to confirm it, I have had almost every test under the son, everything comes back normal, recently I got on the Cipry Toxicity sights and started reading hundreds of people who have been hurt by this drug, I share all he same symptoms, and frustration as they do, I have no doubts I have Pots or which is an Autonomic Dysfunction, I know the C Diff was very bad, but, I think no one is paying or wanting to pay attention to what the drugs did to me, and continue to do, as everyday I struggle with terrible GI Issues, pain of all sorts, low BP, dizziness, neurological problems on and on it goes, there are times I become angry at what has happened to me, I do not have answers, only something for everyone to consider, maybe it might shed light or offer some help to someone.. Thanks for reading — I can be emailed at

    1. Thanks Helene – the Flagyl (metronidazole) felt pretty toxic to me too. I had to take through IV for around 40 days, and it kept making my veins swell shut and/or blow out as it went into me at the IV sites. I’d have died without it so I’m glad it was available to me, but I never really considered that it might have really long-term side effects. Thanks for bringing this issue to light.

  65. Hi, I just wanted to thank u for your story and lend my support. I too have been there, sicker than I have ever been in my whole life thanks to levaquin to treat a postpartum infection. I had it for 6 mths til I finally did a fecal transplant at home and cured myself. It has been 3 yrs but I have it again now due to prophylatic surgery abt. I guess I will just do the transplant again, I can’t see any reason to mess with the abt again!

    1. Hey DH – if it works, it works! I always promote hospital-administered fecal transplants because C.Diff survivors have less chance of contracting something else from the transplanted stool, but I do understand that for some people, DIY at-home transplants have saved their lives and prevented some serious damage. Check back in with us and let us know how you’re doing… All the best,

  66. Hi Everyone!

    Just wanted to apologize for the delay in my response to your posts and comments. There have been two deaths in my family recently, very close together, and the sadness of that has combined with my usual fatigue and has resulted in my getting behind in replying to posts, comments and emails here on my blog.

    Thanks to all for continuing to post, and for encouraging one another. I hope everyone has a happy holiday season!


  67. Since the spores live for a year outside the host, you can contract c-diff from bathrooms, shopping cart handles, menus, door knobs, etc., if touched by someone with c-diff who did not wash well with soap and water. Remember that hand santizers will NOT kill c-diff. I carry special hand-wipes in my purse, as well as a small bottle of Hibiclens to wash with in restaurants AFTER toucing the menu and ordering my food, after shopping, etc. So, you do not need to be in a hospital, on antibiotics, or anything else to get c-diff. Antibiotics usually just alert you to the fact you DO have it once the “good” bacteria in your tummy is killed off by the antibiotic and the c-diff can rage full force. Good luck in your c-diff fights.

    1. I CANNOT TAKE THIS ANYMORE, four months, and now possibly waiting on fecal implant, but scared of that and cramping is terrible. Just beside myself and scared….. all I want for Christmas is to feel like myself again……

  68. Thank you for telling your grueling experience. I contracted C. diff from a shared bathroom at a local nursing home where my mother was recuperating from hip surgery..she contracted it as well but it wasnt discovered until the day she got home.
    Having been a medical profession Id notified staff of the filthy conditions and characteristic C. Diff smell in there.
    My mother has been hospitalized many times for it and has nearly died several times.
    MY case has never been diagnosed despite three trips to the er..and having excrutiating debilitating pain and copious white pus eminating from my bottom.The er stated that since I wad unsure whether the pus originated ftim vaginal or rectal area and I was able to walk they let me go. This kept recurrinh until I couldnt hold food or water for weeks. I almost died but provided myself eith the bedt supportive care I could.
    Neither nurding home nor er took any redponsibility. I have many other illnedsed and several gi hell.
    Had to wait til the pus subsided for ea er visit so used my own sterile cuo for stool sample.the doctor wouldnt accept it as it wasnt in a cup from their facility!
    My gi doctor was away at a conference, when he returbed he had no words for the er id been to it was so horrendous a story..Subsequent C. Diff test were neg. But i can only privide samples tainted with urine due to my problems.
    I must use my entire SSU disability check for nedications and probiotics MA Health wont cover..enuff said, Im very tired and ill..Keep talking and god bless.

  69. Hello everyone! I also suffered c-diff in 2011 after taking a strong dose of amoxicillin. In 2008, I lost both of my parents to cancer and also lost my grandmother in late 2007. I spent a lot of time in various hospitals and my mom had also contracted c-diff when she was in the ICU, shortly before she passed away. I remember that each time we went to see her, we had to wear gowns and gloves, then wash our hands thoroughly before leaving her room. At the time, i don’t remember the hospital staff fully explaining the risks of the infection to us. We believed that the extra precautions were to protect her from being exposed to germs, bacteria, etc. but now understanding more about c-diff, i believe the extra precautions were to protect us as well. About 6 months later, I was back in the same hospital for my own surgery (an excisional biopsy). At the time when all of this happened, I was 35yrs old. Being the oldest of 8, with one sibling just starting her 2nd year of college and the youngest still in high school, the next 2yrs were a flurry of stressful times as we all adjusted to the new normal and got through the business of cleaning out and selling both my grandmother’s and my parent’s house.
    A month after settling on my parent’s house, I recall one evening when I started to feel like something was off. I could feel myself getting sick but it was a combination of dizziness, nausea and a slightly sore throat. When I woke up the next morning, I had a raging fever of 102 and throughout the day, I developed chest congestion and an awful cough..and my stomach also felt unsettled. The doctor put me on a high dose of amoxicillin for 1 wk. After finishing the medication, I started to experience wretched stomach cramps and endless diarrhea. I say diarrhea but at some point, the actual poo became very “clean” and seemed to be mostly mucus with that distinctive c-diff odor. I was so exhausted, drained.. was turned off to almost all food and any time I did manage to eat something, I was running to the bathroom within minutes. I knew something was very wrong when I found myself craving fast food french fries (I rarely eat fast food and tend to cook at home most) and then doused them in salt (I never add salt to my food). Within minutes of eating a few fries, I was running to the bathroom again. This went on for 18 days until finally, my doctor ordered a stool test and the results came back indicating I had c-diff. The doctor put me on Flagyl and I’m thankful to say that, for the most part, it helped stop the endless diarrhea. For the year following the Flagyl though, there were many times when I continued to have mucus in my poo, would feel flare ups of the cramping and slight c-diff odor. I started seeing a GI doc and had a colonoscopy done…though this was at least a year (if not more, after my initial c-diff infection. The GI doc took several biopsies and said my colon was clean of polyps (which was good to know as my dad passed from colon cancer at age 62). She did speak with me about post-infectious IBS, which I seemed to have and still have. She was also very honest and said that little is known about curing IBS and there are only a few drugs that work. She said that after treating a patient in the hospital with Flagyl, Vancocin, or other drugs for c-diff, generally she wouldn’t recommend ordering a stool culture test to determine if c-diff is still present because chances are, the test will come back negative but in another week, it could be positive again. She said that at any given time, patients can test negative then could take another test days later and come back positive. She has told me that if I experience symptoms, I should let her know and she will prescribe flagyl for me…since it seemed to work somewhat positively for me before. I also see her every 6months for a checkup, as I am still struggling with the IBS and my vitamin D level was at 10 a year after the c-diff so she has me on 2000mg of vitamin d per day and monitors the progress with that through a blood test every 6months. I will be seeing her in February and already have a list of questions for her as I have also begun to experience avid reflux and times, along with the occasional stomach cramping and IBS symptoms. .

    One of my biggest questions and concerns right now…and what I have been trying to find answers to here online…is whether being around someone who currently has c-diff could increase my chances of relapsing into another case of severe c-diff. My coworker is presently being treated for c-diff and I’m very nervous & anxious about the possibility of being exposed to the c-diff spores and relapsing. Does anyone know if being around someone who is currently going through c-diff can increase our chances of relapse? She already did a dose of Flagyl in the hospital and I believe she said she’s now on Vancocin but she is still experiencing some diarrhea and rectal bleeding. (She says she has hemorrhoids that have flared up due to the c-diff infection.) I have experienced more diarrhea than the usual that I experience with IBS, in the past few days. Part of it could just be from anxiety or that I’m also getting over a nasty flu bug which I did not take antibiotics to get through….but I am very worried about spending so much time in close proximity with someone who I know has c-diff. Does anyone know anything about the chances of relapse if you are around someone who has c-diff and more exposed to the c-diff spores?

  70. Correction…my GI doc said little is known about curing C-diff…not IBS. I often wonder if I still have minor bouts of the c-diff though. I feel as if my entire body has changed since having c-diff. So many foods don’t agree with me anymore and often have me running to the bathroom. I’ve also found that when I have to go, I better get there immediately, otherwise I’m going to have an accident. That’s so embarrassing to say but yet another change after the c-diff.

  71. Hi all,

    So I don’t have C-diff, but my mom does. She is 57 years old and is on her third round of meds for it and it still isn’t showing any signs of going away. She is taking the Vacolmicin stuff. ( I know I didn’t spell that right, lol). I am really worried about her. We are in NC and she doesn’t have the best insurance. She has Carolina Access which is a form of Medicaid or whatever. The doctors aren’t really talking about doing any kind of other treatment to help cure her. They have also found a mass in her kidney that they can’t look at due to not being able to put her under to look at it because of the cdiff. They have also found a nodule in her lung…and they aren’t even looking into it. 😦 She has really bad anxiety and OCD and it has gotten super bad since she found out she had the cdiff. I don’t know what else to do for her. She is getting worse and looks so bad and I feel the doctors don’t even care. Any suggestions?? I feel like I am going to go crazy. It’s like I am having to watch her slowly die or something. 😥

  72. I too am a survivor, currently back in the hospital with relapse, and while I don’t have it in me to write much at the moment, I do want to say thank you for raising awareness. People who have actually heard of this just think it’s another infection that you treat and then you’re done, but it’s so much more. Maybe soon people will begin to realize…

  73. I had C Diff when I was 22 weeks pregnant. I had huge doses of antibiotics for bacterial meningitis (at 20 weeks pregnant). I think I caught C Diff on the day before discharge from hospital because there had been an outbreak on the ward I was on. I have a beautiful, healthy daughter born at 37 weeks and I managed to breast feed her for 12 months too. I have eliminated dairy, wheat and gluten from my diet. I also follow the FODMAP eating plan. The diarrhoea finally stopped a year ago. The intense bloating and gas continues and is often so severe in the evenings that I cannot sleep with the pain. I have recently cut out all sugar and sweetners. I now eat unprocessed meat, nut butters and FODMAP approved vegetables. I tried an oatcake (homemade) but this caused gas and pain. I tried white rice today and the same thing happened. Prior to these ‘tests’ I had 3 days of absolutely no pain or gas so I am beginning to wonder if I have a candida problem…..

  74. Oh, and P.S. I am a doctor (GP) – and no, my own GP and my gastroenterologist didn’t really help me either….

  75. I live in Florida since may 2013, we moved from KY and i was so excited about moving to Florida. On June 3, i started having diarrhea with blood, end up to the E.R. Next morning went to see a GI Dr that recommend me to do a colonoscopy, i am 43 year old health person.
    I did a colonoscopy and they did not find anything bad, just a small polyp that was benign.
    My diarrhea stopped and i had a normal happy life until November 2013. I had bad bad diarrhea again, no blood, just diarrhea like 10 times a day for 4 days, i thought was something that i ate, on the fifth day i went to the dr again, he asked me for a stool culture where it showed c diff, i had no idea what was that, and just took the medication he gave to me Flagyl. What a horrible medication, lost 10 pounds in 8 days, nausea all day, but no diarrhea, took for 14 days.

    Exactly one week later it started it again, did another stool culture and guess what: positive for c diff again ( second time ).
    They put on Vancomycim for 14 days, i felt much better than the flagyl, but again after one week, everything started it again. Them i started reading reading reading, got so scared, depressed, nervous and could not sleep at all. With kids and no family here ( i am from Brazil), that was very hard to deal with it.

    My GI Dr recommend me to keep the vancomycim for a month now. But one more time after a month i still had c diff. After this he recommend me to go to a a infectious disease specialist and i knew i was going to one of the best place in Florida, Mayo Clinic and i felt safe there. Had a great wonderful doctor that was trying to help me.
    She asked for another stool culture that came back positive again ( fourth time ). she talked to me about about the fecal transplant, and told me to start a taper with vancomycim.
    I did and the bug was still there. At that time i talked to myself, i am gonna die, there is no cure for c diff.

    Now she decide to do the fecal transplant, and i am here wating to make all the appointments that i need too, i think i will do next week.
    Please can someone tell me if u did the fecal transplant?
    I am so sad right now just asking me how did i get this? Did not take antibiotic for 2 years and was not at the hospital, i know it does not work keeping ask, i just want to find a cure for this.
    Thank you so much

  76. Hi there, I was just diagnosed with C-diff 3 days ago and my doctor prescribed me Metronidazole 250mg tablets (two tablets three times a day for 10 days). Does this medicine even work??? For a little over one month I have been having sever upper left abdominal pains (sharp) and throughout this month time-frame I have gone to urgent care four times and one ER visit and one normal doctor visit. The doctors kept saying I was only constipated and they couldn’t help me (one even said I should see a neurologist) They did do blood work on me along with urine testing, x-rays, and CAT scan with dye but only a kidney infection showed (the first week of the pain) so they gave me ‘Cipro’ and even after that the abdominal area was still hurting. I had even asked if my pooh should be tested multiple times but they said no because i didn’t have runny pooh.
    I have had no fever, no diarrhea, just sharp abdominal pains, and slight swelling in that area and the feeling of being full and bloated, and pudding / soft pooh and yes at times even slightly constipated. In my last ER visit the doctor mentioned C-diff as a possibility but I couldn’t give a stool sample at that moment, so in the morning I gave a sample to my main primary doctors office and told them the ER doctor wanted to test me for C-diff and so they took the sample and a few hours later I got a call from my main doctor (nurse practitioner) saying the test was positive. I have never heard of this before and to be honest…I am scared. I have a 5 yr old and an 8 yr old. I cleaned our bathrooms with bleach spray, antibacterial wipes and lysol spray and I sprayed everything in sight in the house and washed all the sheets. My kids are being tested to be on the safe side and I will find out this week if they have it or not. Tomorrow I will be calling the doctor so she can put her request in so I can have a colonoscopy done.
    My husband doesn’t seems to worry and doesn’t think it is a big deal and keeps telling me not to worry and that I am thinking the worst…but again…I am scared. I want it to go away! I don’t want it to come back again. I don’t want my children to get it. How do I clean up the house if this stuff is so resistant? PLEASE any advice or input…I really need some emotional support here…I don’t know what to do.

    1. Hi angelica – how are you doing? I’m sorry for this late reply; your can see my latest post for an explanation.

      To answer a few of your questions: yes, Metro works. But it has to be taken for a long enough duration that it prevents immediate relapse. So if you’re still feeling symptomatic three or four days after your done this round of Metro, go back to your doctor and suggest another round. Vancomycin, the other drug used to treat C.Diff is a “drug-of-last-resort”, meaning they’ll use it only if you’re dying. It’s incredibly strong and it’s hard on the body. They reserve it because they don’t want the “superbug” versions of bacterias to become desensitized to it, or to adapt to survive it. I have severe upper left abdominal pains too – feels like you’re being stabbed, right? Try heat – a hot water bottle or heating pad or hot buckwheat pack will help a little.

      Here’s a little-known secret: IT IS COMPLETELY POSSIBLE TO HAVE SOLID/FIRM STOOLS WHILE SUFFERING FROM C.DIFF. The sooner all doctors, med students, and lab techs learn this, the better off we’ll all be, because it means they’ll test stool sooner, and catch the infection in the early stages. C.Diff messes up the digestive system so completely, the state of one’s stool can be totally unpredictable. People “normal, firm” stool can have C.Diff, and experience all the other symptoms that C.Diff patients with runny stool have. You’re very lucky that they tested a firm stool for C.Diff – often, lab technicians turn away stool samples that have any degree of firmness to them due to the belief that a person only has C.Diff if they have severely watery stool. To my mind, this is almost criminally negligent.

      As for the safety of your babies: you’re taking the right steps. Bleach, bleach, bleach. And white vinegar for the things that won’t survive bleach, like coloured towels. You can put the vinegar right in the washing machine like a fabric softener – the laundry won’t come out smelling like vinegar, and it’ll clean your washing machine’s inner-workings, too. Spraying surfaces won’t do much on its own; you need some scrubbing action to actually remove the bacteria. The bathroom is your worst enemy in this situation, so I’d suggest the following: keep a container of lysol antibacterial wipes on the back of the toilet. Use one to wash the toilet seat, and another one to wash the flush handle. After flushing, but before you wash your hands, use another wipe to wash the interior of the toilet seat lid. AND ALWAYS, ALWAYS PUT THE LID DOWN BEFORE FLUSHING, if you don’t make a habit of that already. Flushing a toilet without having the lid down can spray microscopic fecal particulates into the air and it can land on surfaces up to 6 feet away (especially dangerous if you keep your toothbrushes on the counter by the sink). The ingestion of these particles (like from a contaminated toothbrush) is what can give someone C.Diff. Also, clean the floor around the toilet often. If you have two bathrooms in your house, claim one, and tell your other family members they are not to use it. Put a sign on the door to remind them. This minimizes the risk somewhat. And practice safe handwashing techniques. If you haven’t sung the “ABC’s” song all the way through while washing your hands, you haven’t washed long enough. Make sure to wash your wrists and under your fingernails, too. Wash your underwear separately from your kids’ laundry, and do kitchen and clothing/towels/bedding laundry in separate loads. Use bleach on all the kitchen laundry. Oh, and if you take a bath to help with the pain, spray the bath with bleach cleaner after it drains and just turn on the shower to rinse it. Other than these steps, there’s not much else you can do, cleaning-wise.

      Getting your kids tested is a good idea, and you can take some preventative steps like putting them on a child’s dose of pro-biotics (and pre-biotics), which you can get at your local drugstore.

      As for your husband, get him to read my story. Tell him this is a scary disease, and a very hard infection to beat. Tell him crazy degrees of cleanliness is the only way to protect his children, and to prevent a relapse in you. Tell him people die from this every single day, and that it can go from mild to deadly very quickly. I’m not saying all this to scare you. I think you’ve caught this soon enough that you’re going to be okay, and I don’t think you’ll relapse. You’re doing the right things. But if your hubby isn’t on board, he could compromise the safe environment you’re trying to create. He is responsible for his own health, and for your children’s health too. He needs to do his bit by taking it seriously.

      Do have a colonoscopy, but be careful with the bowel prep they’ll get you to take. If it is too strong/violent, it can cause further damage to your large intestine and can cause little tears and bleeding of the exterior anal area as well from the force of the bowel movements. Just take it slow, and if you feel like more damage than good is being done, stop doing the prep and notify your doctor immediately.

      Drink tons and tons and tons of water all day, every day. This prevents dangerous dehydration, eases pain, and dilutes the toxins the C.Diff bacteria is producing in your body. It also flushes the toxins out, and helps to flush the Metronidazole from your system as well, which is a good thing, because Metro is a very caustic drug. You’d be able to feel it if you were taking it by IV instead of in pill form, because it really burned my veins and caused them to blow often when I took Metro by IV for my C.Diff.

      Also, once everything is all said and done, have them test your solid stool about three weeks after you’ve beaten the infection. If you still carry the C.Diff bacteria, it’ll probably show up in the test, and you’ll know that you’ll still have to be careful with cleanliness and that you should watch yourself carefully for any sign of relapse in the future (you may never relapse, but it’s good to be able to look out for it).

      And finally, once you’re done taking antibiotics, put yourself on a daily dose of probiotics. 10 to 20 billion active cells is a good, high dose, but you might have to work up to it by buying pills that are only 2 or 5 billion to start, and increasing the dosage as your intestines allow. Try to find a probiotic that must be kept in the fridge, and find one that has at least 8 different strains of probiotics. This is what I’ve found to be most effective. Avoid taking probiotic supplements with only one or a few probiotic strains. Your Pharmacist can help with all this.

      And finally: Angelica, It’s going to be okay. Tend to your emotional needs as well as your physical ones. Pray, if that is something you do, or meditate. Treat your body gently. Don’t push it to the point of dangerous fatigue (I know for a mom that’s easier said than done). Take this infection as an opportunity to pause and quite literally smell the roses. Buy flowers for yourself. Do things that calm you. Read books or watch movies that comfort you. All of these things will help you to gather your strength. You can do this – I can tell you’re strong. Hugs ❤


    2. Dear Angelica,How are you doing!? I read your comment. First of all, do not afraid too much,but I know the fear what you have very well!
      I suffered for the C. difficile since 18th of Dec 2013 and after 4 recurrences, I am finally healed. I am living in Vienna, and I am very surprised, not only your case, but also the others. The treatment itself is quite different from here. I try to avoid to write too much difference in your country and Europe. I do not wish to confuse you! So, I write the principal knowledge for the C. difficile.
      1) Normally, it would not go to the kids. It is rather the sickness, basically for the people who are over 65.
      Unfortunately in this case, the world is too close to each other now,it is why children could be the patients now.(specially babies,but it is STILL NOT LOT!)
      ***just do, basic commonsense for your house hold.
      ***Wash your and your family’s hands well with the GOOD soap which has the + mark. (after coming back from out side and OF COURSE after the toilet.)
      ***change the towels every day. wash with 90°,if your washing machine has. And afterwards,dry them in the garden,or by the window!(under the sun!)
      ***Bleaching is a good idea, but not to be TOO nerves!
      ***Wash the dishes with highest tem..

      2)Do not give your children FEAR what you have. It becomes terrible stress for your children too.
      And as you know, the sickness starts with the stress.
      Any way, it is the stressful world indeed.
      Tell them,”it’s tough, but you(mum) will be FINE!(and it’s true!)

      3) Just avoid to let them come to your bed.(it would not be huge problem, but in case…)=(any way the bacteria must have been every where in your house)=(you can not rid of them completely, just ignore and relax!)=(it’s better for you and for your family!,I really believe it! I am here WITH YOU!!!)

      4)I say all of these, because nobody is mentioning for this blog,BUT we all have the C. difficile in our tummy,20% to 30%.

      Just unfairly,it is the bacteria who would like to grow very much for some reasons.

      ***First reason is, if we are treated by the antibiotic recently for the different sickness. Like the– bladder inflammation– which I am afraid rather lot of women suffer.
      ***2ndly,some reason, when our immune system is weakened.
      In my case, it is sure, because I suffered for the cancer(uterus,I got it center of the womb)10 years ago.
      They did radiation from the vagina.3 times.
      It is clearly BAD for the INTESTINE which I was signed, before hand for the risk. They said, may be, it will burn some part of your intestine, and it happened(I was told!)
      My white blood has been under the standard which I recovered few years ago.
      And I am totally healed.
      ***3rd reason is the hospital staying or the visiting. There is plenty of the bacteria more than any other world!! And some people are naughty to not wash their hand, after the hospital staying or visiting.

      5)All together , it’s not the bacteria what normally we get every where,how ever it is every where!
      *** Recently, one of the Swedish hospitals coursed lot of C. difficile patients. It became the scandal. My friend journalist tole me.
      It is quite clear their cleaning system wasn’t good enough.

      ***When I had been in the hospital for the bacteria,from the New Year Eve to the 8 of Jan.,on the leaving day,they asked me to move from the bed quickly,because THEY DID NOT HAVE ENOUGH BED for the next patient!!
      I saw, how they cleaned my bed.
      HARDLY anything!!
      Just change the sheets,that’s it. I doubted my eye!

      6)You are still young, and I do not know the reason why you got that.

      ***But the reason is not so important here, because some how we got it.

      ***My big surprise is , many of you are not treated right way, from the beginning.

      ***Specially what surprise me is,almost all of you went to the colonscopy when you have still the bacteria=before Toxin test .

      ***Her in Europe , it is what we avoid,because it could make the hole for our intestine. The stool test,and the colonscopy. It is the right way.

      ***About the antibiotic,sounds like, some of you must pay, all the costs for it.
      It is difficult to believe,but if it is the fact, probably you would not get newest antibiotic which cured me.

      ***My process of the medication.

      1)Antibiotic:ANAEROBOX for 8 days. every day: 4 tablets.
      ***1st recurrence in 2 days.

      2)Same antibiotic for two weeks. every day 4 tablet.
      ***2nd reccurence in 2 weeks.

      3)Antibiotic:VACOMYCIN 250mg.(apparently it must be common in your country) for 10 days. every day 3 tablets.
      I got same time also, TASECTAN(protection for the wall of the intestine) and YOMOGI:
      –I took YOMOGI from the beginning of my treatment.–
      ***3rd reccurence with in a week.

      4)DIFICIR 200mg. for 10 days. every day 2 tablets.

      ***Now I have been taking —ANTIBIOPHILUS–it is VERY IMPORTANT to make your intestine healthy enough!

      ***RESULT: since last stool test on 27th March;I AM TOXIN FREE. C. difficile NEGATIVE.

      ***I took two times –CT–. (Jan. and two weeks ago)
      ***The first result, half the colon had inflammation.
      ***2nd result,every thing is fine,except still lot of stool in the colon.

      *Since then, I use to have still 6,7 times toilet with quite soft stool. Lot of Gas.
      And intestine and stomach pain all the time.

      *I have still pain. Lot of Gas too.

      *But I started to have the stool just once in the morning , since 5 days ago , and yeaster day and today nothing but gas.

      ***Doctors say, it takes 4, to 6 more weeks to be clean up from any kind of symptoms
      *I go to the colonscopy on 22nd April.

      *As you all know, I lost also 8 kg. Some stage I got, every day, JUST LOT OF MUCUS with many colous.
      I never had the blood.

      ***I felt , I am dying.

      *But ALL THE DOCTORS said, I will recover completely. BUT IT TAKES TIME may be 6 months or even a year!

      *I do not have the recurrence for two weeks now. If I carry on this condition for 4 weeks, we can believe, I am healed.

      *I have the fear for the recurrence,as you all have.


      *But you will be CURED! I am sure! Specially you are young, your health strength will be much stronger than mine.
      I am 67 years old.

      *As some kind person has been suggesting you, buy the flower, new cloth,hair dresser and go out for the film, theatre etc.,as much as you can!!

      *Dose not matter, if yo have to go to the toilet middle of it.

      *Do not just stay at home! It makes you depress! I know it. Every time I felt low, I forced me and went out, just for a walk is fine!!

      *Some stage, I felt very weak and dizzy,but I painted and tried to play the piano which I could not carry on even 10 min,I did not have any power at all.(I am a musician)

      ***I learned , most important thing is, keep the hope for the recovery.
      When we loose it, we need other things.
      Ask your friend to come.
      All of my friends who visited me, even cut my hair did not get the bacteria from me.
      I asked them to wash the hand very strictly when they left my home.And they all did.
      BUT no kiss and hug for them!!

      *You are very lucky, you have your family with you.

      *I have been alone all the time.

      *I have 4 children, but two of them are not in Europe. One of the sons just got a baby, so I refused his visiting.
      My youngest is in the Uni. Nice In France.
      The friends were only people who I had for 4 months.
      They went shopping for me.
      They came to chat.
      As I already have described, one of them even cut my hair.

      ***We have the telephone and the internet too.
      Use what you can imagine to keep your spirit high,how ever not perfectly.
      Specially for your children, you got to be strong.
      You may cry, show your frustration and even anger, fuss , how ever what you feel, BUT still tell them, you will be recovered, and KIDS WOULD NOT GET THAT!!

      ***FOOD, DIET: EAT MOST EASY THING TO DIGEST: with your commonsense.
      If made the mistake and the condition became worse again, do not be afraid, start again from the beginning.

      *When your children became ill in the past, what did you do!?
      *You do same way for you now!!

      ***We all, mothers have the great knowledge for that!

      *I ate, soft rice and soup without any thing in it. =first two weeks.
      I ate tofu with miso soup, fortunately I liked it.=after third week.
      I ate cooked apple with skin too.
      also banana.

      *I started to eat, fish recently. *I tried the boiled meat,it was not great!

      *I eat Oatmeal since 2 weeks ago too.
      And the boiled egg, once a day.(also since two weeks ago)

      *Milk, I bought Laktose frei. And used very very little, for tee and oatmeal.

      *Now in this week, finally I started to eat quite normal foods, but slowly.Most of all, boiler food!

      *Doctors told me , eat at once, very very little, and eat many times in a day.
      It is very good. It is a trick for the intestine!

      *****All the best for you, the internet is not so bad when we can communicate this way!
      I have the face book, public,but with different name. If you have a wish to see, write me, I tell you the face book address. Because there is my diary when I was very very ill. Photos too. All my terribly sick faces and recovering ones. Now we can see the slightly the light on my face which I lost once completely.
      I luckily look about 10 years younger.
      But I became really 10 years older in 4 months.Taxi driver who drove me back from the hospital said, you look max. 60 years old. Already my face looke much older from the past.
      I am 67, and normally people doubt my age. Specially when I use the reduced ticket for the tram, Film,trip and etc. etc..
      But now, I am sure, I do not need to show them my passport! hahaha

      You will smile again like me!!(I have once lost it, so I understand well)

      *****For everybody, I certainly pray for you!! And if you feel , you can write me any time!
      But PLEASE do not take too much other tablets.
      Apparently, if I am not mistake,In Canda or America, it is much easier to get medicines without the doctor’s inscription.
      *The antibiotic would not work with other medications and it could harm your lever etc..
      *Many of you here on the comments are quite young! I am sure about your future health!
      For that sake, please take care yourself with best way.
      Some times even we got to fight with doctors.
      Just do not simply follow them!
      It’s our body!!
      Make your position clear and make your instinct grow!!
      ALL THE BEST FOR ALL OF YOU!! much love Meg

  77. If you go back and check the earlier posts, you will get MUCH info. Follow it carefully. So many doctors really “guess” at the best meds and tapers instead of following the best course of action. It is horrible because no one understands it and no one really care–but those of us with it. So far, mine has NOT recurred again, but I am very careful. As for prevention, bleach. Hand sanitizers do NOT kill the spores which can live for a year outside a person, on a surface. Prayers for all of you fighting this! Hang in there and fight for your rights and the proper treatment.

    1. Rhonda – my righthand survivor! Thanks for your excellent posts and keeping up with the newbies, Rhonda! You often get to new comments/posts before I do, and I appreciate your replies to them! Thanks for working to help others with C.Diff ❤

      1. Hi LadyPrimal! You are most welcome.

        Let me recap again for others. I see c-diff as one of the most insidious diseases out there! And this site was my life-saver when going through it all. The knowledge I gleaned here was far better than most anything else out on the internet at the time.

        The most important thing I can import to people in this fight is to BE YOUR OWN ADVOCATE!!! The doctors for the most part are not up on all the details of c-diff and many doctors do not want to be told “they are not doing it right.” Most doctors think they are God and you cannot tell them anything! Fortunately, I have a doctor that listens to what I have to say, even if it is “from the internet.” She takes what I say, sometimes does further research herself, then will prescribe or decide the proper course of treatment. I was scared to death when sent on for further treatment that I would get someone who would not really listen to me, but what made the difference was that I had detailed EVERYTHING I had experienced and taken for it, along with dates, etc., and when I presented to her, I read that off, she took notes, I got done and she said, “You have really done your homework on this! She appreciated the timeline and exact details about each taper I had been on as then she knew just what to do for me. Her final treatment was the answer. But, I did not think so for a long time after treatment was done as you can still have lots of the same symptoms. Again, I URGE everyone who is given a final culture test and told it is gone to INSIST on the new sensitive test that came out just about a year ago. It will definitively tell them if it is gone. Not every clinic, even huge ones, are able to do this testing, but they will send it out where it can be done.

        I also want to again stress the importance of bleaching everything you can all the time. The spores live outside your body for up to a year. Let’s just say after using the bathroom, you forget to bleach that handle on the water faucet. Just someone else touching it or you touching it another time can reinfect you or infect them. I used bleach spray every time I was in the bathroom. Everything from faucet to flush handle on the toilet, to the toilet seat, the bathroom counter (where contaminated hand-washing water may have splashed), got sprayed and wiped down. I had been told that reinfecting was one of the biggest reasons people have such a hard time getting rid of it. REMEMBER–alcohol and hand sanitizers will NOT kill c-diff. You have to use bleach or Hibiclens, which you can buy at a pharmacy but it is very expensive. It is what I used when not at home though. It is what surgeons use as a scrub before surgeries.

        The final thing I want to do is remind all of you that you can pick up c-diff anywhere. The most common places are nursing homes and hospitals because there is such a large number of outbreaks there. But you can get it in a public bathroom, off a door handle or the handle of a grocery cart! I personally think one of the most germ-laden things in the world is a menu! Many people do not wash after using the bathroom and look how many people hit the bathroom before they sit down to order their food! Not to mention just normal “germs” on the menu. Pay attention next time you go to a restaurant, how many people are coughing while looking at the menu! I always “clean’ AFTER touching the menu and before I eat.

        I was never a germ-phobe before c-diff, although I was always a big hand-washer, etc,, but having had c-diff I am nearly paranoid now about all the stuff that is out there.

        Read, educate yourself, take precautions, advocate for yourself–if you do not feel it is gone, keep pushing for further testing!–and good luck to all. Most of us can get through to the other side, but it is a long hard battle and you will get discouraged because of how long it takes and because no one else seems to understand the horrendous worry that comes with the c-diff. They think it is just serious diarrhea. WE KNOW it can be life-threatening! Take it seriously, because it is, but know too that you CAN overcome.

        Prayers for all. Now, go read all the stuff on this site! It is wonderful.

        God bless! ~Rhonda


    # 1, My doctor said that he has not ever known of any family members of CDiff patients to catch the bacteria, and he is a specialist in this area. I would take precautions like using clorox (has to touch surfaces for 10 minutes to be effective. I used the spray clorox cleaner applied heavily and re-sprayed every few minutes on bathroom floor and vanities, keeping the area wet with clorox for 10 minutes) and using a “de-germer” on doorknobs, cabinet pulls, faucets, toilet, etc.) The only way someone can “catch” it from you is if you don’t wash your hands well enough and you touch something that someone else later touches . It was explained to me that they would have to actually touch the fecal bacteria. I used paper towels in the bathroom to avoid getting bacteria on towels and I used plastic gloves when I used the toilet.

    GOOD NEWS, # 2: There is now available a fecal transplant. Some doctors do the procedure via enema, but we found a doctor who does a nasal transplant. It is 90-97% successful. I had it done after three months of very expensive medications and no success getting rid of the bacteria, and I am well with no sign of CDiff. It is a very simple procedure. The problem is finding a doctor who will do the procedure because it is fairly a new thing. We were told that there were no doctors in our state, Virginia, who do this procedure, but we found one in Richmond, Dr. Edmonds, who practices at the hospital, VCU. The procedure is an outpatient procedure. It consists of simply running a soft plastic tubing down the nose, throat, stomach, and small intestine.(There is no pain.) The doctor inserts the fecal material through the tubing. I think it is in pill form, not for sure. It is live bacteria taken from another person who has healthy gut bacteria. (They test it for any infections including AIDS/HIV, etc.) The whole procedure takes only about 10 minutes. I highly recommend it for all of you who have not been able to get rid of your CDiff. I read of persons facing imminent death from CDiff who had this procedure done, and they recovered immediately. This gives hope to patients who are fighting this horrible sickness and feel hopeless and discouraged. I know; I was there!

    God bless!

    1. Correct. IN A WAY. But I must take issue with the blanket statement made.

      No, none of us “catch it” from someone else, standing next to them, etc., but the key is cleanliness and hand-washing! You MUST keep everything disinfected! I have seen posts of a mother and her children all infected! It happens before they even realize how serious the “diarrhea” is! So to just bluntly say ” My doctor said that he has not ever known of any family members of CDiff patients to catch the bacteria” IS NOT TRUE and I think will lead those who do not research or are careful about cleanliness to think no one else will get it. It spreads though families and institutions because of non-education.

      And yes, the news about the transplants is a good one. I hope the “pill” they are working on is released soon.

      Take care. ~Rhonda

  79. Good news for you: Some doctors are doing fecal transplants that are 90–97% successful. Ask your doctor for a referral. He may laugh at you. That’s because he hasn’t been informed of the success of this transplant. Keep searching for a doctor who does this procedure. It is painless, takes about 10 minutes, is out-patient procedure. I was told that no doctors in my state of Virginia do the procedure, but we found Dr. Edmond at VCU in Richmond, Va. I had the procedure, and I am well!!!

  80. The comment was a quote from my doctor. If you will read the rest of my comment, you will see that I advised caution with good hand washing, wearing plastic gloves, cleaning with clorox, etc. I most surely wouldn’t want anyone to be careless about hygiene and pass CDiff to anyone else!

  81. I, too, have had resistant Clostridium difficile for the last eight years. We return to
    Houston, TX via Cuenca/Quito Ecuador/Miami FL on Thursday, April 10, 2014 and
    I am going straight to the emergency room. I feel do grateful that I am still alive, but I can no longer continue on my present course. I shall keep each and every one of you in my prayers, and shall post again when I have new information.


  82. Hi everyone my name is Priscilla I’m 25 goin on 26 I have a spunki one yr old daughter an a wonderful mother that’s been there thick an thin.. As I’m reading some of the different experiances everyone has gone thth so far I wright this with tears in my eyes, Iv been diegnose with c diff I ask have juvinial diabities.. I live in orlando with both my mom an daughter.. Iv been takeing a lot of antibiotics on. An off for the last couple of months from sinus infections to yeast to uti’s.. my bigest fear is that my mom or my daughter might get it.. even though I’m a clan freak an log the smell of clorax.. the docters pretty much scared me shitless about it being highly contagiouse. They made it sound like the eggs from the cdiff come out of my skin an atach its self everywere… But reading everyone story has indeed put some of my worries at rest.. since I have to b high mantanance with my self what I eat to what I wear due to being diabetic I’m somewhat perinoid.. I’m so scared I can’t stop crying.. but I do have a verry healthy appitite .. what dosent make much sence is the medication .. u see if antibiotic is lets say the reason y I got this then why am I taking antibiotic to kill it ??… So its like its getting worse yet better at the Sam time?!.. well I do suffer from IBD.. verry uncomfertable.. I’m highly stressed.. my diet well I call it the bunny diet but its high protine low carbs and lots of greens.. so far the medicating seems to be working or maybe its all the probiotics Iv been indulging myself in….mmm not sure… Just feel so alone with this.. I hav two deadly desises… Both life threating.. I’m so scared… Plz is there anything else I could take anything at all like herbs… Thanks cilla

  83. All of this reminds me of what I learned when the rocketphello administration came about.. How all the medical an phzrmicudical companies are makeing drugs to slowly kill us. An the wooper about all of it is that they don’t tell us the horrible side affect of taking any of it…

  84. Hello, I am Shannon 45yr. old female from Tulsa, Oklahoma. I want to share my story with C-Diff and the past 6 months that have changed my reason for living. In October 2013 I was hospitalized close to death from a superbug caused by antibiotics prescribed to me by my dentist. I had never heard of C-Diff (which is amazing considering the extent of exposure I have had to hospitals, surgeons, heart, lung, too many others to list and repeated extended hospital stays of my step father in the past 4 years). It is now April of 2014 and I have seen this HORRIBLE PREVENTABLE SUPERBUG attack 3 friends, and just this month killing my best friend’s mother.
    My Story: In August 2013 I had an upper back molar start hurting but our insurance didn’t kick in until the first of September. I HATE THE DENTIST! lol Well I couldn’t wait because of the pain and called to see how much it would cost to see the Doctor. First visit and x-rays free! Awesome, so I went in August 22 the Dentist said we need to pull the tooth but first let’s clean them. Well truth be known it had been over 10 years since I set foot in a Dentist office so they could use a cleaning. He said we will set that up for the first week in September when my insurance kicked in then after the cleaning we will pull the tooth. Until then take these antibiotics and here’s some pain meds. 8/22/13 I was given 28 Clindamycin HCL 300mg & 10 Hydrocodone 10/325 I made my appointment for the cleaning Sept. 6th I went back in and the cleaning went great! Much better than I had feared. The Doctor stopped by and looked in my mouth and said see ya next week and we will pull that tooth. Then he gave me two more prescriptions of the same thing he gave me the last time. 28 Clindamycin & 10 Hydrocodone I wasn’t finished with the last script he gave me but who am I to question he is the one with the degree right…. Sept. 12th I went back and had the tooth extracted at that point the dentist sent me home with more pain pills and something new 28 Amoxicillin 500 mg. When I left I was much too goofy (thank goodness) to ask any questions but my mom was there and there were no unusual instructions. Just oral maintenance for tooth extraction. Yeah infection gone tooth gone(won’t miss it was too hard to get to anyway…lol). Now back to planning our 11th anniversary at the Fabulous Tulsa Rose Garden’s An Evening of Wine & Roses Sept. 27th. It was about the 25th when I was getting my hair done for the event that I noticed I wasn’t feeling quite right. I brushed it off and dared not to mention it or even think about getting sick before this amazing evening. My husband and myself rarely go to such a special event and let’s just say we went all out for the evening. We had a good time at the event but I was ready to go home early still not willing to admit I was not feeling right. I stayed in bed most of the next day claiming all the preparation wore me out it was our official Anniversary so my dear hubby decided to surprise me and take me out to dinner. Not knowing that my stomach was not feeling well at all. No problem put on that happy face and let’s celebrate! The next week I was feeling worse every day. Unfortunately I have dealt with GI or intestinal issues for the past 18 years of my life and the only answer after countless test, scopes and pokes I have been given was “stress” related diarrhea so issues with my stomach & intestinal pains were nothing new for me. By the time the weekend hit I was convinced that I had contracted the flu at the Gala from the previous weekend, oh boy here we go. I was in (on) the bathroom all Friday and Saturday with waste basket in hand. My husband and step daughter were afraid of getting the flu from me so I was basically quarantined. He would bring soup and drinks to the door but I hadn’t been able to keep anything down since Thursday. When Sunday rolled around I called my mom and she came over to help me get a bath and said I needed to make an appointment with the doctor first thing in the morning and she would take me. Sunday night I started to become delirious I was unable to sleep, yell or get out of bed so I just laid there starting to think this is one bad flu! When my husband came in to get his clothes for work I had him help me out of bed and called the doctor. I have seen my Dr. for 18 years and he got me right in. I was so sure I had the flu when I got to the doctor’s office I asked for a mask to protect everyone else. My Doc walked into the office and took one look at me and said get her to the ER RIGHT NOW OR I AM CALLING AN AMBULANCE! He wasn’t sure what was wrong but he knew me well enough to see that I needed emergency attention. I was in and out of a foggy haze having a difficult time even walking. My mom took me to the ER and they were waiting for me. They started asking me all kinds of questions but my mind just wasn’t working right. They were trying to take blood and start and IV but I was so dehydrated it was a next to impossible task. I think they stuck me 8 times to get the IV to hold but I knew that it was the only way I was going to get any pain relief because I couldn’t keep even a sip of water down. My stomach looked like I was 7 months pregnant and was EXTREEMLY tender. I had assumed Saturday and Sunday it was from being violently ill. Once they got blood they saw there was some sort of infection because of my white count was through the roof. The ER doctor came back in and asked me questions again. Are you sure you haven’t taken any antibiotics in the past month? I said no so he said he wants a stool test and was going to order a CT scan. Soon there after a nurse came in and added an antibiotic piggy back to my IV. Cipro the antibiotic used for Anthrax. Yes some seriously strong stuff! After 3 increases of morphine didn’t help the pain the doc gave me dilaudid. I was starting to get some pain relief for the first time in a week. The radiologist showed up to take me to CT and it hit me now that the pain was not the only thing running through my head. I asked the nurse if when I went to the Dentist and he gave me antibiotics does that matter any? The nurse stopped me from going to the CT and said she would be right back. The doctor was there in less than a minute and asked what did the dentist give you. I said some antibiotic that started with a C was all I could remember. Could that be it? He said the CT and stool test will confirm but yes he thinks that is it. I said sorry I just didn’t think of a Dentist as a Doctor. Almost immediately the nurse was taking away my piggy back of antibiotics before it was empty. She said the doctor has changed your meds. The next 3 weeks were a haze. I don’t remember much other than every time they gave me these new antibiotics it would burn like crazy going into my veins. But thank you Lord they caught it in the ER. the rest of that bag of Cypro could have done me in. It was a long and very intense recovery. I didn’t even start feeling close to normal for a month after the Hospital. Thankfully I have not had to deal with another round of C Diff at this point but I fear the thought that sometime in my future I will be faced with the choice of being sick and needing antibiotics, will I force myself to take them? C Diff is the worst thing I have ever had and it kills someone in this world every 19 minutes. I will have to be deathly ill before I ever take another antibiotic again. I have had natural childbirth twice. That was a party compared to C Diff.

    I did a little reading up on C Diff while at home recovering and saw that most information showed that the elderly and people with long term illness in the hospitals get it. I didn’t fall into either of those so I brushed it off at that point. While wasting time on Social media I noticed a co-worker of mine start to say she wasn’t feeling well. I watched her comments for a few days and started to see similarities in her decline and I couldn’t help myself I had to send her a private message and tell her what I had been through and asked her if she had taken antibiotics lately? She replied yes, so I said just to be on the safe side mention C Diff to your doctor when you see him tomorrow. I know I am probably obsessed with it at this time but NO ONE deserves to go through that pain! Four days later I received an email thanking me for telling her, she was positive for C Diff!!!! The doctor put her on the right meds right away and she avoided the hospital. I was on top of the world!!! I could have saved a life!! But wait she is younger than me, healthy and not the “normal” patient that gets C Diff. I share her story with my family and find out that my son’s friend just got out of a month long stay at the hospital for C Diff! She is only 22!!!!! At this point it is time for me to open my mouth and tell everyone I know about C Diff. I even tell my best friends mom {Anita} and dad about the horrible risk of antibiotics. February 23, 2014 Anita was taken by ambulance to the hospital because she fell and went unconscious. Anita (61yr old) had been fighting many health issues in the past 10 years and was 20 pounds away from the doctor doing much needed hip & knee surgery so everyone thought she had been starving herself. The hospital decided that her kidneys were shutting down and they had to do dialysis on her. They had a horrible time getting an IV in her because she was so very dehydrated. After days of fighting with IV’S and ports they were able to do dialysis and get her kidneys working again. She was in the hospital at that time for three weeks. I didn’t say much other than to offer support in however the family needed it. I was excited to hear that they had finally released Anita and she was at home. I assumed she was doing better if the hospital let her go. Not so quick…they were calling the ambulance in less than 36 hours to readmit Anita because she was lethargic from uncontrollable diarrhea and vomiting she had for weeks. The hospital had released her with it!!! That’s when I started asking questions! I found out that Anita had been off and on antibiotics for 4 years for bladder infections I immediately instructed Junette (Anita’s daughter) ask doctor about C Diff!!!! Well the doctors knowing everything assumed it was from her kidney issues. They waited another week before testing for C Diff. During all this time they are pumping her full of (the wrong kind of) antibiotics. You see there are only 3 antibiotics that work with C Diff any other antibiotic given to a patient only feeds the C Diff. The last two weeks of Anita’s life were agony. Knowing that she could have beat this if the origin of the kidney failure was discovered. You see C Diff if left to grow will infect your blood and cause organ failure. It also causes toxic mega colon and can rupture or leak poison into your body. On April 6th the doctors were forced to do an emergency colostomy to try and save her life. It was a failure. Anita left this earth to be with her Lord April 7th 2014.

    Junette and myself have decided that this killer needs to be known! We have created and are working to spread the word about this horrific killer. No one should lose a family member to the very thing that is given to heal us! Feel free to contact us with questions at

    We are not medical doctors, just sharing our story about this killer!

  85. Hi Karen, My beautiful daughter, Angela, Just passed away from C.Diff on Feb. 21 after 7 months. She had special needs–lots of them–and was nearly 23 years old. We still do not have the autopsy reports as to what exactly killed her. We were told to wait for 10 weeks and we are still waiting. I know that the C. Diff. wrecked her immune system and I believe that she went septic, had a seizure and it was over. She caught the super bug at Toronto Western Hospital post op. on July 4, 2013. We really miss her. Please everyone keep her in your prayers. Blessings, Heidi

  86. Heidi, I am very sorry to hear this. I did a lot of praying for you and your daughter. I am sure your house and your heart both seem very empty right now. Sending more prayers your way, dear. Hugs, Rhonda

  87. First time poster here. All of my c diff and h pylori labs have been negative so far despite IBS issues for the past few years, and systemic inflammation caused by Lyme. I did get diarrhea when I started IV ceftriaxone but my labs were again negative at that time. I haven’t made much progress with my Lyme treatments and I am currently on non-systemic xifaxan and neomycin for small intestinal bacterial overgrowth / SIBO. The only thing that has really helped me somewhat the past few months is a standard dose of vitamin b complex; clearly I had some kind of a deficiency. I have a lot of brain fog (inflammation) and I am not sure whether that is ammonia / toxins caused by gut infection or toxins being released by my brain from Lyme. I am under the presumption now that both are a problem. I am going to be starting bicillin la in the next week or two for Lyme, and I’m not sure where to go from there. All of my parasite labs have been negative. Just as soon as I get a better insurance plan I will push forward even more aggressively to heal myself. Fortunately I have a nice lyme literate naturopath who isn’t afraid to work with me & test me & prescribe drugs.

    Best wishes to all,


  88. Hi
    Just found this website, my mum 73 years old is in hospital as I rite this, she was in one hospital for two weeks for her diabetis and ulcers on her legs, she was sent home after two weeks, she became worse with her speech and mobility and her mood, the doctor came out to see her and sent her back in to a different hospital closer to home because her hands and arms were very swollen etc! As she was in hospital she was doing fine ( thought this is great get a care plan and get her home) then a couple of days ago she got sevire dioreha and she felt unwell, next thing she’s asleep not talking or eating and drinking, I was told yesterday she has c diff and they can’t operate as she isn’t strong enough to servive the op, so all they can do is keep her comfy, and fluid fed, it’s only a matter of time until she passes away, what else can I do! I’ve jst left her in hospital and I love her so dam much… Any info or anything will be a blessing! I’m so scared! Thankyou…

  89. Thank you for all of the information shared on this page. I feel like we ‘survivors’ know more than the doctors I have seen. I contracted C Diff in Jan 2010 following a minor outpatient surgery. Prior to the surgery, the nurse told the doctor that hospital procedure now included administering Amoxicillian in the IV prior to any surgery. Within two days of being home the symptoms started. I returned to the doctor that performed the surgery and he didn’t think it was related. After a few more days I contacted my GI doctor. I have Barrett’s Esophogus. I did read that Nexium and other drugs of that type may also contribute to making us susceptible to the disease. I was given 3 vials and told to go home and bring back stool sample. The next morning I was there waiting for them to open. The nurse took the sample and said we will call you in 7 – 10 days. I said you don’t understand, I will be dead in 7 – 10 days. I didn’t know what was wrong but knew something serious was happening to my body. She put her hand on her hip and said “Well, I sugguest if you THINK you are that sick you go to ER.” I went out to the parking lot and called my husband crying. He said meet me at the ER. I was hospitalized for 9 days. If my husband hadn’t lost control on day 5, seeing me get sicker every day, I might not be here. One time a nurse came in and said if you have C Diff you need to go to isolation. I never saw her again, and I never went into isolation. We really didn’t understand what was going on and I was so drugged up on Dilaudid I wasn’t thinking straight obviously. They changed my doctors and put me on IV Vancomycin and then 2 weeks of pills ($1400.00) when I left hospital. I have had 2 reoccurances. I was hospitaized again last year for 6 days. Again, not in isolation. The first hospital where I contracted the disease and spent 9 days, had me on the geriatric ward (I was 50 at the time). I have often wondered how many people in that room after me contracted C Diff. I wrote the hospital administrator out of anger, fear, and frustration. That was useless.

    Today I sit here with severe pain in my stomach and scared everyday when will be the next time. Doctors don’t want to treat the pain, they say C diff is gone and one even suggested removing my colon just to be sure. I currently don’t have a GI doctor. It is a horrible disease that most people have never heard of or think they will not contract. I live in fear of getting something else that may require antibiotics. I have not felt like myself or had energy for so long I don’t even remember. I struggle to make it to work some days, today is one of them. My husband says I’m tough. I don’t feel so tough today.

    It’s a shame hospitals can’t be held accountable and doctors don’t understand more about the disease. It was nice to find this page and at least know I’m not crazy or alone. Thank you all for sharing your stories.

  90. I got CDiff from having to take 2000 mgs of an antibiotic before seeing my dentist because I have an artificial knee. I took Vancomycin each time I was re-infected again and again for several months. Just when I thought I was well, it would hit me again. The Vancomycin was $1,000.00 each time. I am on Social Security. I drank probiotic drinks, several a day, at 3.00 each, took probiotic capsules, and was put on a diet high in fat and protein. Nothing helped. Then we heard of the fecal transplant that was said to be 97 percent successful. We were told that there were no physicians in Virginia who did that procedure. However, we found one in Richmond, Va at the hospital. I’m sorry, I can’t remember his name, but he can be found at the hospital there I was immediately free of the CDiff. The procedure takes only about 10 minutes, is not painful, and I had only minimal discomfort. A small tube is inserted through the nasal passages, down into the intestine, and the “pills” are inserted into the tube.I, too, think this procedure saved my life. I will try to find the doctor’s name and the hospital name and will make another entry to give you the information.

  91. Fecal Transplant Pill Knocks Out Recurrent C. diff Infection, Study Shows
    Other Research Shows Treatment Leads to High Patient Satisfaction

    SAN FRANCISCO – Swallowing pills containing a concentrate of fecal bacteria successfully stops recurrent bouts of debilitating Clostridium difficile (C. diff) infection by rebalancing the bacteria in the gut, suggests a study being presented at the IDWeek 2013™ meeting today.

    Infection from C. diff bacteria is such a concern that the Centers for Disease Control and Prevention (CDC) named it one of the three most urgent threats in its recent landmark report on antibiotic resistance. C. diff sickens half a million Americans and kills 14,000 every year. C. diff infection can occur after people take antibiotics, wiping out the good bacteria in the gastrointestinal (GI) system, allowing C. diff to flourish and leading to severe diarrhea. In some patients, infection continues to recur despite standard treatment with antibiotics. For patients trapped in that cycle, doctors have transplanted feces from healthy donors into their GI system to rebalance the bacteria and stop infections from recurring.

    Fecal transplantation typically is delivered by enema, colonoscopy (placing a tube in the colon) or nose tube and is effective in nine out of 10 patients, according to published reports. The IDWeek research suggests the less-invasive pills are a viable and effective delivery method.

    “Recurrent C. diff infection is such a miserable experience and patients are so distraught that many ask for fecal transplantation because they’ve heard of its success,” said Thomas Louie, MD, professor of medicine at the University of Calgary, Alberta, and lead author of the pill study. “Many people might find the idea of fecal transplantation off-putting, but those with recurrent infection are thankful to have a treatment that works.”

    Indeed, additional research being presented at the meeting showed patients who received fecal transplantation through a tube in the nose were highly satisfied with the treatment, and said they would likely recommend it to a friend.
    Fecal Transplantation by Pill

    University of Calgary researchers reported a 100 percent success rate – none of the 27 patients who took the tablet-sized pills had a recurrence of C. diff, even though all of them previously had had at least four bouts of the infection. Patients ingested between 24 and 34 capsules containing fecal bacteria, often donated by family members.

    To make the pills, researchers processed the feces until it contained only bacteria, and then encapsulated the bacterial concentrate inside three layers of gelatin capsule. This ensured the pills wouldn’t leak or disintegrate until they were past the stomach and into the small intestine – a potential advantage over other methods because it covers more of the GI tract, does not involve invasive and more costly procedures, and is more comfortable for patients, Dr. Louie said.

    Dr. Louie said he first made pills for fecal transplantation when one patient failed to respond to the enema method on two occasions and also could not tolerate a nasal tube for medical reasons. The pills are made individually.

    “The pills are a one-shot deal and seem to work. They are easier for patients and are well-tolerated,” said Dr. Louie. “It’s an exciting development in the field and could possibly even be used to maintain the balance of bacteria in the GI system in patients at risk for C. diff.”
    Patient Satisfaction of Fecal Transplantation

    In the study of fecal transplantation tolerance, researchers surveyed 28 patients three months after they had undergone the treatment through a tube fed through the nose and GI system to the small intestine. On a scale of one to 10, average patient scores were: 9.6 for overall satisfaction; 9.9 for ease; and 9.9 for likelihood of recommending the procedure to a family member or friend.

    “Patients with C. diff often have 20 or more stools a day, which seriously affects quality of life and so they are very open to this treatment,” said Ravi Kamepalli, MD, an infectious diseases physician at the Regional Infectious Disease-Infusion Center, Lima, Ohio, and lead author of the study. “Human beings are 90 percent bacteria and once that balance is altered with antibiotics, opportunistic infections can cause serious problems. All we are doing with this treatment is resetting the balance.”

    Dr. Kamepalli said he has treated 40 patients with recurrent C. diff using fecal transplantation, and all but one were cured, a 98 percent success rate.

    C. diff is considered a healthcare-associated infection (HAI) because those at highest risk are older people who are taking antibiotics and receiving medical care, such as in a hospital or nursing home. HAI C. diff remains at high levels, according to the Centers for Disease Control and Prevention (CDC). Antibiotics targeted to C. diff may wipe out these bad bugs, but because levels of good bacteria in the GI system are low, C. diff infection can recur once the antibiotics are stopped. C. diff infection recurs after antibiotic treatment in about 20 percent of patients, and in those patients, it is 80 percent likely to recur.

    Co-authors of the study being presented at IDWeek by Dr. Louie are Kristine Cannon, MBT, Heidi O’Grady, PhD, Kaiyu Wu, PhD, and Linda Ward, ART.

    Laurie Schnipke, RN, BSN, was a co-author of the study being presented by Dr. Kamepalli.
    At a Glance

    Pills made of donated feces can stop recurrent Clostridium difficile (C. diff) infections, which cause severe diarrhea and sometimes death, according to research.
    The pills are a new delivery method for fecal transplantation, which doctors turn to when other treatments for C. diff have failed.
    Another study of fecal transplantation via nose tube finds patients are satisfied with the treatment and would recommend it to a friend or family member.
    Fecal transplantation works by replenishing the good bacteria in the gut, which then controls disease-causing bacteria.
    C. diff infection strikes a half a million Americans every year, and recurs after treatment about 20 percent of the time.

    About IDWeek

    IDWeek 2013™ is an annual meeting of the Infectious Diseases Society of America (IDSA), the Society for Healthcare Epidemiology of America (SHEA), the HIV Medicine Association (HIVMA) and the Pediatric Infectious Diseases Society (PIDS). With the theme “Advancing Science, Improving Care,” IDWeek features the latest science and bench-to-bedside approaches in prevention, diagnosis, treatment, and epidemiology of infectious diseases, including HIV, across the lifespan. IDWeek 2013 takes place October 2-6 at the Moscone Center in San Francisco. For more information, visit, follow us on Twitter @IDWeek2013 or like us on Facebook at IDWeek.

  92. Frozen as Good as Fresh for Fecal Transplants for Diarrhea
    … enable JavaScript. Frozen as Good as Fresh for Fecal Transplants for Diarrhea: Study Researchers looked at recurring infections … 24, 2014 (HealthDay News) — Using frozen material for fecal transplants is as effective as fresh material in curing … – News
    Scientists Explore How Fecal Transplant Eases Tough Infection
    … this page, please enable JavaScript. Scientists Explore How Fecal Transplant Eases Tough Infection Goal is an easier delivery … to deal with the digestive tract disorder. The fecal transplant involves harvesting good bacteria from the stool of … – News
    Clostridium Difficile Infections (National Library of Medicine)
    Clostridium difficile (C. difficile) is a bacterium that causes diarrhea and more serious intestinal conditions such as colitis. Symptoms include Watery diarrhea ( ……/clostridiumdifficileinfections.html – Health Topics
    Health and Medical News: MedlinePlus
    … Related MedlinePlus Topic: Pulmonary Embolism Scientists Explore How Fecal Transplant Eases Tough Infection (HealthDay) Goal is an easier … – News
    Antibiotic-Associated Diarrhea Caused by Clostridium difficile (Beyond the Basics) (UpToDate)
    … adults: Treatment Clostridium difficile infection: Prevention and control Fecal microbiota transplantation in the treatment of recurrent Clostridium difficile infection ……m-difficile-beyond-the-basics?view=print – External Health Links
    C. difficile Infection (American College of Gastroenterology)
    … an antibiotic. The most effective treatment, however, is fecal microbiota transplant, also known as stool transplant. In studies, it … – External Health Links
    Infectious Diseases Society of America (Infectious Diseases Society of America)
    … more Using frozen stool from unrelated donors for fecal microbiota transplantation (FMT) was effective in a new pilot study … – Other Resources

  93. It’s such a relief to hear others experiences although like many many have said I wouldn’t wish this on my worst enemy!!!! This journey started for me by having my wisdom teeth out August 2012. A few months later something wasn’t right so I went back to the oral surgeon and he found that one incision never healed and was infected. He prescribed amoxicillin and off I went. Well another month goes by and it still doesn’t feel right so off to the pharmacy I go to get the horrid drug “clindamaycin.” After week one it’s still infected so they cut my gum open scrape it out sew it up and another week of clindamaycin. I’d still rather continue to go thru all that dental fun than c-diff. Anyhow come the holidays of 2012 I was down and out. I worked at a nursing home and visited hospitals daily so the flu isn’t unheard of, but the pain and nausea plus the diaherrea after a few weeks were finally enough for me to call in sick to work and go to the doctor. I don’t remember much of thanksgiving/Christmas well because I was in bed and in the bathroom all the time. My family doctor looks at me and says “clindamaycin” no one should be able to prescribe that!!! So that’s when I was diagnosed w c-diff. November 2012. I was off work for a week. Flagyl was started and the first day I never got out of bed & was losing weight at multiple pounds a day. By that night I was vomiting and had diaherrea all night long. So the next day the only thing I remember is my mom constantly checking on me and trying to give me pedialyte YUCK. Day 3 back to the dr I go and it was start drinking or into the hospital you go… I don’t hardly go to the dr so no way was I going to the hospital, plus that’s where a lot of people get this infection… I know I’ve worked ther… Gatorade and applesauce became my diet and I was switched to vanco. After a couple of weeks I start to feel a little bit better. The first course took me thru thanksgiving. As Christmas approached I was feeling crummy again, but I work in health care and have for 10+ years. Back to the dr I went. Another round of Flagyl and vanco and I made it to 2013, but wait! A couple weeks off the antibiotics it was back and worse than ever! I have no idea how I functioned let alone worked. I can handle the diarrhea as long as I’m close to a bathroom right… The nausea was horrendous, but the pain, well you all know! So this time I go to the GI doctor. Yep stool test come back + again… The lab people and I were becoming best friends… So GI put me on “Dificid” if anyone was shocked at the price of vanco this was at least double that, but thankfully I had very very good insurance and only had to pay $50.00 of the over $5,000.00. Crazy?? Yes! And he gave me a probiotic VSL3. Thank God this finally did it!!!! Every time I would get a belly ache or diaherrea I would nearly freak out, but after many months of healing, but never feeling back to “normal” I completed a 60 mile walk in 3 days to raise money for breast cancer research and education. So why am I writing this now????? Well Saturday night I felt l had the flu… Diaherrea body aches etc… So after a day of rest yesterday I thought I’d be good to go today… Not so much. The diaherrea is relentless and the heartburn is horrid (I think I had heartburn the first time I had it, but I definately had it after all those meds). Isn’t it crazy that I can’t remember if I had it? But you all know how well you feel to remember… So as I sit here tonight pondering if I have just a simple case of diaherrea or c-diff… I know I’m paranoid as all could be, but it just has that feeling smell appearance etc… But then I try and tell myself it’s in my head because I don’t have time for this I’m doing my second 60 mile walk in 6 weeks!!!! I need to be out walking not freaking out about this 🙂 in my rational/irrational mind I’ll give it till tomorrow around lunch time to call the doctor. Praying and hoping the diaherrea and heartburn just stop and all is well, but I just don’t know, but I do feel better after writing this rambling…. Thanks for listening and say a prayer 🙂
    Ps – I left the world of healthcare 6 months ago so that is no longer a possible cause bc after having c-diff I wouldn’t get close to a patient who had it…

  94. I read your blog. I’m a 17 year old girl that as been infected with C-diff for about 5 years. I have never been hospitalized in my life. I think Im the 20% of people that have it naturally. I was diagnosed with it about 1 year and a half ago. I had always had stomach pain and diarrhea about 3 times a week or so. They said I was gluten intolerant etc. Then they finally did a stool test and found c diff. I have been on 3 rounds of antibiotics with no improvement and have kind of given up hope at this point. My mother says we just have to hope it gets better. At the end of this month will have no more health insurance. Being an American that means no more doctors for a while. The doctor was out of ideas anyway. The only they had left was a stool transplant(which they wont do until Im 18) I have never had a colinoscap done because even with insurance I would run about 2000 dollars. It really sucks living like this. Not wanting to go out in fear you’ll have an episode, endless nights in the bathroom, trouble going to school etc. Can anyone tell me how I can get rid of this monster called C-diff?

  95. Hello everyone:

    Thank you so very much, each and every one of you, for relating your experiences and stories of the effects of this awful disease and how it has affected each one of you in so many awful ways. A disease which I hadn’t even heard of before April of this year when I myself was diagnosed. In such a wonderful way, your stories have given me some tiny bit of hope. Although we each have our own experiences, I seem to be able to relate to each one of yours in some way or another. First and foremost, this “disease going to your head” has hit me the hardest. Because it has. Unfortunately, my biggest fear is that it will return, and this time, I may not be strong enough to live to tell about it. So today I’ve decided to tell my story and even if it helps just one of you to hold on a bit longer, I hope I did the right thing.

    My story is not much different than those of most of yours, but the worst part of this disease is that it has changed me, not just physically, but emotionally even more so, and clearly not for the best. I’m 44 years old, female, I have two very wonderful sons, 20 and 24, and both are doing very well in life. They actually “like” me, and not because they have to. What a wonderful gift they have given me to be there mother, if only for a short time. Yet, I am so very weak and pathetic because I have so much to live for (grandchildren, retirement, (maybe), lol, etc.) and, I’m not sure I even want to live through it again if the worst happens and I have a “fifth” relapse. The last one nearly killed me because of a false negative and if it hadn’t been for my family, my children, and just knowing that there were things I still needed to take care of, (because of course I thought I would live forevery) I’m quite sure I would’ve closed my eyes, told the Doctor thank you for all his hard work, and said goodbye.

    Thank you for your stories, experiences and endearing support each story has given me. God bless each and every one of you:)

    1. Be strong Angela, and don’t every give up!!! I know what you are feeling, and with continued health, I promise tomorrow will be a better day. I’ve dealt with the physical, emotional, and isolating feelings of C Diff. I was ready to give up, but somehow we find the will to go on. I trust you will also. For you AND your wonderful family!! Be well my friend.

  96. January 2010 I had outpatient surgery to remove growth on vocal cords. As I lay there prepped for surgery the Dr. pops in and the nurse said “I need you to sign off on the amoxicilin by IV prior to surgery.” He asked “why?”, and she said “it is hospital policy.” Less than one week later I was in his office with uncontrollable diarrhea that Imodium would not control. I do not recall him mentioning Cdiff, and if he had I’m not sure it would have registered. I had never heard of it. He referred me to GI dr. A few more days go by before I connect by phone with dr. and he tells me to come in and get a test kit. I was there that day and back the next morning waiting for them to open (always mindful of the nearest emergency bathroom location). I checked in with receptionist and gave the nurse my ‘test’. She said ok, we will call you in 7 – 10 days. My comment looking back was interesting, I said “I’m afraid I will be dead in 7 – 10 days.” I guess that was just what my body was telling me. She put her hand on her hip and proclaimed “Well, if YOU think you are that sick then go to ER.” The tears started, I went to my car and called my husband. He said he would meet me at the ER.

    I was admitted for 9 days to the hospital where I had outpatient surgery. That was a horrific experience in itself, and could write a book on that. One nurse came in and mentioned C Diff and isolation, and we never saw her again. I was 50 years old at the time and was on the geriatric ward. After 5 days I texted my husband with a list of things to bring because I was leaving. If I had to take IV out myself I didn’t care. These people are killing me I thought. By that afternoon I had a whole new team of doctors and Vancomycin added to list of drugs. Four days later I was released with 2 weeks of Vancomycin ($1400), flagyl and a host of other drugs. I have often wondered how many people in my room contracted C Diff after me. I wrote the hospital administrator about my experience and fears. I was unfortunately still too emotional to write such a letter, so what I received back was a CYA letter from hospital. Let’s just say I would have to be unconscious, with no one around that knew me, before I’d step foot back in that place.

    I would suffer two relapses, the last one in 2013 hospitalized me for 5 days. I always have bloating, frequently pain and trouble with digestion. I saw on the news a Dr. that did fecal transplants and was told I had to have a current diagnosis of infection before he would even see me. I do not currently have a GI doctor. Last one said let’s remove your colon! When asked why, he said nothing else is working. GI dr. before that one did colonoscopy in his office while I was awake. I was screaming into the pillow so that people in waiting room would not hear me. He said it was fault because my intestines were twisty. Barbaric.

    I recently had a sinus and tooth infection and was told I must use anti biotic. After much research and advice from C diff forum, I agreed to use Pen VK. I got home with the RX and opened the literature to read “May cause C Diff up to months after finishing.” I took 2 days worth and on the 3rd day I said I just can’t do this. I am terrified every time I take a pill, and I know stopping is bad, but I just couldn’t risk the consequences.

    I have constant digestive issues and often horrible pain. Told they can’t give me anything for pain either because it ‘slows’ digestion. It’s a horrible disease, and the treatment I have received has been just as horrific. All I can do is hope for the best that I never NEED anti biotics again. Good luck to everyone.

  97. Carl,

    You are not alone. I know the frustrations, fear and pain. The doctors think if you don’t have active infection it’s all in your mind. If nothing else this site let me know I’m not crazy. I do t have answers other than take care of the symptoms the best you can and contine to educate yourself and reach out for support like you are doing. I felt like people were tired of hearing me say I was sick. I think they are frustrated they can’t help us. Plus they listen to doctors who say nothing is wrong. I went through 5 GI doctors, all terrible experience and currently don’t have a GI doctor. I think there is something wrong with all of THEM! It took me over a year after last bout to feel almost back to normal. Then I had infected tooth and sinus and fear of treatment I reached out for advice. Common form of safe treatment was Pen VK. Came home with RX and read may cause CDiff months after stopping. I couldn’t do it. I let my body fight the infection and won. It’s so scary to feel alone fighting this. I know this isn’t helping you other than to know you are not alone and eventually I believe you will start to feel better. Hang in and vent as much as you need. It’s good therapy. Wishing you well my friend.

    1. Dawn, Thank you so very much for taking your time and sharing your experience, dear- every word you said is absolutely the same words I’ve been saying for a year, but no one cares, except us…..the Real folks that have been through this ungodly bacteria. Thank you for your kindness and I will keep you posted, I can hardly move today, so I’m going to try a wave the white flag Monday and see what they say….but honestly I feel like I’m bothering them. …it’s or I just don’t know what to do anymore. .. Thank you very much for sharing your thoughts, Carl Wolff 🙂

      1. Have you considered ER ? Last time I called a Dr in tears I was told 6 weeks wait. I went to ER and was in for 9 days. Miserable, but my body and mind needed the treatment. Be strong, you can beat this. I know it doesn’t feel like that now. Please keep me posted, and don’t hesitate to vent. Sometimes all we have. I wish I had that when I first was told the words CDiff. Had no clue what it meant or the impact on my life. Educate family and friends and let them know what a horrible ordeal you are going through. Dont try to fight this alone. But in the end you have to advocate for YOU and listen to your body and instincts. No one knows them better than you. Get well and take care of youself my friend. Dawn

  98. After a vacation in the tropics I came back with an amoeba. My doctor prescribed Flagyl for 10 days. Exactly 3 days after I had a fever, vomiting and horrendous diarrhea – I thought I was going to die. Called my GP who then prescribed another round of Flagyl he said the amoeba wS difficult to get rid of ( he did this without seeing me or having me tested) Took the Flagyl for another 10 days and again after three days got all of the horrific symptoms back, lost ten pounds in two days and had non-stop explosive diarrhea. Went to the ER and after a 6 to 7 hour wait (wearing adult diapers and barely able to sit in the waiting room, finally saw the ER doctor.

    The next day he called to tell me I had C-diff and prescribed Vancomycin. He also referred me to an infectious disease specialist and said I would hear from them within a week.Took the Vancomycin for one day and woke up with vertigo. – was so dizzy the whole room was spinning – I couldn’t walk and actually fell twice – apparently this is a rare side effect of Vancomycin and the effects can be permanent. Even after discontinuing the med I was unable to walk straight or go up and down stairs. I was horrified since there was a woman who ended up having to use a walker for the rest of her life. I discontinued the med and again had all of the C-diff symptoms.

    Went to my doctor in terrible shape – had lost almost 25 pounds by this time with no help in site. He prescribed another antibiotic – I believe it was difficid – went to the pharmacy to fill the prescription and they told me it was $2500 and my extended health plan nor the provincial health plan would cover it. I had no idea if this med would work or not especially after my experience with Vancomycin.

    I then contacted my Dr who tried to get the med covered for me but he got nowhere. He said the only hope of me getting treated with the expensive med was for me to be admitted. He wrote a letter to the hospital to have me admitted but when my daughter and I got there, we were told we would have to wait in the ER for up 12 hours and I probably would not be admitted as they had 30 cots in the hallways and 19 ambulance patients waiting. We waited for 3 hours or more and I was so sick I could barely stay upright. We kept getting pushed down on the list and when we complained we were told my illness wS not serious enough for me to be a high priority, so we left.

    My daughter, two sons and I were at our wits end – I was so very sick but we couldn’t get help from anyone. So my adult children took matters in their own hands. My youngest son had been researching C-diff and what treatment was most effective. We had all, by that point, lost faith in our medical system and we were desperate – I was sure I was going to die.

    My son found a website called ‘the power of poop’ and it gave full instructions on how to do an at home fecal transplant. My son went out and got all of the equipment and my daughter, who is the healthiest person I know became the donor. We were all set up for the next morning and they were ready to administer the treatment. The instructions on the website are very thorough and easy to do.
    I went through the treatment and the next day I was still sick – we were disappointed but then a miracle happened. On the second day I felt better, very few symptoms and more energy. I improved day by day – that was six weeks ago and I feel like a new person. I am tired at times but my doc said that is due to the lining of my intestines healing.

    I was a bit concerned about letting my Dr know what we had done for fear that he would think I was crazy, but when I told him he was so happy for me and said it was the right thing to do and that my kids had saved my life!! He is well aware if how f—ed up our medical system is here in BC Canada and realizes that I had no choice but to take matters into my own hands. Some people might say it is dangerous to undertake this treatment at home, but when you are in a dire situation and might die anyway, what have you got to lose?

  99. Hello, Thank you for sharing your stories. I was just diagnosed with C-diff and I am on day four of the antibiotic, Flagyl 500 every 8 hours. I am so new to this infection, but would not wish it on anyone ever. While I am not going to the bathroom 15+ times a day since I started the med, I am still bloated, have stomach pains and I am in fear for what may lay ahead. I still have no appetite. I get a slight feeling of hunger and I eat a few bites and my abdomen starts making the loud gurgling noises and shortly later I am in some pains; then its back to the toilet again. I still sleep a lot. Part of the day I think I am possibly all better, but then I realize shortly later I am not. I have posted my story in a group to friends and family on facebook to make other more aware. I am only 31. I am thankful to be able to hear about others and hope that recovery comes sooner than later for everyone.

    1. I was diagnosed with C diff a week ago, I am on Flagyl and feeling terrible, the pain on my left side is so bad and also have hiatus hernia which is in full force, so taking the pills is terrible. I have been off of work for the week, I am to be symptom free for 24 hours in order to go back. I am unsure of what symptom free means? I still get a random fever out of the blue and then feel completely drained. I walked our dog today and did some shopping and came home exhausted. I eat and then my belly becomes huge and bloated….I wondered if it is possible to have had this for some time and not know until I was finally bleeding and unable to tolerate the pain (worse than childbirth). I am hoping to be referred to a GI and that once done the Flagyl that I will be done with this!!!

  100. I am so happy I finally found a community of people who have experience with this disease. I have been feeling so alone and so scared. I am only 20 years old and got diagnosed with C.diff 3 months ago and am currently on pulsing vancomycin for the second time. I haven’t had an experience even close as harrowing as some of you folks, but it is still very scary. I was still able to stay in university as 2 out of three of my really bad bouts came during Christmas break and reading week so I was able to keep up with school work. I was wondering if anyone here has had experience with the fecal bacteriotherapy or, as it is more crudely referred to as, a poop transplant. I finally got a referral to a GI specialist and I was thinking that maybe that might be the best option for me to get my life back. My friends are drifting away, my family doesn’t know what to say to me and my boyfriend feels awkward and uncomfortable around me. Do you guys think that the fecal bacteriotherapy is the way to get back to normal?

    1. Hey Megan! SO sorry for you that you have to be going through this rotten pain in the bum! (Pun intended) You should definitely get a fecal transplant (via the doctor of course, no home remedies should be attempted!) I had C-Diff for a year and it finally went but am left with a legacy of… don;t need to know. I was offered the transplant ONLY if things got worse and they resolved, but I WOULD have done it.
      My Infectious Disease Physician has had tons of experience with it and says it works for 99% of the people with chronic recurrences of C-Diff. They now make the dose in a pill which has frozen smoothie, for want of a better word, of the feces which has been donated by a HEALTHY person which the hospital will screen. All the yukkies are taken out of it and all the good bacteria are left. As I say make sure it is done by a specialist not anyone else. (I am in Australia.) Go for it. You have nothing to lose. Good luck!

  101. Hi there! As a survivor (who lives in fear of getting c-diff again) I keep a close watch on everything new that comes along to help us. May I suggest these two articles: and You can read the first without subscribing, but I urge you ALL to sub to the Medscape site. You do not have to be a doctor, although it is primarily for physicians. Once you sign up, about once every week or so, they will send you the latest Medical news and about every couple of months it includes updates on c-diff. Whatever it is, it is always listed in the subject of the email, so just ignore things you do not care about. The latest and best news always! If you do not know, the “poop pill” has been approved as treatment in the U.S. and has very good results! I would look into it before c-diff does any more damage than it has to your systems. Take care of yourselves, and thanks again LadyPrimal for this site! Love you all! ~Rhonda

  102. Again, I would like to add, while some people are doing the home transplant, it is not as safe as you think. The doctor explained to me the procedures for the actual transplant done by doctors. First the donor has to be screened. Just because they seem healthy as a horse, it does not mean they are, and most of the time they carry some “other” bacteria that might do you more harm than the good that will come from the transplant. Be safe! See the doctor if you want the transplant, or take the pills that have already been sterilized to kill OTHER bacteria.

  103. i have heard great things about the poop pills. i have tested negative for c-diff now, but I would have definitely taken the pills. They are supposed to be 97% successful.

  104. Finally cured muself of c diff by using gammagard, subq treatment. Totally destroyed c diff organisms, much more ideal than poo pills.

  105. My daughter is seven years old and has been diagnosed with C-diff. She has been on Flagyl for three days and now has a rash on her arms and neck. They told us to take her off the Flagyl to see if the rash goes away. I am so worried that we won’t get rid of the bacteria. She doesn’t have an appetite and most times won’t eat. If she does, she get sick with vomiting and diarrhea. She is so scared to eat and wakes up during the night with stomach pain. She has been sick for over a month and was just diagnosed three days ago. Any advice would be helpful.

  106. I am so so sorry to hear that your daughter has this horrible bacteria!!! I was told that I had c-diff almost 3 years ago. I had gone to an after hours clinic with severe abdominal pain, extreame diarrhea and wanting to throw up but not yet. I had tried to wait it out at home but after going to the restroom at least 20 times that day I had to go in. Now I had just finished a second course of anti-biotics for a sinus infection. The first course did not help so the dr. prescribe a second, stronger one. That is what gave it to me, although at the time I did not know this.
    When I got to the clinic the dr. there sent me to the er due to my being dehydrated and needing iv fluids. The dr suspected that I had c-diff but it was the er dr who confirmed it. They started me on flagyl and some pro-biotics and gave me 3 bags of iv fluids and then sent me home saying if it got worse within the next couple days to come back. The er dr told me that he was going to call me with in the next 36 hours to see how I was doing. By the time the dr called I was starting to pass blood and was terrified. He wanted me to come back in but all they were going to do was the same thing that I was doing at home only with the iv fluids.
    At this time I had talked to a friend of mine who is and RN and she told me about some natual essential oils that she had and asked me if I would be willing to try the one called Digestzen before heading back to the er. At this time I was willing to try anything. She brought some over and told me to try to put a couple of drops on my tounge if I could stand the taste. I couldn’t do that because it taste and smells like black licorice which I do not like. So instead I put some on my stomache right over my intestines and some on the bottom of each foot. At the time I did not realize that with the oils as you use them you need to drink water with them. So I got a headache but that was next to nothing compared to the results that I got. Within 6 hours I was no longer in pain and within 12 hours the diarrhea had almost stopped!!! I was amazed and so very thankful. Now I know that everybody is different and what works for one person might not work for another, all I do know is that for me this oil worked wonders and I will never be without it. Also this same compane has a pro-biotic that is double layered so that the pro-biotic actually gets to the intestines where it belongs and not destroyed in the stomache acid as most single layered pro-biotic pills do. The company is doTerra essential oils. I am not trying to sell anybody anything, just telling my story and what really worked for me and saved me a lot of pain and discomfort.
    Hope this helps. Prayers for a speedy recovery

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